14 and struggling with the truth. What is it really that I have? can you help me?

brycha
brycha Member Posts: 2
edited March 2014 in Caregivers #1
Hello, my name is Brianna. I am fourteen in grade nine and for the past four years I have had multiple surgeries because of tumours all about my head. I have one large one that just won't go away on the right side of my head and several on my gums. theres also one on the middle of my forehead, and on my chest. My doctors here in toronto at the sick kids hospital for sick children have confirmed that they are not cancer but multiply like they are. I'm so overwelmed by what they tell me. They currently have practicly pushed me away by making my next oppoinment in october! They have also confirmed that I will probably make the medical books for a new illness. I don't want that. I want too know what is wrong with me. I wan to be able to go to school for the whole year and not take 2 months off for surgery and tell my friends i'm going to Nova Scotia. I hate it. And now the O.H.I.P. is trying to approve me too be sent to a hospital in the states to be rediagnosed and examined by different doctors. I feel like a lab rat! please tell me you have heard of this before because any good news too me would really help. I sometimes just wish I could go too sleep and never wake up again. My life is like an obstucle course. I wanna be every definition of 'normal'. I don't wanna be suffering with nausea, and migrane headaches because a doctor doesn't understand "me". and even now my mom thinks it may be a rare stage of "puberty" but i don't believe these will ever go away. She also wants me too have kemotherapy but I don't wan too loose my hair. my hair is soooooo long and thick. and it grows very slowly. it would take on average 6 years to grow back too this length. and atleast 3 to get back too my shoulders! please i know this is a l-o-n-g plea for help. but can you, help me? please.
Brianna

Comments

  • brycha
    brycha Member Posts: 2
    #2
    I guess 'o' replies means "no" thanx anywayz
  • ladybug626
    ladybug626 Member Posts: 25
    #3
    Dear Brianna,

    I am sorry to hear of your dreadful ordeal. I hope a new team of doctors will help. Even if it requires you to travel great distances, it will be worth it if it can help. Whatever you are experiencing, I am sure you are not the only one. It may be extremely rare, but a doctor somewhere will likely know about it. Keep researching on the internet, there are great websites like medline. Thankfully the doctors do not think it is cancer. That means there is a good chance you will not need chemotherapy. It is sometimes tough, but keeping a positive mind is extremely important. You sound like a very brave and intelligent person. Best wishes to you on your search for answers and a cure. I will keep you in my prayers.

    Take care,
    Melissa
    (26 year old daughter of Mom with uterine cancer)
  • mickeyfan3
    mickeyfan3 Member Posts: 3
    #4
    Brianna - I am so sorry that you are dealing with this. I will keep you in my prayers and hope that they find a cure, or a way to treat this and prevent any furhter growths soon. You are doing the right thing in talking about this,remember to keep your friends and family close as well. God bless.
  • mickeyfan3
    mickeyfan3 Member Posts: 3
    #5
    Brianna - I am so sorry that you are dealing with this. I will keep you in my prayers and hope that they find a cure, or a way to treat this and prevent any furhter growths soon. You are doing the right thing in talking about this,remember to keep your friends and family close as well. God bless.

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