total femur replacement

2

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  • stressedspouse
    stressedspouse Member Posts: 3
    #22
    femur replacement
    MI2011
    Did you locate any doctors in Pennsylvania, New Jersey, or Florida?
  • stressedspouse
    stressedspouse Member Posts: 3
    #23
    femur replacement
    MI2011
    Did you locate any doctors in Pennsylvania, New Jersey, or Florida?
  • Sallyd
    Sallyd Member Posts: 1
    #24
    stressedspouse said:

    femur replacement
    MI2011
    Did you locate any doctors in Pennsylvania, New Jersey, or Florida?

    femur replacement
    stressedspouse,
    I live near Pittsburgh PA and know a doctor that does femur replacement. If you'd like info let me know. I had hip/femur/knee/partial tibia replaced Dec 2011.
  • laslater
    laslater Member Posts: 1
    #25
    MI2011 said:

    pain and Hospitals , Doctors
    i had 12 surgeries on my knee and femur , and there is always pain but Advil has helped me. I had a total knee and I had my last surgery at Beaumont Hospital in Mi and it was very painful for the first six months but got better. The total knee femur seems to hurt with the weather. I have found that if you have a lot of pain or your leg gets hot, feels loose or moves a little, then you may need a component fixed. My first surgery was when I was 17 yrs old and I had it at Massachusetts General Hospital under Dr. Mankin the inventor of using another person's femur knee, I had two failures, so I went to the best Hospital where my doctors who tried there at Mayo Clinic (Mayo Medical Center Rochester, MN) Dr. Sim and I had metal used. I had a break in 2008, 10years after the surgery, and I was having a deep pain in my femur area a few days prior to the break, I have been told many people who have a failure feel that same deep pain. Dr. Les of Beaumont Hospital - ROYAL Oak, MI was the Americans Best Doctors listed Cancer/ Orthopedic Surgeon , I have had no problems now three years later.

    I had allot of surgeries because I went to the Best Doctors and Hospitals, but because of my age I tired many methods to save my leg, which they did. I also had lots of failures, but not since having Dr.Les surgery, I did have Dr. Irwin of Beaumont Hospital prior to Dr. Les and he never performed any of my complex surgeries he had Dr. Les treatment. Now 20 years into this, you get used to the pains, but you always watch out for them as well. Even people for lose a limb have pain

    So this should answer questions with pain, surgery, Doctors, Hospitals, if you have any more questions let me know. Dr. Mankin did retie, but he still is doing research.

    U of M Hospital also has a good Doctor, Dr.Beirman but, I went to the best , like everyone says, I researched all the hospitals, and doctors that are dealing with bone cancer , and limb salvage. I had been doing research for 20 years, and my leg feel great,

    There is a long list of very good Hospitals and Doctors, but you have to like the doctor, don't be forced into surgery, talk to other doctors, and get the best, as its your life and body. The big C word is very stressful, I was told I had to have my leg amputated by three doctors, until I went to the best. One of the three doctors said I could hit him if he was wrong about me having to lose a limb, I called him the next day after my surgery 20 years ago, to see if he was going to keep his word of being wrong.

    DOCTORS IN MIDWEST DOING TOTAL FEMUR REPLACEMENT
    I have over ten surgeries on my knee and femur. I developed staph after my first knee replacement. After three unsuccessful posts in the femur, my doctor is thinking total knee replacement. I am 65 and find it difficult to walk. Anuy doctors do this replacement on a regular basis.

    My orthopedist is one of the best but has only done this four times in his long career.
  • sterneyland
    sterneyland Member Posts: 5
    #26
    DINOSAUR40 said:

    total femur replacement
    I see April was your last posting and was wondering how you are doing with your rehab.
    I am 70, was diagnosed with kidney cancer in 1991, lost one kidney and was treated with InterluekenII. Had thoracic surgery in 1999 to remove tumors from chest, and was diagnosed with tumors in the other kidney in 2003. Had 5 radio frequency ablations from 2003 to 2005, and a rod was inserted in my left femur in 2008.In August I had my other kidney removed and am on dialysis. It is now being recommended I have a total femur replacement as the tumor is progressing in the bone. My situation appears to be extremely similar to yours and I would love to hear how you are progressing and any information that may be helpful.

