mamabanana Member Posts: 6
edited March 2014 in Brain Cancer #1
Just wondering how long people have been kept on rounds of timidor for brain cancer tumor..thanks.


  • nanc721
    nanc721 Member Posts: 29
    My husband started on Temodar in June, when he started his radiation. Continues on the chemo now, 5 days out of 28, and doc says that in May, we will need to consider if he should stay on Temodar, or alternate with CCNU. Tough decision, since no one seems to have any answers. At first, doc talked about keeping him on temodar for 2 years. Now says that Drs at Duke University recommend alternating.
  • jdb8432
    jdb8432 Member Posts: 2
    My neurologist has recommended 6-7 months which may be due to the high cost of it. After that I will have a MRI and re-evaluate.
  • chiligrl
    chiligrl Member Posts: 20
    jdb8432 said:

    My neurologist has recommended 6-7 months which may be due to the high cost of it. After that I will have a MRI and re-evaluate.

    I did six weeks of it...but took it EVERY night during that time.
  • jennajenjensue
    jennajenjensue Member Posts: 7
    my dad just finished his initial start with radiation and he also said that he should take it for about 6-7 months and then re-evaluate after that.
  • bradheath
    bradheath Member Posts: 4
    about 11 months ago I had a sisure the glioblastoma multiform tumor 4th grade got to me, had a brain opperation, then radeation & timidor every month now and the timidor sometimes stops working after a yr, thats why the drs. want to change it. untill then I didn't know I had anything wrong (in one split secound your whole live changes). Now I live for today and get enjoyment out of each and every day, becouse as they say - God never prommesed you tomorrow.. good luck Brad Heath
  • katydid74
    katydid74 Member Posts: 3
    A wire story recently appeared in the news regarding Temodar. A conference was held in New Orleans and our oncologist attended this conference. The news story states "Early low-dose chemotherapy appears to substantialy improve short-term survival in patients with the most aggressive and common form of brain cancer, offering the first significant advance against the disease in decades. Whether the treatment can help cure brain cancer remains to be seen, but the approach at least seems to slow the often rapid progression of the disease for some. The treatment, tested in a form of brain cancer called glioblastoma multiforme, involves the drug Temodar. Until now, the medicine has typically been used only after radiation to shrink the tumor. A major international study released yesterday (June 6) shows that giving low doses of the capsule at the very start -- for six or seven weeks during and after radiation -- doubles the chance of being alive two years later. Dr. M.J. van den Bent of the Daniel den Hoed Oncology Center in Rotterdam, the Netherlands says that this is a 'great day'. It is the first trial that has been clearly positive in brain cancer in 30 years."

    I am hoping this drug, administered in this fashion, is what it will take to prolong my husband's life. Our pharmacist was confused as to the dosage because the pamphlet clearly states to give the Temodar for 5 days in a 28 day cycle. She called and spoke to my oncologist to make sure this was the correct way to dispense.

    The article says much more, that the study was done over the past few years at 80 hospitals in Europe, Canada and Australia. From what I understand, Temodar came on the market in 1999 and was only available as a clinical trial before that. So far, fatigue has been my husband's chief complaint. No nausea medicine needed, only Ativan an hour beforehand. And takes the chemo at night.

    Hope any of this information helps. God Bless.
    K. Young