Acute Promyelocytic Leukemia

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  • Genet
    Genet Member Posts: 2
    #22
    Hey there. I am 22years old and will be 23 in May. I was diagnosed with APL in Aug 02. As of today I am in a complete remission. My doctor had me in remission pretty much after my first round of chemo. Its a very tough road that we have to travel, but you will make it. You will want to give up many times because the poking and prodding isnt much fun. Try not to concentrate on what is happening now, but what you will be doing when your better. I am here for you and will try to answer any questions. More that anything you have someone just to talk to. You will need that. I was too proud or just stubborn to really acknowledge that I had cancer. I didnt want anyone to treat me like I was going to break. This is the first time I have really chatted to anyone about my situation. Please keep me updated with your treatment. Good luck!!!!
  • Unknown
    Unknown
    #23
    This comment has been removed by the Moderator
  • liha0808
    liha0808 Member Posts: 9
    #24
    Elaine505 said:

    Hi: My husband just received his diagnosis two days ago. We'll see the hematologist/oncologist in two days. I'm just really scared right now. He's getting so weak and his gums are bleeding a lot. This came on so fast. Just 10 days ago he was pretty much strong and healthy. The speed of this thing was incredible. Sorry, I guess I just needed to vent someplace. What has been your expirience been? Thanks for listening.

    When i was diagnosed I was
    When i was diagnosed I was admitted to a hospital immediately and treatments started in 2 days.
  • JudyAnnetta
    JudyAnnetta Member Posts: 2
    #25
    blondie37 said:

    My name is Dina, I was just recently diagnosed with APML in December of 03. I spent the first month in the hospital as well. I was in remission after that, but did 3 more treatments to insure that it does not come back. I am now being told by my doctor that he wants me to take a chemo pill everyday and a shot once a week for 1 1/2 years to bring down the percentage from 30% to 6% that this will not come back. I hate doing this, but was told that this is a new protocal for this leukemia.

    HI, I have apl and was
    HI, I have apl and was diagnosed in August 2010. I have had all the IV chemo and am now on 3 chemo pills for 10 more months. How are you doing?
  • JudyAnnetta
    JudyAnnetta Member Posts: 2
    #26
    Elaine505 said:

    Hi: My husband just received his diagnosis two days ago. We'll see the hematologist/oncologist in two days. I'm just really scared right now. He's getting so weak and his gums are bleeding a lot. This came on so fast. Just 10 days ago he was pretty much strong and healthy. The speed of this thing was incredible. Sorry, I guess I just needed to vent someplace. What has been your expirience been? Thanks for listening.

    apl
    I was diagnosed in August 2010 with no symptons. I had just gone to the dr for annual blood work up. I spent 24 hard days in the hospital with chemo, then 10 weeks of outpatient arsenic, then 2 more out patient treatements of chemo and am now on chemo pills for 10 more months. It's hard but keep your faith and smile and laugh along the way.
  • HollieY
    HollieY Member Posts: 2
    #27
    APL - teenager
    Hi. i was diagnosed with APL in october 2010.
    i heard that it was very rare, so im dying to talk to people about the Disease & experiences
  • kavi2906
    kavi2906 Member Posts: 12
    #28
    JudyAnnetta said:

    apl
    I was diagnosed in August 2010 with no symptons. I had just gone to the dr for annual blood work up. I spent 24 hard days in the hospital with chemo, then 10 weeks of outpatient arsenic, then 2 more out patient treatements of chemo and am now on chemo pills for 10 more months. It's hard but keep your faith and smile and laugh along the way.

    APML
    Hi Judy,

    I was also diagnoised with APML M3 in May 2011 with no symptoms. Normal Blood checkup and then chemo started . 3 rounds of chemo over a period of 3 months and now maintenance is gonna start.

    How r u doing now. Can u please tell me how is life during the treatment and after treatment.
    Please contact @ kavita_passi@yahoomail.co.in

    Regards,
    Kavita
  • kavi2906
    kavi2906 Member Posts: 12
    #29
    liha0808 said:

    When i was diagnosed I was
    When i was diagnosed I was admitted to a hospital immediately and treatments started in 2 days.

    APL M3
    Hi Liha,

    How r u doing now.

    I guess ur maintenance phase has started. Hey do u still put on the mask as my dr has asked me to wear the face mask for 2 more years and i would b on ATRA for 15 days and another medicine for 2 years.

    I generally have headache and ear blockage and head throbing .

    In my first n second phase of chemo i didnt loose much hair but this third phase of chemo i am loosing a lot of hair and on the verge of becoming bald.
  • kavi2906
    kavi2906 Member Posts: 12
    #30
    JudyAnnetta said:

    HI, I have apl and was
    HI, I have apl and was diagnosed in August 2010. I have had all the IV chemo and am now on 3 chemo pills for 10 more months. How are you doing?