    I posted a comment some time
    I posted a comment some time ago. How are you progessing? My email is bewalton@btinternet.com.uk
  • Hiness58
    Hiness58 Member Posts: 1
    #27
    Sallyd said:

    femur replacement
    stressedspouse,
    I live near Pittsburgh PA and know a doctor that does femur replacement. If you'd like info let me know. I had hip/femur/knee/partial tibia replaced Dec 2011.

    femur,knee, hip replacement
    Hi, my sister in law is getting ready to have surgery next Friday at Duke university. She isn't one to get online and do research, but I am. I wondered how the surgeries are going since it's 2012? And how everyone is still doing? I'm sure they've made strides in the past few years. Would love to know how everyone is doing!
  • sterneyland
    sterneyland Member Posts: 5
    #28
    Hiness58 said:

    femur,knee, hip replacement
    Hi, my sister in law is getting ready to have surgery next Friday at Duke university. She isn't one to get online and do research, but I am. I wondered how the surgeries are going since it's 2012? And how everyone is still doing? I'm sure they've made strides in the past few years. Would love to know how everyone is doing!

    Total Replacement femur
    Have a look at my comments under Sterneyland about the operation and recovery period. I recommend the operation and my leg is still Ok and no pain. Occasionally stiff if I have been lying at night in an odd position. I use a stick in case I overbalance as it is not possible for me to put weight on the leg when it is bent. Consequently I have to walk upstairs one step at a time. Having the operation is much better than having no leg! Good luck to sis-in-law.
  • pennyahlquist
    pennyahlquist Member Posts: 2
    #29
    sterneyland said:

    Total Replacement femur
    Have a look at my comments under Sterneyland about the operation and recovery period. I recommend the operation and my leg is still Ok and no pain. Occasionally stiff if I have been lying at night in an odd position. I use a stick in case I overbalance as it is not possible for me to put weight on the leg when it is bent. Consequently I have to walk upstairs one step at a time. Having the operation is much better than having no leg! Good luck to sis-in-law.

    femur replacement

    Hello, I am very interested in learning more about this procedure and can't seem to find a lot of information on line. My freinds son has bone cancer and would like an alternative to amputation from the knee down. Any information or web sites you can send me would be a great help.

    Thank you so much,

    Penny

  • pennyahlquist
    pennyahlquist Member Posts: 2
    #30
    sterneyland said:

    Total Replacement femur
    Have a look at my comments under Sterneyland about the operation and recovery period. I recommend the operation and my leg is still Ok and no pain. Occasionally stiff if I have been lying at night in an odd position. I use a stick in case I overbalance as it is not possible for me to put weight on the leg when it is bent. Consequently I have to walk upstairs one step at a time. Having the operation is much better than having no leg! Good luck to sis-in-law.

    femur replacement

    Hello, I am very interested in learning more about this procedure and can't seem to find a lot of information on line. My freinds son has bone cancer and would like an alternative to amputation from the knee down. Any information or web sites you can send me would be a great help.

    Thank you so much,

    Penny

  • jchoward55
    jchoward55 Member Posts: 1
    #31
    pennyahlquist said:

    femur replacement

    Hello, I am very interested in learning more about this procedure and can't seem to find a lot of information on line. My freinds son has bone cancer and would like an alternative to amputation from the knee down. Any information or web sites you can send me would be a great help.

    Thank you so much,

    Penny

    femur replacement

    Penny,

    I had a femur replacement in Oct 2012.  I am still working on recovering.  Did you find the information you needed?

     

    Judy

     

  • Carynhip
    Carynhip Member Posts: 1
    #32
    IceQueen said:

    Hi
    I'm so sorry to hear of your husband's diagnosis.
    I was diagnosed with osteosarcoma the month before my 21st birthday - I was given chemotherapy and limb salvage operation (femur/knee/partial tib replacement). The operation was successful and I was walking around without crutches within 2 months. This was 10 years ago and I've had no recurrences. In fact I've just had my annual check-up and all is looking good. Obviously I have limited movement in my knee and can only bend it around 90degrees and I'm constantly "aware" that it's there, but I now run, climb rocks and parapent for fun.
    I'm sure everything seems very bleak at the moment, but I'm living proof that people can survive this type of cancer and the operation that goes with it, and lead a "normal" life. I say "normal" because most people I know don't consider my rock climbing and throwing myself off mountains for fun "normal". I'd be more than happy to answer any questions about my surgery/chemo you or your husband may have and in the meantime I send my best regards to you and your family in what I know from first hand experience to be an awful awful time.

