The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

To Jean No response

suzyb
suzyb CSN Member Posts: 9
edited March 2014 in Breast Cancer #1
Jean my initial dx was 8/02 not 04.Oops again.I was 40-50% ER 20% PR HERNEU Negative. What treatment are you on. Suzy

Comments

  • jeancmici
    jeancmici CSN Member Posts: 665 *
    When I had a recurrence, I was taking tamoxifen - ending two years on it. Then tookd zometa for the bone mets and femara in place of tamoxifen - it was useless - after CT scan, found liver and lungs involved also. Began herceptin, had a port put in for navelbine and then took those two together from January to end of May. Herceptin gave me heart failure, navelbine stopped working - but never helped the liver, procrit never did much for the red cells - rec'd weekly as well as transfusios three times at least. Then in July given choice of xeloda or not - after much thought said NO. Continuing with Zometa hoping to save myself from more bone troubles. Xeloda MIGHT have given me some extra time - few months - maybe not. I am now in God's hands and nature's hands and waiting for further developments.Trying to enjoy each day - friends have not forgotten me.
    Herceptin would not be for you since you are Her2neu negative. Keep in touch with us.

    Love and good luck, Jean