my mother stage IV
Comments
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Cathy:
My heart goes out to you. I'm not familiar with survival rates in this type of situation, but the fact that your mother's blood levels are coming down is VERY encouraging. Yes, she has quite a bit to deal with, as do you. But please don't give up hope. Many of us here have lived and are living with situations such as these. You have come to the right place. Hopefully, you will get many responses of suggestions and insights.
In the meantime, try to get your mom to be encouraged by what IS going for her (she's still rather young, blood levels are coming down, they wouldn't have started chemo if they had no hope, etc.). I know what it's like when a mom depends on the daughter so deeply for everything. But a suggestion - please tell her that she needs to start speaking for herself. There will be times you are not available, etc. and it is vital that she can express her wishes. And, we all need to allow ourselves a small 'pity party'. It's all so overwhelming and sudden when all of this happens. But she can have good quality of life - with your help, with all the meds available for side effects, etc. Does she have any hobbies, grandchildren, something she enjoys doing? Try to get her back to that. Watch some funny movies together. Take one day (one moment) at a time - don't look too far ahead. I could go on, but please let me know if this helps or if I am not specific enough.
Please keep us informed. We'll be waiting to hear from you.
Prayers and hugs.
Monika0 -
Monika, Thank you very much for the kind and encouraging words. I made her take a walk today with my kids , just to get some fresh air. I noticed that she is more likely to act more able to do things around them.She used to love to read but I given her books she has wanted but does not touch them. SoI'll have to keep working on that. And starting tomorrow I will make her answer the questions for the doctors!I will let you know how this all goes. Thank you so much, again. Can I ask do you have ovarain or does someone you know have it? Is there any really big advice that has helped you?- Cathymopar said:Cathy:
My heart goes out to you. I'm not familiar with survival rates in this type of situation, but the fact that your mother's blood levels are coming down is VERY encouraging. Yes, she has quite a bit to deal with, as do you. But please don't give up hope. Many of us here have lived and are living with situations such as these. You have come to the right place. Hopefully, you will get many responses of suggestions and insights.
In the meantime, try to get your mom to be encouraged by what IS going for her (she's still rather young, blood levels are coming down, they wouldn't have started chemo if they had no hope, etc.). I know what it's like when a mom depends on the daughter so deeply for everything. But a suggestion - please tell her that she needs to start speaking for herself. There will be times you are not available, etc. and it is vital that she can express her wishes. And, we all need to allow ourselves a small 'pity party'. It's all so overwhelming and sudden when all of this happens. But she can have good quality of life - with your help, with all the meds available for side effects, etc. Does she have any hobbies, grandchildren, something she enjoys doing? Try to get her back to that. Watch some funny movies together. Take one day (one moment) at a time - don't look too far ahead. I could go on, but please let me know if this helps or if I am not specific enough.
Please keep us informed. We'll be waiting to hear from you.
Prayers and hugs.
Monika0 -
Cathy:cwinters5 said:Monika, Thank you very much for the kind and encouraging words. I made her take a walk today with my kids , just to get some fresh air. I noticed that she is more likely to act more able to do things around them.She used to love to read but I given her books she has wanted but does not touch them. SoI'll have to keep working on that. And starting tomorrow I will make her answer the questions for the doctors!I will let you know how this all goes. Thank you so much, again. Can I ask do you have ovarain or does someone you know have it? Is there any really big advice that has helped you?- Cathy
I'm so glad if any of this helps. I am a 6-year OVCA (stage 1C) survivor, but recently a recurrent mass was discovered in surgery. However, all lymph nodes (11 of them!) removed were fine as well as the washing. So I started chemo again last month, and will have treatment #2 of 6 this week. As far as what has helped the most, is my faith. Believe me, I don't know how I would have gotten through some of the toughest times without a source of strength. Even though my family is so helpful and supportive, it's in the darkest hours (such as a night when I'm wide awake, in pain and the night is so lonely) that I pray to myself and just repeat scripture verses that bring me comfort. I don't think there's any one thing that will help otherwise. It's whatever works at the moment. And sometimes, what works one time, isn't what works the next. If there are other specific questions you have, please let me know. I'll be happy to try to answer them.