    Your success

    Hi

     

    I saw your post and wanted to aske your advice -

     

    My situation is very different in that I fortunately do not have cancer - however , I stumbled upone this website dearching hip/femur replacemets. I had a dyslocated hip as a child and it went un diagnosed until it was too late and they had to operated and pin and plate it etc. I have been extremely lucky in that I have walked and lead an active lifestyle. However, I have a large leg length difference and a very bent femur. It has caused me a lot of low back pain and neck issues. Slipped discs and nerve traps etc. 

     

    I am now trying to figure out how to go about replacing the hip and femur to straghten me up - I'm 32 and I know that it can only be worse as the years go by in terms of my discomfort.

     

    How was it replacing the hip and femur? I have a feeling my hip surgen who I am due to see will tell me the surgery is extremely drastic and not worth it until I am in complete agony on a daily basis. However, I would really like to know how realistic it is to have a better life with the surgery. If it wasn't for the bent femur they could just replace the hip - but replacing the hip as I am now won't solve any issues in terms of my walking pattern and leg length problems. my pelvis twists rather a lot when I walk - it's compressing a lot of nerves which will not be eased until the joints can be leved out and stabalised.

     

    I hope you don't mind me asking you - it sounds like you have been really brave - and I respect your postive attitude. I would love to run without pain some day - or even ski

    What do you think????

     

    Many thanks

     

    Caryn

  • Remi ro
    Remi ro Member Posts: 1
    #33
    I have had a total femur replacement, hip and total knee replace

    I had his surgery 9 years ago.  

  • JojoB
    JojoB Member Posts: 1
    #34
    AuthorUnknown said:

    hi: My son just had a total femur, knee and partial tibial replacement. His surgery took 3-4 hours, 58 staples and he was out of bed in two days. He was partial weight bearing in four and it has been two weeks and he can stand, walk a short distance with 70% weight bearing. He said that he had more pain from the osteosarcoma tumor than the surgery. You can see his surgery photos at www.caringbridge.org/visit/zackstuck. Go to the links page then to the community photo web link.

    Total femur replacement 5/14

    i just found this site. I'm 58 and had a distal femur replacement and total knee in 1993 for Osteosarcoma. my tumor did not respond to chemo. I have not had a recurrence - knock on wood.  My steel stem broke in 2012 and I had a revision.  I was walking and returned to work in five weeks, however I developed deep bone pain after 3 months and after multiple tests my MD said it was nerve pain. Put me on Neurontin and Vicodin. I took myself off of the Neurontin due to side effects. I just dealt with my pain and when I couldn't walk much jumped on a bike. I use to walk 4 miles a day. So big change in my activity level. My insurance changed so I couldn't go back to my surgeon (which was a blessing). I went to UCLA - Dr. Susan Bukata - and she diagnosed me with Aseptic Osteolysis which cause my endoprosthetic to be loose (my pain). Needed revision again but felt that there wouldn't be enough bone left for a successful revision and opt for total femur replacement. I'm almost 12 weeks out And just got the okay to use a cane but PT guy think I'm too weak for it so I'm using one cane. At home I walk but fatigue easily. I'm taking half a Vicodin tab every four oy five hours. I finally can swim with fins. I can only sleep on my back and my adjustable bed has been a godsend. This is a much bigger surgery and rehab than my previous surgeries but I'm getting stronger. I joke that I am half-assed but I truly am. Someone let the air out of my right cheek. my abductors have atrophied and that isn't just from surgery - it's been going on since my pain started. I'm so glad my insurance was changed because I would have just sucked it up and carried on until I couldn't walk or my leg broke from the osteolysiS because I felt so fortunate to be alive and didn't want to whine about my pain. so that's my story.  if I can answer anyone's questions - feel free to email me. Jojobryan@cox.net. 

    Always take someone with you to your appts to take notes  

     

  • summer27
    summer27 Member Posts: 2
    #35
    Remi ro said:

    I have had a total femur replacement, hip and total knee replace

    I had his surgery 9 years ago.  

    total femur , hip and knee replacement

    I have had two femur replacements and this last one is coming apart.  I think my only option now is total femur , hip and knee replacment.  How was the surgery?  Can you walk normally?

