Ovarian Cancer Stage 4 survivors

13

Comments

  • Hissy_Fitz
    Hissy_Fitz Member Posts: 1,834
    #42
    carmi604 said:

    saying good bye to chemos
    Dear Hissy, Thanks for your insightful messages. I was diagnosed with OC three years ago, had chemo and surgery and further chemos, the last of them making me really sick. Having recoverred from the chemo I now feel I don't want any more. It takes weeks and months, feeling miserable long after, at least thie was my reaction to Doxil. Now I feel fully OK although the growths are still there, probably growing, but my doctor says my venerable age is an asset because the cells don't divide so rapidly... Anyway, I am one of whom you said they had enough of treatments, and just live with the beast. I never had pains. So maybe I'll be on the lucky side of the stats.

    Dear Carmi....
    We all have
    Dear Carmi....

    We all have to make this decision for ourselves. There is no right or wrong time to call it quits, as far as treatment, and I know that chemo is a b**ch, but not every drug leaves you feeling like a limp dishrag.

    Please don't rule out more treatment without at least trying it first. Avastin, they tell me, is much easier on the body. And there are so many others.

    If you try it and it still kicks your butt, you can always quit after one or two rounds.

    Stay in touch, whatever you decide....OK?

    Carlene
  • AVD
    AVD Member Posts: 1
    #43
    laurenrae said:

    Hi Sharon
    I would love to chat with you.

    I look at you and you remind me so much of my mother! She was diagnosed stage 4 in 2009 but it's almost like aside from the cancer, there is nothing wrong with her!

    I am just really interested in your experience becuase you and my mother's situation is very similar.

    I hope you are open to that - thank you for sharing your story :-)

    Lauren

    Hello All,
    I am just joining
    Hello All,

    I am just joining this group and first of all THANK YOU to all of you who have shown the courage to share their information in hope to help other. That by itself is an admirable quality and I truly appreciate all of your inputs.
    I am here because my 72 year old mother has been diagnosed with stage 4 OVC. She has had 2 chemo’s and is due for the third in a few days.
    Like some of you said, she is fine but for the cancer. The week of cancer is a little tough on her as she is tiered and sleepy and sometimes nausea hits her.

    Needless to say she has lost her hair but is taking that really well. She is in India getting treated at one of the best hospitals. So that is good.
    When I first heard of it (A month and half back when she was diagnosed), I thought the worst and rushed to be with her. Stayed with her first 2 chemo’s and got back last week. I thought I was going to loose her within 1-2 months and it terrified me. Now when I hear the magic number is 10 years makes me real happy. I want to relish the years I have with her. I consider even 5 years a bonus. I have been out of work for a while and while that has been very difficult, I thought one day if god gave me one wish, what would I ask for? Work or my mom's health and I choose the latter.
    I think he heard me and I am very grateful for that.
    Growing up, I did not appreciate all my mom did for us. Now I know there are so many things I want to tell her and do for her. I have been given this chance and I intend to make things work.
    All the differences that we as siblings have had and the pain it must have caused her over the last few years. All of that from my side is taking a positive turn and I feel I am able to contribute positively to the family. I am binding the family which is very important. This must give my mother peace of mind which I hear is very important for recovery.

    So question to all of you, anybody in the age group of my mother 70+, been through OVC to tell a great story?
    I am looking for any information that will calm all of our minds.


    Thank you,
    AVD
  • rhondanna
    rhondanna Member Posts: 8
    #44
    Pusteblume said:

    Stage IV
    I was DX May 2010 with ovarian cancer and had 1st.recurrene December 2010.
    I am currently ip Chemotherapy.

    stage IV
    I was diagnosed in 2006 and while I have never had a remission, I have had a very good life in the intervening years and my son is now 11 instead of 5 1/2 when I was first diagnosed. There's plenty of life left beyond five years - enjoy yourself as much as possible and love everybody.
  • katymorgan
    katymorgan Member Posts: 4
    #45
    Survivor OC Stage IV
    Diagnosed 12/2010; ovarian cancer was present in both ovaries, a tumor near uterus and fluid in the lung lining. Debulcking was initiated but cancer was present in too many areas. I had 6 rounds of chemo which brought my CA125 from 2711 to below 10. My CT Scan shows remission; my onchologist highly suggested 12, one per month, cycles of maintenance chemo. I'll have my 12th cycle next month. My quality of life has been very good. I thank my Creator every day for my great life, try to be a good example in dealing with trials and look forward to future. You just don't know what tomorrow will bring. I am optimistic that I will have many more years..they may not be problem free. But, I will try very hard to have proper nutrition so my immunity can work at it's peak. Katy
  • mollasas
    mollasas Member Posts: 4
    #46
    jenniferasturtevant said:

