more symptoms of nhl?

binks Member Posts: 2
my husband was diagnosed with low grade nhl Jan "03", Dr. thinks he may have had it for at least 2 yrs prior. Had large node removed from right groin, still one on right side of groin, smaller pea size (about 4-6) on left side of groin, had pea size in armpits also. ct's showed maybe quarter size on kidney with few smaller nodes also. We were never really told what stage he is? I'm guessing II-III? Anyhow, he was treated with Rituxan after diagnosis. Lately, past few months he's been getting more and more headaches, and more and more severe, sick to his stomach etc., and oddly enough he has a lump in the palm of his hand? Could that too be nhl? Any ideas? Could this be late side effect of Rituxan or possibly low grade switching to mid? The doctor is really good, but my husband would like real responses from real patients that have dealt with this type of cancer. What is he to expect down the road as far as symptoms, treatments, etc. He works full-time construction, but personally I thinks it's taking it's toll on him. He's 49. Anyone have similar symptoms or experiences to share with us....please?


  • chicagolaw
    chicagolaw Member Posts: 5
    I was diagnosed with the same type of lymphoma about 2.5 years ago. My MD took a wait and see approach and to date, I've had no pharmacological treatements. My nodes grew very slowly until last fall when I notice a significant amount of growth, particulary in my neck, under my jaw and groin areas. I visited my MD in January. CT scan confirmed what I already knew. In fact, the MD asked if I was having trouble buttoning my shirt collar and suggested that I would need chemo soon.

    Instead, I decided to try a high pH protocol and made a complete change to my diet, eating only foods that are nutritionaly valluable. I started thisw regimen about six weeks ago. In these few short weeks, my nodes are now half the size they were!

    The fundamental substance taken in high pH therapy is Cesium. There is a lot of information on the web about Cesium. You can do a search for: high pH thearpy and you will find volumes of information.

    I don't know if the Cesium will cure my cancer, but based on the results to date, I am quite hopeful. I have also communicated with others who followed the same protocol as I am and, without exception, have heard only positive things. I talked to a woman in California who told me that she had nodes removed, took chemo and radiation, and tested negative for about a year. Then the lymphoma showed up again very agressively. Her MD recommended she immediatley begin a new course of chemo. She refused and opted for high pH therapy instead. She told me that after about nine months, she has now tested completly negative.

    You should also consider diet. MD's are generally completely in the dark when it comes to nutrition. A good place to start understanding cancer and nutrition is a book now in the stores: Super Foods Rx by Stephen Pratt, MD. I highly reccommend it.

    If you would care to call me about this information, feel free.

    Don Engel
  • serangels
    serangels Member Posts: 10
    hi my name is Susan. I had large b-cell lymphoma, stage 4, left lung. I had chop+rytuxan, 18 radiation treatments and part of my left lung removed. I was diagnosed April 2001 and completed treatment September 2002. I have some of the same symptoms your husband has - I still couldn't gain any weight, nausea, tired all the time, achy. They did an EGD on me to check my stomach out and said that I had a side affect from the chemo that slows the stomach down. My stomach was backing up with bile. They put me on medication and it helped. I have gained some of my weight back, but I am finding out from others on this message board some of the other symptoms I am feeling, especially tired, are the same feelings that everyone else is having.I think Rytuxan takes a pretty good toll on you. But my oncologist keeps assuring me that the success rate for someone staying in remission is greater than 5 years. May be your husbands symptoms are side affects - but I sure would ask his doctor about them - no need to suffer when you don't have to.