    I hope to hear from you.  I am new to this site.

     

     

  • summer27
    summer27 Member Posts: 2
    #36
    Hiness58 said:

    femur,knee, hip replacement
    Hi, my sister in law is getting ready to have surgery next Friday at Duke university. She isn't one to get online and do research, but I am. I wondered how the surgeries are going since it's 2012? And how everyone is still doing? I'm sure they've made strides in the past few years. Would love to know how everyone is doing!

    I think I have to have this

    I think I have to have this surgery.  How is your sister doing?

     

     

  • leonora
    leonora Member Posts: 1
    #37
    Total hip, knee, femur replacement

    I am a 22 year ostesarcoma survivor who is in search of some information from pt's on their xperience with this procedure and what to expect long term.  I think I may need to have this surgery soon. If you could share your personal experience with me that would be awesome and greatly appreciated:)  Thank you

  • 508846mss
    508846mss Member Posts: 1
    #38
    leonora said:

    Total hip, knee, femur replacement

    I am a 22 year ostesarcoma survivor who is in search of some information from pt's on their xperience with this procedure and what to expect long term.  I think I may need to have this surgery soon. If you could share your personal experience with me that would be awesome and greatly appreciated:)  Thank you

    femur replacement

    I am 25 years post osteosarcoma and have had multiple revisions after the original limb-sparing surgery on distal femur.  5 years ago, I had a revision that included a full femur replacement.  The recovery was more difficult than I had envisioned - the hip part of the recovery left me wondering how all the older people manage with hip replacement recovery. Smile   Longterm, where I had not used a cane for some years, I use it after this surgery.  I think that may be partly on me, since I'm not a great exerciser.  I am able to walk fairly long distances and have been pleased with the outcome.  I'm a patient at Mass General; for me, it's been great.  I hope this info is helpful - everyone's experience is different, so it's important to stay open-minded.

  • scrapgirl106
    scrapgirl106 Member Posts: 2
    edited August 2016 #39
     surgeries (4 revisions) and

     surgeries (4 revisions) and have a 6th one pending. Currently the bone graft has died(?) and fractured causing the implants, screws, plate, etc to start to come loose. So now I'm on crutches and NWB for the last 2 weeks  I have a titanium knee joint and now they are giving me the option to keep the knee joint and attach it to the rest of my remaining femur (which isn't much) with a compress and screws. I'm still concerned about failure and that the bone won't knit and heal when all the screws are taken out. Additionally they need to custom make an implant to bond the titanium rod to my remaining femur. This is going to take at least 6 more weeks and I'm not happy about that plus recovery time could put me on crutches for 14-18 wks. The other option is the full femur replacement but my orthopedic said I'd have a permanent limp but it wouldn't break and it would be solid.  Can someone elaborate on this for me? Has anyone had this surgery? I'm doing a follow up call next week to discuss the options. 

  • scrapgirl106
    scrapgirl106 Member Posts: 2
    #40

    I'm 26 years cancer free (osteosarcom) and have had 5 surgeries (4 revisions) and have a 6th one pending. Currently the bone graft has died(?) and fractured causing the implants, screws, plate, etc to start to come loose. So now I'm on crutches and NWB for the last 2 weeks  I have a titanium knee joint and now they are giving me the option to keep the knee joint and attach it to the rest of my remaining femur (which isn't much) with a compress and screws. I'm still concerned about failure and that the bone won't knit and heal when all the screws are taken out. Additionally they need to custom make an implant to bond the titanium rod to my remaining femur. This is going to take at least 6 more weeks and I'm not happy about that plus recovery time could put me on crutches for 14-18 wks. The other option is the full femur replacement but my orthopedic said I'd have a permanent limp but it wouldn't break and it would be solid.  Can someone elaborate on this for me? Has anyone had this surgery? I'm doing a follow up call next week to discuss the options. 

  • Beatthis
    Beatthis Member Posts: 1
    #41
    Bone cancer on the femur

    i am new to this site but my very best friend, my soul mate sister, was just diagnosed with Spindle cell neoplasm sarcoma. She has a timer on her femur and they are going to do surgery to put a rod in her leg so her bone can heal or re-grow. I don't understand why they can't remove the leg or remove the femur and tumor and replace it with something. Does anyone know anything about this cancer? They say it's incurrable.

    thanks, 

    beatthis 

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