One more thing - Please let your mom know that I'm not far from her age (going on 52), and I would be happy to correspond with her personally, when she's up to it.
Until then, God bless you for being the loving and caring daughter that you are, do want to help your mom so much. All of you are in my prayers.
Monika0 -
So sorry to hear about your mom. We are close to the same age. My cancer had spread pretty bad also and before surgery and chemo my ca125 was 2000. I have put your mom on my prayer list and am so sorry to hear about the depression she is dealing with and hopefully soon the fight mode will kick in. It is hard news and very frightening. Is there maybe a support group in your area she could attend that may help. And also let the Dr know how depressed she is as there are a lot of meds that could help her.
Transfusions are pretty normal after so many chemos. Sometimes they give shots to help keep the blood counts, I have had both. Right now I am a survivor of just over 3 years, it has been many chemos but worth every month it has allowed me to be here with my family. Maybe once the chemo shrinks the cancer your mom will be a candidate for surgery. Only time will tell.
How are you doing? Do you have a support system? Sounds like the stress is weighing pretty heavy on your shoulders and you could use some prayers also.
I am so glad you found this board the women will really support you.
Prayers and Hugs
Bonnie0 -
Hi Cathy,
Sorry to hear about your mom. Don't give up. Its not unusual to get depressed. Its not easy to get thru it but can be done. I am a good example. It is now 2 years since I was diagnosed with stage 4 ovarian cancer. It was my daughter who nursed me back to health.It took about a year to get thru all the various treatments. There were many dark days and many hopefull ones. Keep your kids around her. My grandchildren were a blessing. I couldn't be grouchy around them. The antidpressant meds take about a month to 6 weeks to get into the system. If they won't work ask for a different one. There are several.Get your mom's friends to come & spend time with her. Short visits are great. Tell them to be positive & not show any pity .Friends could be very helpfull.Don't be afraid to ask for their help.Try to take a little time off while one of her friends is with her. You need to get a little breather so you can get back to it with renewed energy. I would be glad to answer anything else that you may ask - if I have that info. Thinking of you, Imoan0 -
Thank you foe everyones kind support and advice.She just started taking her pain med more from the doctors advice and that seams to have made her feel better to get up and move around. I aslo bring my kids over and that does motivate her to get up. Small steps but working on it! Unfortunately today we did receive some bad news. Her cat scan results came back and it has shown that the cancer has grown. So they are stopping the carbo/taxol and I am not sure if they will coninue with a different Chemo. The doctor did not seem so optomistic today but he is going to review the films with the originals because her tumor markers were going down so we are not sure why it is still growing.He is going to call us for an appointment to go over things when he reviews the films again with the hospital.imoan said:Hi Cathy,
Sorry to hear about your mom. Don't give up. Its not unusual to get depressed. Its not easy to get thru it but can be done. I am a good example. It is now 2 years since I was diagnosed with stage 4 ovarian cancer. It was my daughter who nursed me back to health.It took about a year to get thru all the various treatments. There were many dark days and many hopefull ones. Keep your kids around her. My grandchildren were a blessing. I couldn't be grouchy around them. The antidpressant meds take about a month to 6 weeks to get into the system. If they won't work ask for a different one. There are several.Get your mom's friends to come & spend time with her. Short visits are great. Tell them to be positive & not show any pity .Friends could be very helpfull.Don't be afraid to ask for their help.Try to take a little time off while one of her friends is with her. You need to get a little breather so you can get back to it with renewed energy. I would be glad to answer anything else that you may ask - if I have that info. Thinking of you, Imoan
What other chemo treatments has anyone recieved if carbo/taxol has ot helped?
Has anyone had where there tumor markers go down but it is still growing?- Cathy0
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