The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Perianal Crohns Disease/Cancer in Anal Canal

andig
andig CSN Member Posts: 3
edited March 2014 in Colorectal Cancer #1
I'm trying to find information on a rare anal canal cancer. My husband is 57 and has had Perianal Crohns Disease since his early 20s. Has never allowed an illeostomy to be performed. A rare (from what his doctors tell us) cancer was found in his anal canal. The "tumor" itself is actually filled with a gelatinous material which is the cancer, when debulked prior to treatment, the tumor was flat. My husband refused surgery and recently finished chemo/radiation therapy. 6 weeks with the infusion pump (5-FU) and 6 weeks radiation. Just wondering if anyone has infomation on this type of adenocarcinoma they can share. Thanks!
Like Care

Comments

  • KrisS
    KrisS CSN Member Posts: 229
    #2
    Someone a while ago gave PMPpals.org as a web site that has information on rarer gastrointestinal tumors. It seems a bit of a cumbersome web site to navigate, but on brief glance appeared to have quite a few references for rare intestinal cancers.

    You will need to know the name the pathologists have given for the tumor to be able to search for more information.

    Hope this helps,


    Kris
    Like Care
  • 2bhealed
    2bhealed CSN Member Posts: 2,068 Member
    #3
    Hi andig,

    I have no idea about the type of adenocarcinoma, but I can point you to an interesting testimony about healing Crohns from a doctor's perspective (the doc being the patient).

    www.gardenoflifeusa.com

    This doc also helped his grandmother who had cancer. I find it fascinating.

    Hope you find some answers.

    peace, emily
    Like Care

Discussion Boards