    I have survived Stage 4 Ovarian Cancer. I have been cancer free since 1996. Would love to hear from you. Please email me at okiegirlforever@sbcglobal.net

    ov ca
    I am a newly diagnosed and still try to obtain pre conditioned medical insurance so i can afford to start treatment, this has been the very nerve consuming for me, just want to hear the realities of beating this situation
  • mollasas
    mollasas Member Posts: 4
    #47
    djinco said:

    Optimal De-bulking Surgery
    I am extremely grateful to my surgeon, Dr. Dirk Pikaart, at Penrose Cancer Center in Colorado Springs, CO. I had my complete hysterectomy and omentectomy on February 1, 2010. I am responding well to all treatments received thus far and am currently on consolidation Taxol chemotherapy. I was diagnosed with ovarian stage IIIc and uterine stage II.

    I concur with all you said about optimal debulking surgery. A surgeon's skills seems of paramount necessity for one's long term well-being.

    Also, my faith in Jesus sustains me daily. I pray everyday for continued healing and trust in the Lord that I have many years to share with my husband of thirty plus years. Positive attitude and not fear is what makes life enjoyable. I am grateful for every hour of every day.

    Staying focus on your faith is great
    Not to insult anyone, the Bible helps your faith of healing and guides you thru but you need to regonized the power of prayer and the belief of Jesus, and what you have been given to understand and go forward with life... God Bless
  • mollasas
    mollasas Member Posts: 4
    #48
    msfanciful said:

    I'm a stage iv ovarian
    I'm a stage iv ovarian cancer surivor of almost 4 years
    this coming February 2011.

    Although not without it's challenges, although that is to be expected.

    I've been in and out of just as many chemo treatments and am currently in remission again.

    I expect with stage iv, chemo will just always be a way of life (off and on) for me and that's okay because I have still managed to have a very fulfilling, active and unincumbered lifestyle.

    So I count my blessings and that's a wonderful thing.

    It's just how you choose to perceive your condition as well.


    Sharon

    God is good, and he likes to
    God is good, and he likes to be the one to make the decision, pray and read the good book that instruction is given, God Bless
  • Husband_of_Gina
    Husband_of_Gina Member Posts: 2
    #49
    katymorgan said:

    Survivor OC Stage IV
    Diagnosed 12/2010; ovarian cancer was present in both ovaries, a tumor near uterus and fluid in the lung lining. Debulcking was initiated but cancer was present in too many areas. I had 6 rounds of chemo which brought my CA125 from 2711 to below 10. My CT Scan shows remission; my onchologist highly suggested 12, one per month, cycles of maintenance chemo. I'll have my 12th cycle next month. My quality of life has been very good. I thank my Creator every day for my great life, try to be a good example in dealing with trials and look forward to future. You just don't know what tomorrow will bring. I am optimistic that I will have many more years..they may not be problem free. But, I will try very hard to have proper nutrition so my immunity can work at it's peak. Katy

    Stage 4 or Stage IV Ovarian Cancer
    Katy,
    Thanks for posting. My wife was diagnosed with stage 4 ovarian cancer in January of 2012. She had a pleural effusion that was drained and a small malignant tumor near the base of her neck. She has had 5 carboplatin/taxol infusions so far and a debulking may be in the future. How has your body handled your treatment? This last dose has been much more difficult for my wife to get over than the previous ones. Best wishes to you and yours.
  • Antpopoola
    Antpopoola Member Posts: 10
    #50
    katymorgan said:

    Survivor OC Stage IV
    Diagnosed 12/2010; ovarian cancer was present in both ovaries, a tumor near uterus and fluid in the lung lining. Debulcking was initiated but cancer was present in too many areas. I had 6 rounds of chemo which brought my CA125 from 2711 to below 10. My CT Scan shows remission; my onchologist highly suggested 12, one per month, cycles of maintenance chemo. I'll have my 12th cycle next month. My quality of life has been very good. I thank my Creator every day for my great life, try to be a good example in dealing with trials and look forward to future. You just don't know what tomorrow will bring. I am optimistic that I will have many more years..they may not be problem free. But, I will try very hard to have proper nutrition so my immunity can work at it's peak. Katy

