cancer and scarcot marie tooth disease

Comments
-
Hi sallyP:
I think you're referring to Charcot-Marie-Tooth Disease?
From what I've read, it's an hereditary disease/disorder, ranging from mild to more severe. Did you have it prior to chemo? Just wondering because many of us have some neuropathies following chemo, particularly with Taxol/Taxotere. These typically resolve over time.
I had a some wrist problems which developed about 3 mos. post chemo. Dx'd as Stylo-teno-synovitis.
Treated with various methods for about a year in an effort to avoid surgery. In my case, the nerve and the nerve sheath were inflamed from wrist to elbow. After surgery (ultimately went for it, as nothing else was helping) it cleared up completely with no problems since. The surgery was almost 2 years ago. Wasn't a very painful surgery and I healed quickly afterward. I now take a daily supplement of Glucosomine/Chrondroitin w/MSM. No complaints and it helps keep my joints/ligaments well lubricated.
If you're newly dx'd and never had any symptoms of Charcot-Marie-Tooth, prior to chemo, I'm just wondering if it could be mistaken for chemo induced neuropathy? There are quite a number of tests which can rule out CMT, as well as correctly diagnose it, but it sounds as if you may have already had all those tests.
Several good websites for info where you can find out more about it, if that may help at all:
www.mdausa.org/
www.charcot-maire-tooth.org
www.ataxia.org
Hope that may be of some benefit to you and best wishes.
Love, light and laughter,
Ink0 -
Yes that's it spelled it wrong. My family was dx'd with cmt years ago from grandpas side, Irish. I am having trouble finding Dr to help with pain etc. I hadn't heard others having pain too, don't feel quite so alone. Dr doesn't understand why still hurts after 9 months.thanks for the web sites Sallyinkblot said:Hi sallyP:
I think you're referring to Charcot-Marie-Tooth Disease?
From what I've read, it's an hereditary disease/disorder, ranging from mild to more severe. Did you have it prior to chemo? Just wondering because many of us have some neuropathies following chemo, particularly with Taxol/Taxotere. These typically resolve over time.
I had a some wrist problems which developed about 3 mos. post chemo. Dx'd as Stylo-teno-synovitis.
Treated with various methods for about a year in an effort to avoid surgery. In my case, the nerve and the nerve sheath were inflamed from wrist to elbow. After surgery (ultimately went for it, as nothing else was helping) it cleared up completely with no problems since. The surgery was almost 2 years ago. Wasn't a very painful surgery and I healed quickly afterward. I now take a daily supplement of Glucosomine/Chrondroitin w/MSM. No complaints and it helps keep my joints/ligaments well lubricated.
If you're newly dx'd and never had any symptoms of Charcot-Marie-Tooth, prior to chemo, I'm just wondering if it could be mistaken for chemo induced neuropathy? There are quite a number of tests which can rule out CMT, as well as correctly diagnose it, but it sounds as if you may have already had all those tests.
Several good websites for info where you can find out more about it, if that may help at all:
www.mdausa.org/
www.charcot-maire-tooth.org
www.ataxia.org
Hope that may be of some benefit to you and best wishes.
Love, light and laughter,
Ink0
Discussion Boards
- All Discussion Boards
- 6 CSN Information
- 6 Welcome to CSN
- 121K Cancer specific
- 2.8K Anal Cancer
- 441 Bladder Cancer
- 306 Bone Cancers
- 1.6K Brain Cancer
- 28.4K Breast Cancer
- 393 Childhood Cancers
- 27.8K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.1K Gynecological Cancers (other than ovarian and uterine)
- 12.9K Head and Neck Cancer
- 6.3K Kidney Cancer
- 664 Leukemia
- 781 Liver Cancer
- 4.1K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 234 Multiple Myeloma
- 7.1K Ovarian Cancer
- 53 Pancreatic Cancer
- 486 Peritoneal Cancer
- 5.2K Prostate Cancer
- 1.2K Rare and Other Cancers
- 532 Sarcoma
- 711 Skin Cancer
- 645 Stomach Cancer
- 190 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.8K Uterine/Endometrial Cancer
- 6.3K Lifestyle Discussion Boards