Inflammatory Breast Cancer

tutu

*waves atcha...anyone out there dealing with IBC?*

jeancmici

Hi!

IBC is not as common as the other breast cancers but I know that it is always treated with chemo before any surgery. When I noticed my lump which seemed to be not there and there showed quickly as a good size, I immediately thought of IBC and read a lot on it. I did not have it but the prognosis is much better than it used to be.

Go to www.google.com and type in inflammatory breast cancer and see what info you get-there are online support groups for just this one cancer.

Good Luck,
Jean

ryley

Hi Tutu:

My doctor did mention I had IBC along with infiltrating ductal carcinoma. I was a stage II when the biopsy was done. At the biopsy the doctor performing it said "it doesn't look like BC to me, did you bump your breast? It looks likes it was injured." I have always had fibrocystic breasts and a lot of breast pain associated with it, so I knew what was "normal" pain and what was not. This was not. It took 10 days to get the results of the biopsy back and for my dr. to call me with the results. By then my surgeon was on vacation for another week. By the time I saw the surgeon it was 3 weeks from biopsy and I went from a stage II to a stage III. 3cm to 9cm with nipple retraction, orange peel skin - all that.

I had no choices about my treatment options. 4 rounds of chemo (AT - Adriamycin (sp?) and Taxotere) before surgery. Then a mastectomy with no reconstruction for at least a year so nothing blocks radiation. 4 more rounds of chemo with the last 2 pure Taxotere (a larger dosage, I had already met my lifetime toxicity level with the Adriamycin (sp?). Then 33 doses of radiation.

I was diagnosed in Oct., had my last chemo in Apr. and am now 9 rad treatments from being done with rad. The last 5 "boost" is to treat my scar to avoid skin mets.

Maybe this is more info than you wanted, but just know there are more of us out there. IBC is just not diagnosed as often as it should be sometimes, I think.

Good luck and let me know how you're doing.

Ryley

cinder

Hi
I don't have IBC but in my surfing found a web site that might be helpful to you. Go to Ibc research.org
Good luck to you
Prayers,
Cinder