    Survivor Stage IV OVARIAN CANCER
    KATY,
    I really appreciate your positive attitude. In September of 2011 I started having discomfort in my stomach. I felt bloated and felt like I had to have a bowel movememt. I visited my doctor several times and was treated for IBS. On January 2012 I felt like I wanted to have a bowel movement but when I tried I realized I was bleeding profusely through the rectum. I went to the hospital, a colonoscopy was done the following day and a few days later I found out I had ovarian cancer that metastasies to the rectum. My tumor was 8 cm. (Dr. said the size of a baby's head) I did 3 chemos and tumor shrunk drastically. I had surgery in June. I got total debulking and also part of the rectum was taken. I had an illeostomy for 2 mths. Unfortunately, I was in and out of the hospital for various infections so my 2nd round of chemo didn't start until November. Well, after my 6th rounds of chemo a CAT Scan was taken just for me to find out I have a reoccurence. I was supposed to start my New round of chemo last Friday but couldn't because my platelets count was low. My illeostomy was reversed on June 22. I am still having accidents with bowel and bladder. Have to wear depends. But believe me, I am happy to be alive.

    When I received my diagnosis both times. I NEVER thought about dying I just knew I had to do everything (nutrition, prayers, support) in my power to beat this cancer. I have maintained this positive attitude. My friends, family and even Doctors are amazed at how well I have done. They always tell me that I am inspiration to them and how wonderful I looked. Thankfully, I have overwhelming support from family and friends. Each day that I am alive is triple blessings. I look forward to many more wonderful years! WE CAN DO THIS TOGETHER! MAINTAINING A POSITIVE ATTITUDE IS 90% OF THE FIGHT. WE ARE WINNERS!
  • katymorgan
    katymorgan Member Posts: 4
    #51
    Husband_of_Gina said:

    Stage 4 or Stage IV Ovarian Cancer
    Katy,
    Thanks for posting. My wife was diagnosed with stage 4 ovarian cancer in January of 2012. She had a pleural effusion that was drained and a small malignant tumor near the base of her neck. She has had 5 carboplatin/taxol infusions so far and a debulking may be in the future. How has your body handled your treatment? This last dose has been much more difficult for my wife to get over than the previous ones. Best wishes to you and yours.

    Update

    Hi again!  I enjoyed six months of no treatment and hair grew back!  But had a recurrence of ovarian cancer near the fallopian tube and abdominal wall which are small.  So, I started back on carboplatin and getting Gemzar eight days later.  I tolerated the chemo well so far.  I think my regimen will be three weeks of chemo, one week off. 

     I'm in good spirits and enjoying my life. What has helped me very much is preparing for and attending weekly meetings at the Kingdom Hall of Jehovah's Witnesses because their educational program is free, conveniently located in most areas world wide and tremendous!  Most of us have perplexing questions like if God is love why does he allow suffering? What happens to us when we die?  Is there any hope for our dead loved ones?  How can caregivers cope with an ailing family member?  How can I deal with stress and anxiety of illness?  Are natural disasters punishment from God?  I have found satisfying and reliable answers in the Bible.  You can also view many articles and publications on these subjects online for free at jw.org which includes downloadable music and reading the Bible online.  I have to say that this plays a major role in my positive attitude.  Best wishes to you all!     

  • SHANNON1231
    SHANNON1231 Member Posts: 53
    #52
    katymorgan said:

    Update

    Hi again!  I enjoyed six months of no treatment and hair grew back!  But had a recurrence of ovarian cancer near the fallopian tube and abdominal wall which are small.  So, I started back on carboplatin and getting Gemzar eight days later.  I tolerated the chemo well so far.  I think my regimen will be three weeks of chemo, one week off. 

     I'm in good spirits and enjoying my life. What has helped me very much is preparing for and attending weekly meetings at the Kingdom Hall of Jehovah's Witnesses because their educational program is free, conveniently located in most areas world wide and tremendous!  Most of us have perplexing questions like if God is love why does he allow suffering? What happens to us when we die?  Is there any hope for our dead loved ones?  How can caregivers cope with an ailing family member?  How can I deal with stress and anxiety of illness?  Are natural disasters punishment from God?  I have found satisfying and reliable answers in the Bible.  You can also view many articles and publications on these subjects online for free at jw.org which includes downloadable music and reading the Bible online.  I have to say that this plays a major role in my positive attitude.  Best wishes to you all!     

