gelaine Member Posts: 1
edited March 2014 in Rare and Other Cancers #1
Has anyone experienced this form of cancer.. rare and slow growing.


  • AuthorUnknown
    AuthorUnknown Member Posts: 1,537 Member

    You may want to do a search on the CSN for this diagnosis. You can do this by entering the key words specific to your diagnosis in the search bar at the top of this page. If you find someone who has had this type of experience, you can then contact them through the CSN internal email to see if they are interested in sharing their experiences.

    Take care and be well,


    CSN Dana
  • LisaLynn212
    LisaLynn212 Member Posts: 3
    I was diagnoised in 11/04. My tumor was in my shoulder near my clavical. I have not had recurrences and am currently getting CT scans every three months. I am a mother of 4 and was 36 when diagnoised and taken back by the news but feel extremely blessed that it was not worse. I hope everthing has been well for you and will keep you in my prayers.