BRCA1 gene carriers with female children
Comments
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I am 54 and was diagnosed with BC in November. I tested positive for BRCA2 gene. My sister and brother were tested after I was tested and they are both positive. My daughter is 26 and pregnant with her second child. I have several young adult nieces also. Most of them plan on increasing screening but not on being tested until they are ready to consider hysterectomies, etc. They are concerned that finding out they are positive when they aren't ready to do anything other than increase screening will just make them anxious. So, we pray for them and my 2 year old granddaughter and the young women are getting mamograms every six months, vaginal sonograms, etc. I don't know of any genetic engineering studies. My personal thought is that you should enjoy your young daughters and help them have a healthy life, not gain too much weight, exercise, etc. and wait for testing. But, you have to do what's right for you. I had a bilateral mastectomy because of the testing and will have the hysterectomy after the chemo is done. My thoughts are with you and your young daughters.0
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Hi, I am very interested in genetic testing. I am the only one in my family thus far with breast cancer at age 35. Would like to know though for my daughter, sister, and mother. I plan to ask for it at next visit, but expect my Dr. to not be interested in it. HOw did you go about getting it done? Did insurance pick it up for you? I've heard conflicting info. on how insurance handles it. hi to all the ladies, I've been hear , listening or reading and praying for everyone!
Getupandgo, Carla0 -
Hi Carla. Thanks for your reply. In answer to your question about genetic testing, there is one genetics lab called MYRIAD Genetic Laboratories in Utah where testing is done. They have their own website (I'm not sure of the call letters), or they recommend logging onto www.bracanalysis.com or calling 1-800-469-7423 for information.unknown said:Hi, I am very interested in genetic testing. I am the only one in my family thus far with breast cancer at age 35. Would like to know though for my daughter, sister, and mother. I plan to ask for it at next visit, but expect my Dr. to not be interested in it. HOw did you go about getting it done? Did insurance pick it up for you? I've heard conflicting info. on how insurance handles it. hi to all the ladies, I've been hear , listening or reading and praying for everyone!
Getupandgo, Carla
BRCA testing can be done through any center that has a genetic counselor. Your doctor can refer to the nearest genetic counselor. It may take several months to complete the process because he/she will want to meet with you, explain your chances of having the gene based on your personal and family history, make sure you truly want the information, and then he/she will have to find out if insurance will cover the cost. This depends on your insurance and, whether or not the insurance company thinks, with your history, you need testing. Regardless of insurance, however, you may elect to pay for the test yourself which can cost up to 2,000 dollars. The counselor or even the lab can tell you how to get it done.0
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