    Stage 4

    I don't know if i'm considered a survivor just yet, I was diagnosed on February 29th 2012. The cancer was found in a lymph node in my underarm, and peppered ( what my onc called it) in my diaghram. I'm currently in a clinical trial that included a lower dose of taxol once a month for a year. I think i'm already having a re-ocurrance though. Only had 4 treatments from the trial and my ca125 is up to 44 and I have been having some discomfort in my diaphram. Cat scan showed thickening in that area and now I am scheduled for a biopsy next week. If its possitive I will be off the trial. My dr said I have alot of options though so that's reassuring, I guess. I'm scared it will move into my lungs. I read about the bucket list post, and I honestly don't have things I want to do. I just want to be here long enough for my boys to grow up. They are only 9 and 5, and it kills me to have to imagine dying and how they are gonna feel and how they will have to live without me. I just wish to at least be here until they are men and I know they can take care of themselves. CANCER SUCKS.

  • Shelly C
    Shelly C Member Posts: 1
    #53
    Ovarian Cancer

    I was diagnosed with cancer in April 2011.  At first they thought it was Leismyoscarcoma (uterine cancer), but after a total hysterectomy (my uterus being normal), they changed my diagnosis to Ovarian Cancer, stage 3 because it had spread outside my ovaries into my abdomen.

    My doctors did everything they could think of to try and get me to do chemo.  My surgery was scheduled for July and they wanted 12 weeks done before surgery.  They did everything but tell me I would die if I didn't do the chemo.  I had no health insurance and did not qualify for state help (too much income).  My husband was totally against the chemo - why put more poison in your body.  He said he wasn't going to watch me die.

    I have an aunt who had just died of sickle cell cancer.  My mom had been trying to help her and found a website worldwithoutcancer.org.uk that talks about Laetrile, or Vitamin B17.  There is a 42 page explanation of how this works and how it is basically banned in the US because pharmaceutical companies cannot reproduce a vitamin and make money from it.  It gives a regimen of vitamins to take while fighting cancer and also a maintenance plan for after the cancer is gone.

    I decided on this course of treatment instead of the chemo.  My doctors were not happy with me at all.  One doctor even dropped me as a patient.  Anyway, after 3 weeks on the vitamins, and a week before surgery, my doctors ordered another CT Scan.  They said they wanted to know what they would be dealing with before the surgery since I refused chemo.  They expected my cancer to be spread throughout my body, in at least 4 more places.  Well, I surprised them all.  Instead of the cancer spreading, my original tumor shrank by 10%!!

    There were 5 doctors/surgeons in the operating room and after my surgery, one of them came to me, almost in a whisper and told me they found DEAD cancer cells!!  She was very excited about this so I gave her the information about the website, B17, etc.

    I still go back every 3 months for pap smear and inhibin B tests to see if the cancer has returned.  It's been almost 2 years and so far so good.  No indication at all that the cancer has come back.  And this is totally without chemo or radiation of any kind - vitamins only.  I still take 1000 mg of B17 everyday just to keep the cancer away.

    If this helps anyone, I would love to hear from you.  It changed my life.

    Be strong, there is hope.

    Shelly

    mn_catlover@msn.com (my email address)

  • My_Mom_India
    My_Mom_India Member Posts: 2
    #54
    Shelly C said:

    Ovarian Cancer

    I was diagnosed with cancer in April 2011.  At first they thought it was Leismyoscarcoma (uterine cancer), but after a total hysterectomy (my uterus being normal), they changed my diagnosis to Ovarian Cancer, stage 3 because it had spread outside my ovaries into my abdomen.

    My doctors did everything they could think of to try and get me to do chemo.  My surgery was scheduled for July and they wanted 12 weeks done before surgery.  They did everything but tell me I would die if I didn't do the chemo.  I had no health insurance and did not qualify for state help (too much income).  My husband was totally against the chemo - why put more poison in your body.  He said he wasn't going to watch me die.

    I have an aunt who had just died of sickle cell cancer.  My mom had been trying to help her and found a website worldwithoutcancer.org.uk that talks about Laetrile, or Vitamin B17.  There is a 42 page explanation of how this works and how it is basically banned in the US because pharmaceutical companies cannot reproduce a vitamin and make money from it.  It gives a regimen of vitamins to take while fighting cancer and also a maintenance plan for after the cancer is gone.

