IBC metatasized to brain

tarzaname

hi i have a very good friend who has IBC. She went through radiation/chemo and was clear for a year, then it spread to her liver. Again Chemo/radiation, it was looking like she was winning this battle also. Now it has shown up in her brain. She is going through radiation right now. Her doctors attitude is basically sorry that's all we can do. I don't agree, she certainly doesn't agree and will do whatever it takes to fight for her life. Since the radiation/drugs/cancer are making her head fuzzy i told her i would do the research.

Can anyone give me any information, point me to any website, anything that has to do with IBC and the brain.

Thanks

AuthorUnknown

Hello,

You may want to consider contacting the American Cancer Society's National Cancer Information Center. Cancer Information Specialists are available 24 hours a day and may be able to assist you with the resources you are requesting. They can be reached at 1-800-227-2345.

Take care and be well,

Dana
CSN Dana

glowinthedark

I, too have IBC - mets in the bones and many soft-tissue tumors, and have been scouring the web and every med center, doctor and anyone I can find to get more info. Since it's only about 4-6% of us, info is scarce. (And experienced Dr's are about as rare). Hang in there and much love.

explorer1223

Have you gone to IBCResearch.org. They claim to be the only research group on IBC. However, I also found that a Dr. Love is doing research to consider a viral connection