The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

update on xeloda and suggestion of website

jeancmici
jeancmici CSN Member Posts: 665 *
edited March 2014 in Breast Cancer #1
Hi Friends,
Thanks for your kind messages concerning my situation. As of today, I am going to the Hospice assisted living section - 8 bed section - entering this afternoon to room I paid for last Wednesday or would have lost it by delaying entry.

Had a look just now at
www.plwc.org
People Living with Cancer - website connected with ASCO - American Society of Oncology which many oncologists belong to.

Onco discussed taking 2000 mg of Xeloda - then gave me RX for 3000 per day - go figure!
Did not fill it - will check with Hospice doctor and not start until I am there and not alone in my apartment. All the precautions sound frightening. Nausea/vomiting mentioned as common - onco said: Oh, no - and did not prescribe anti-nausea meds. I do not want to find out if I will have a problem.

Surgeon in same clinic who did my lumpectomy said; Xeloda? a piece of cake.

Sure..... doctors - pffft! When and if they become patients, story will change.

Hope I'll be able to keep in touch - depends on connection of computer at hospice and my health too.

Love to all,
Jean
Like Care

Comments

  • judiek
    judiek CSN Member Posts: 71
    #2
    Jean,

    I'm so sorry to hear this news. I have been gone a lot and have missed a lot of posts. I sure hope that your new oncologist is able to help you and get you back on track. I will keep you in my prayers Jean. I hope you are able to keep us posted.

    Warmly,

    Judie
    Like Care
  • hummingbyrd
    hummingbyrd CSN Member Posts: 950 Member
    #3
    Oh Jean! I do so hope you get an excellent connection for your computer. I want you to keep in touch girlfriend!
    Remember one thing, well two, no three...we love you, God will never forsake you and you are moving into a place called People LIVING With Cancer! Actually, I think I read that wrong, that was a website, BUT living with cancer IS exactly what we are doing.
    Keep a positive attitude, juice those veggies (especially tomatoes and broccoli) and keep in touch.
    God bless you lady.
    (((HUGS))) from hummingbyrd
    Like Care
  • EllenM6246
    EllenM6246 CSN Member Posts: 27
    #4
    Hi Jean,
    You are in my thoughts and prayers. I don't write too often but I pay attention to the posts and yours and many others have given me such great hope. Do what you need to do, get better and keep us posted. Fondly, Ellen
    Like Care
  • SusanAnne
    SusanAnne CSN Member Posts: 245
    #5
    Dear Jean: I wish for you only good things. Take advantage of all the help they offer and live like you haven't a care in the world. Hope to hear from you soon.
    You will be in my thoughts,
    Susan
    Like Care

Discussion Boards