    I decided on this course of treatment instead of the chemo.  My doctors were not happy with me at all.  One doctor even dropped me as a patient.  Anyway, after 3 weeks on the vitamins, and a week before surgery, my doctors ordered another CT Scan.  They said they wanted to know what they would be dealing with before the surgery since I refused chemo.  They expected my cancer to be spread throughout my body, in at least 4 more places.  Well, I surprised them all.  Instead of the cancer spreading, my original tumor shrank by 10%!!

    There were 5 doctors/surgeons in the operating room and after my surgery, one of them came to me, almost in a whisper and told me they found DEAD cancer cells!!  She was very excited about this so I gave her the information about the website, B17, etc.

    I still go back every 3 months for pap smear and inhibin B tests to see if the cancer has returned.  It's been almost 2 years and so far so good.  No indication at all that the cancer has come back.  And this is totally without chemo or radiation of any kind - vitamins only.  I still take 1000 mg of B17 everyday just to keep the cancer away.

    If this helps anyone, I would love to hear from you.  It changed my life.

    Be strong, there is hope.

    Shelly

    mn_catlover@msn.com (my email address)

    Ovarian Cancer Stage 4

    Dear All,

     

    My mother was diagnosed with ovary cancer in 2007 , she had a surgery and chemotheraphy of 6 cycles . And it reoccured again in 2011 , she took 6 cycle of chemo after that. But then just in 3 months the cyst reoccured in the pelvis , she then took 6 more cycle of chemo and now just after one month the CA125 count came to 251. The latest CT scan report says  1.SIGNIFICANT ASCITES  2.CYST IN THE LEFT PELVIS... ORIGIN COULD NOT BE CLEARLY MADE OUT  3.METASTASES AT THE SURFACE OF THE LIVER/ RIGHT DOME OF DIAPHRAGM,  4.OMENTAL AND PERITONEAL METASTASES

    She is suffering severe pain in the abdomin , back and the chest, the right shoulder. There is accumalation of water in the abdomin. Please tell me how can my mother get out of this. The doctors here say this is in the last stage and nothing much can be done. Please help,..

    Regards.

     

  • My_Mom_India
    My_Mom_India Member Posts: 2
    #55
    Ovarian Cancer Stage 4

    Dear All,

     

    My mother was diagnosed with ovary cancer in 2007 , she had a surgery and chemotheraphy of 6 cycles . And it reoccured again in 2011 , she took 6 cycle of chemo after that. But then just in 3 months the cyst reoccured in the pelvis , she then took 6 more cycle of chemo and now just after one month the CA125 count came to 251. The latest CT scan report says  1.SIGNIFICANT ASCITES  2.CYST IN THE LEFT PELVIS... ORIGIN COULD NOT BE CLEARLY MADE OUT  3.METASTASES AT THE SURFACE OF THE LIVER/ RIGHT DOME OF DIAPHRAGM,  4.OMENTAL AND PERITONEAL METASTASES

    She is suffering severe pain in the abdomin , back and the chest, the right shoulder. There is accumalation of water in the abdomin. Please tell me how can my mother get out of this. The doctors here say this is in the last stage and nothing much can be done. Please help,.. Mail: ixdpuneeth@gmail.com

    Regards.

  • NYRDH
    NYRDH Member Posts: 1
    #56
    Shelly C said:

    Ovarian Cancer

    I was diagnosed with cancer in April 2011.  At first they thought it was Leismyoscarcoma (uterine cancer), but after a total hysterectomy (my uterus being normal), they changed my diagnosis to Ovarian Cancer, stage 3 because it had spread outside my ovaries into my abdomen.

    My doctors did everything they could think of to try and get me to do chemo.  My surgery was scheduled for July and they wanted 12 weeks done before surgery.  They did everything but tell me I would die if I didn't do the chemo.  I had no health insurance and did not qualify for state help (too much income).  My husband was totally against the chemo - why put more poison in your body.  He said he wasn't going to watch me die.

    I have an aunt who had just died of sickle cell cancer.  My mom had been trying to help her and found a website worldwithoutcancer.org.uk that talks about Laetrile, or Vitamin B17.  There is a 42 page explanation of how this works and how it is basically banned in the US because pharmaceutical companies cannot reproduce a vitamin and make money from it.  It gives a regimen of vitamins to take while fighting cancer and also a maintenance plan for after the cancer is gone.