    Hi Judy, I are u doing now.
    Hi Judy, I are u doing now. we can connect as u r also one amongst the recently diagnoised cases.Pls message me
  • sg1968
    sg1968 Member Posts: 2
    #31
    9xgSu4
    My son is 25-years-old and was diagnosed on October 12, 2011 with Acute Myloid Leukemia. Yesterday the doctors told him they now think he has APML 3. Until this diagnosis, my son had no symptoms. They said he is responding well to the ATRA. My nerves are shot, I have no clue what to expect. I hear so many things. Can someone please help me understand this?
  • sg1968
    sg1968 Member Posts: 2
    #32
    APML 3
    My son is 25-years-old and was diagnosed on October 12, 2011 with Acute Myloid Leukemia. Yesterday the doctors told him they now think he has APML 3. Until this diagnosis, my son had no symptoms. They said he is responding well to the ATRA. My nerves are shot, I have no clue what to expect. I hear so many things. Can someone please help me understand this?
  • mdavis0107
    mdavis0107 Member Posts: 1
    #33
    AML

    My mother, who is 71, was just recently diagnosed with Acute myloid lukemia.  She has had blood problems all her life, and now it has just gotten worse.  She starts chemo therapy on Monday.   Is there anyone out there about my mom's age that has survived?  I need hope that she will be in remission.  They give her a 30% chance of survival.I still think she should fight.  71 is not as old as everyone seems to think, and I feel like doctors are ruling out stem cell transplant because of her age.

     

    Please, any thoughts would be very much appreciated

     

    Michelle

  • Susan P
    Susan P Member Posts: 103
    #34
    ritamack said:

    HELLO, MY HUSBAND IS DX WITH APL . HE SUFFERED A STROKE DUE TO THE APL. HE IS IN END PHASE OF INDUCTION WITH ATRA, DONNA/CYTARABINE. HE IS IN DAY 20. HE WILL HAVE BONE MARROW BX ON DAY 30. HE HAS PROBLEMS FROM THE STROKE, LET ALONE APL. UR DAUGHTERS ARE YOUUNG TEENS , 3 OF THEM . CAN U LET ME KNOW WHAT THE FIRST YEAR IS LIKE
    WE HAVE A 2X WHAMMIE WITH THE APL AND THE STROKE.
    HOPE TO HEAR FROM U.

    super stroke support site

    HiRRita I'm a visitor from the Ovarian site I am now in Remisssion & on "wait & see" potocol

     

    I'm intereasted in PML as my 45 yr old fave nephew is dealing with it he still in hosp "induction phase ?- since it is rare, I'm trying to learn what I can & see what his future may be like if he takes all his treatment

     

    RE STROKE-- before I had to learn everything trhere is to know about Ovarian Cancer - I got to spend 12 yrs since 2002 learning everything about stroke  with the help of a fantahttp://www.strokenetwork.org/stic online support group

     

    www.dtrokenetwork.org  it works very much like this board - yiou can go in & read all you want - but have to  register to post wqe callk ourselves stroke survivors - not victims

     

     

    whiy go on choose forums sub forums are caregiver & survivor both woulf bbe of inbtereast to you I tytpe like a one- handed strokie  contact me thru our csn messenger with stroke detailsa - when tytpe - clot or bleed hiks deficits which side id weak I may be abgle to answersa few ofd the billion questions you have

    Susan P from Alberta Canada TX & WY

  • DDG
    DDG Member Posts: 1
    #35
    Hi, may dad was recently

    Hi, may dad was recently diagnosed wih APL, he is 64 and was admitted to the hospital after a trip to the ER 12 days ago. He has been getting AFTRA and chemo for about 8 days. However, he keeps having to get TRanfusions almost daily as his platles keep dropping to 11-23. I am very nervouse, they keep saying it is very treatable but how do you know the stage he is at. I am not getting straight answers, is there ever a moment when it's to late to treat. Please help I am very concerned.

  • Edward
    Edward Member Posts: 2
    #36
    APLQ

    My husband was dx with APL in Dec 2014 spent Dec in hospital on steroid, antibiotics,arsnic,ATRA.  He has been on a regimen for the last 8 mo of 4 weeks on iv arsnic and 4 weeks off and at the same time he was on ATRA, 2 weeks on and two weeks off.  He is 67 ended treatment Aug 31.  He really is having a hard time getting some strength back.  He has bone marrow test on Sept 22.  Also heart tests as this regimen is very hard on your heart and it has caused some valve problems.   What are some of your recovery stories.  Thanks so much!

  • Edward
    Edward Member Posts: 2
    #37
    DDG said:

    Hi, may dad was recently

    Hi, may dad was recently diagnosed wih APL, he is 64 and was admitted to the hospital after a trip to the ER 12 days ago. He has been getting AFTRA and chemo for about 8 days. However, he keeps having to get TRanfusions almost daily as his platles keep dropping to 11-23. I am very nervouse, they keep saying it is very treatable but how do you know the stage he is at. I am not getting straight answers, is there ever a moment when it's to late to treat. Please help I am very concerned.

    your experience

    I am sure you know more by now, how is your dad doing.

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