signet-ring cell carcinoma

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JADot
JADot Member Posts: 709 Member
edited March 2014 in Colorectal Cancer #1
I have been diagnosed with the rare signet-ring cell carcinoma in my colon about two weeks ago. I am anxiously looking for some survivors out there and a buddy or two to go through this with. Any information will be greatly appreciated. Thanks ahead.

JADot

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  • spongebob
    spongebob Member Posts: 2,565 Member
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    JADot -

    Go to: http://www.colondar.com click on the buttons for model info and go to Anne (I don't have my copy handy so I can't tell you what month she is - blonde, laying down in the water) Anyway, there will be a link that you can contact her via e-mail. If memory serves correctly, Anne also has the signet ring cell carcinoma. Hope this helps.

    - Bob (AKA "Mr. July")
  • terril
    terril Member Posts: 296
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    Hi JADot. I am Terri and I have signet ring. Mine was in my cecum and had mets to my ovaries, tubes, and uterus. Dx February 04. Went through chemo for 6 months...5-fu and lv six
    weeks on and 2 weeks off. Just had a recurrence in the pelvis (small tumor). Will find out what will happen on January 17. I hope you are doing ok.
  • JADot
    JADot Member Posts: 709 Member
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    spongebob said:

    JADot -

    Go to: http://www.colondar.com click on the buttons for model info and go to Anne (I don't have my copy handy so I can't tell you what month she is - blonde, laying down in the water) Anyway, there will be a link that you can contact her via e-mail. If memory serves correctly, Anne also has the signet ring cell carcinoma. Hope this helps.

    - Bob (AKA "Mr. July")

    Hi Bob:

    Thanks for the pointer. I didn't find the mention of signet ring but found some very inspiring survival stories. Colondar - what a scream! I was profoundly touched by the picture of that big incision.

    JADot
  • JADot
    JADot Member Posts: 709 Member
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    terril said:

    Hi JADot. I am Terri and I have signet ring. Mine was in my cecum and had mets to my ovaries, tubes, and uterus. Dx February 04. Went through chemo for 6 months...5-fu and lv six
    weeks on and 2 weeks off. Just had a recurrence in the pelvis (small tumor). Will find out what will happen on January 17. I hope you are doing ok.

    Hi Terri:

    Thanks so much for replying to my post. I am doing great recovering from my surgery. Tomorrow I will have the stiches out. Two of my friends will bring dinner to help celebrate.

    Terri - Let's beat this thing together! My thoughts are with you for your big day on 1/17. Let me know how it turns out. My mom is a geneticist and she has a lot of colleagues/students in cancer research. They are all out there digging up information for me and you right now. I'll share what I know about new research/treatment for signet ring.

    Take good care!

    JADot
  • terril
    terril Member Posts: 296
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    JADot said:

    Hi Terri:

    Thanks so much for replying to my post. I am doing great recovering from my surgery. Tomorrow I will have the stiches out. Two of my friends will bring dinner to help celebrate.

    Terri - Let's beat this thing together! My thoughts are with you for your big day on 1/17. Let me know how it turns out. My mom is a geneticist and she has a lot of colleagues/students in cancer research. They are all out there digging up information for me and you right now. I'll share what I know about new research/treatment for signet ring.

    Take good care!

    JADot

    Hi JADot!!!
    Thanks for the info on signet ring!!! You are right...we will beat this thing!!! I will let everyone know how my visit to the onco goes on January 17. My thoughts and prayers to everyone. Terri
  • kapper48
    kapper48 Member Posts: 85
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    how are you
    JADot Hi, my name is Pat and I also have signet ring cell can you tell me how you are doing with it and what treatments you are on
    Thanks Pat
  • polarprincess
    polarprincess Member Posts: 202 Member
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    kapper48 said:

    how are you
    JADot Hi, my name is Pat and I also have signet ring cell can you tell me how you are doing with it and what treatments you are on
    Thanks Pat

    hi
    seems like you have found several on here that have it... i just want to lead you to one more person. at the same place you found the colandar (the colon club) there is the colon talk section which has a great forum and there is a member there named Dori that also has the signet cell. I am confused though.. looks like you have been a member for quite awhile and was first diagnosed in 2005?? is this a new cancer in your colon or a recurrence?? What did you have the first time around??