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Malignant Mixed Mullerian Tumor of the Ovary

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  • NoTimeForCancer
    NoTimeForCancer CSN Member Posts: 3,601 Member
    #22
    Bev73 said:

    MMMT

    I just received a diagnosis of MMMT cancer on Monday 10-5-2015.  I am 73 years old and in mid August I experiened inappropriate bleeding for a week or so.  I scheduled an appointment with a gynecologist for 9-02-2015.  Then I had an ultrasound, biopsy and pap smear on 9-5-2015.  On 9-24-2015 I had a robotic complete hysterectomy.  Cancer cells were found in uterus and on ovaries.  Of course since I had a complete hysterectomy those are gone now.  On 9-29-2015 I had an abdomenal and pelvic CAT.  Cancer cells are present in the omentum and on 10-21-2015 I will have surgery to remove as much as they can of the omentum and any signs in lymph nodes, nodules etc. that they find at that time.  Then  three weeks or so later I will start chemo/radiation treatments.  I have to meet with a medical oncologist to discuss my treatment plan.

    I am hoping to maintain a postitive attitude given the rarity of this cancer.  I am told there is not a lot of research available since it is such a small number of women with this diagnosis.  I found a couple of studies but they were 10 years old (2005) and I decided not to read them.  I am looking for positive resources so I can increase my chances of long term survival.  I found this site this morning and decided to join in and hopefully share support with others battling this cancer.

    Bev73, I would invite you to

    Bev73, I would invite you to come over to the Uterine board.  Yes, MMMT is rare and there are some women over there who can help you.  It is rare but you are not alone.

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  • jodil
    jodil CSN Member Posts: 42
    #23
    mixed mullerian

    just joined today but am not seeing any recent posts from people dealing w/ mixed mullerian uterine cancer. Anybody out there dealing w/ this? 

     

     

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  • jodil
    jodil CSN Member Posts: 42
    edited November 2017 #24
    Bev73 said:

    MMMT

    I just received a diagnosis of MMMT cancer on Monday 10-5-2015.  I am 73 years old and in mid August I experiened inappropriate bleeding for a week or so.  I scheduled an appointment with a gynecologist for 9-02-2015.  Then I had an ultrasound, biopsy and pap smear on 9-5-2015.  On 9-24-2015 I had a robotic complete hysterectomy.  Cancer cells were found in uterus and on ovaries.  Of course since I had a complete hysterectomy those are gone now.  On 9-29-2015 I had an abdomenal and pelvic CAT.  Cancer cells are present in the omentum and on 10-21-2015 I will have surgery to remove as much as they can of the omentum and any signs in lymph nodes, nodules etc. that they find at that time.  Then  three weeks or so later I will start chemo/radiation treatments.  I have to meet with a medical oncologist to discuss my treatment plan.

    I am hoping to maintain a postitive attitude given the rarity of this cancer.  I am told there is not a lot of research available since it is such a small number of women with this diagnosis.  I found a couple of studies but they were 10 years old (2005) and I decided not to read them.  I am looking for positive resources so I can increase my chances of long term survival.  I found this site this morning and decided to join in and hopefully share support with others battling this cancer.

    mmmt

    Are you still in the chatroom? I just joined today. Aged 59, diag recently. Would love to talk w/ you. JODI

     

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