RetroP Lymph Node Disection

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Comments

  • Davepet
    Davepet Member Posts: 92
    #22
    SonnyDays said:

    Interesting...
    My husband, who owns a atlanta roofing company, was recently diagnosed with testicular cancer also. He was told by a doctor recently to have his lymphs removed, but we both agreed that this was a scary choice to make. I kept telling him to get a second opinion, but he hasn't listened. I think I'm going to share your story with him.

    Well, with some types &
    Well, with some types & stages of TC, the RPLND is indeed a smart thing to do, so do not dismiss it as unneeded in every case. Find out what the standards are for the kind & stage of your TC & use that to guide you.

    Dave
  • daqueenofsheba
    daqueenofsheba Member Posts: 1
    #23
    similar case...testicular cancer/teratoma/spread
    Hi,

    My boyfriend got diagnosed a month ago with stage 3 testicular cancer, 95% teratoma. The spread is to the back of his abdomen where he has a pretty large tumor and from what the main oncologist says, he has 50-60 tumors in his chest. 2 days after the diagnosis, he had the surgery and out when one testicle. Then, they rapidly started him on BEP chemo. He is responding and his blood markers have dropped, his tumors are shrinking. However, we found several blood clots and he got treated today with that. The oncologist from our perspective has not had a really optimistic attitude about his prognosis/future and I am in search of a better oncologist. My question is, what is the Einhorn Series Chemo that you went through exactly? Our oncologist has now contacted Einhorn because of the difficulty and complexity of my boyfriend's state. Please, any words of wisdom and hope...is needed.
  • Jml87
    Jml87 Member Posts: 2
    #24
    SonnyDays said:

    Interesting...
    My husband, who owns a atlanta roofing company, was recently diagnosed with testicular cancer also. He was told by a doctor recently to have his lymphs removed, but we both agreed that this was a scary choice to make. I kept telling him to get a second opinion, but he hasn't listened. I think I'm going to share your story with him.

    I just got mine removed by a
    I just got mine removed by a so called great surgeon at mass general im 25.yrs old and I cant even get it up anymore or ejaculate my life sucks now I might as well be dead my manhood is gone cuz this surgey and after they did it.the tumors werent even cancehrous great huh now I have to go the rest of my miserable life without ever even getting aroused or a boner and having sex awesome my advice would.be to.get get a 2nd3rd and a 4th opinion hope everythong goea well im like a robot now after this surgery!!!
  • sophiaandre
    sophiaandre Member Posts: 1
    #25
    Thanks

    Thank you very much !!!...

    Every contribution is very valuable for us.

    Sophia from France.

    Excuse my english

  • Jacksdad62
    Jacksdad62 Member Posts: 2
    #26
    Davepet said:

    Well, with some types &
    Well, with some types & stages of TC, the RPLND is indeed a smart thing to do, so do not dismiss it as unneeded in every case. Find out what the standards are for the kind & stage of your TC & use that to guide you.

    Dave

    RPLND decision time

    Hello Dave. I have read thru the above entries to hear the horror stories and few in support. I'm off to Memorial Sloan Kettering tomorrow for my 3 mos CT scan and bloodwork before seeing the Dr on Thursday. I finished 3X BEP at the end of January. Then saw DR at MSK. Because I was on blood thinners for clotting in my lung, Sloan dismissed me and said see you in 3 mos. My TC caused my periteal node to become 5 by 2.9 cm. It was down to 4 by 6 mm in May and MSK still wants to do the RPLND citing the Indiana study reducing chance of reoccurrance by 20-30%. Many people posting seem to find all these journals saying no proof of positive results. Any suggestions on where to go to get such readings? I'm 53 and not having any more children. Hoping the nerve sparing surgery won't end life as we know it. Not the end of the world if it will reduce my chances of cancer battle down the road. Thanks for any incite you may have. I'm willing to hear anyone elses input as well. Stay healthy everyone. PS>I would like to think I'm Superman and completely cured. Markers are good. Fatigue is my biggest enemy. Especially since loosing an adrenal gland to a tumor 3 years ago. They say cancer and the tumor are unrelated....hmmm.

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