    I decided on this course of treatment instead of the chemo.  My doctors were not happy with me at all.  One doctor even dropped me as a patient.  Anyway, after 3 weeks on the vitamins, and a week before surgery, my doctors ordered another CT Scan.  They said they wanted to know what they would be dealing with before the surgery since I refused chemo.  They expected my cancer to be spread throughout my body, in at least 4 more places.  Well, I surprised them all.  Instead of the cancer spreading, my original tumor shrank by 10%!!

    There were 5 doctors/surgeons in the operating room and after my surgery, one of them came to me, almost in a whisper and told me they found DEAD cancer cells!!  She was very excited about this so I gave her the information about the website, B17, etc.

    I still go back every 3 months for pap smear and inhibin B tests to see if the cancer has returned.  It's been almost 2 years and so far so good.  No indication at all that the cancer has come back.  And this is totally without chemo or radiation of any kind - vitamins only.  I still take 1000 mg of B17 everyday just to keep the cancer away.

    If this helps anyone, I would love to hear from you.  It changed my life.

    Be strong, there is hope.

    Shelly

    mn_catlover@msn.com (my email address)

    Ovarian Cancer

    Hi Shelly,

    I was diagnosed with Ovarian Cancer Stage IV mid Jan. 2013.  I am a young, just turned 50, healthy woman with no family history of cancer. So this came as a shock to me. I am now accepting and coming to turns with it.  I already had Laparscopy surgery and 2 cylces of chemo and believe I will be having one more before I go into surgery.  Apparently, I am taking it well and I thank God for that.

    From everything I have read, there is no long term cure, just prolong the quality of life.  It always returns at one point or another.  I know there are many miracle cures out there but yours caught my attention.  I did go into the UK website which is very informative.  I am interested in purchasing the B17.  I live in NY and I read they may not ship to US.  If you don't mind, where do you live and where did you purchased the B17?

    If you prefer, you can email me directly at:

    nyrdh@earthlink.net

  • ashi02
    ashi02 Member Posts: 1
    #57
    ovarian cancer 4th stage with two surgery

    Hi All,

    My mother-in-law has been diagonised for ovarian cancer from past 4months and was undergoing chemo in INDIA and completed 5 cycles successfully but all of a sudden she had gastric trouble and when diagonised with CT scan cancer has be spread all over during chemo itself. She was left with one last chemo but now doctors suggested to 6 more cycles, due to surgery she has become very tired and now unable to recover for next chemo.

    She has two differnt cancer cells carcinoma and sarcoma which are very aggressive and spreading rapidly. She is unable to take chemo now without which they cannot be controlled. All of us are very much worried and unable to see her going through all this.

     

    Please advise if there is any treatment which will increase her life span. By seeing her condition she might survive for another 2months or so. God plese show us some path:(. Any help is very much appreciated

     

    Thank You

    ashi

  • Alexandra
    Alexandra Member Posts: 1,308
    #58
    ashi02 said:

    ovarian cancer 4th stage with two surgery

    Hi All,

    My mother-in-law has been diagonised for ovarian cancer from past 4months and was undergoing chemo in INDIA and completed 5 cycles successfully but all of a sudden she had gastric trouble and when diagonised with CT scan cancer has be spread all over during chemo itself. She was left with one last chemo but now doctors suggested to 6 more cycles, due to surgery she has become very tired and now unable to recover for next chemo.

    She has two differnt cancer cells carcinoma and sarcoma which are very aggressive and spreading rapidly. She is unable to take chemo now without which they cannot be controlled. All of us are very much worried and unable to see her going through all this.

     

    Please advise if there is any treatment which will increase her life span. By seeing her condition she might survive for another 2months or so. God plese show us some path:(. Any help is very much appreciated

     

    Thank You

    ashi

    Dear Ashi

    I am very sorry about your mother-in-law having trouble with chemo. I think what she has is called malignant mixed Müllerian tumor, also known as malignant mixed mesodermal tumor, MMMT and carcinosarcoma. It is rare and more agressive than a more common ovarian adenocarcinoma but treatment is the same (surgery and taxol/carboplatin chemo). I have read a few survivor stories on CSN ovarian cancer, uterine cancer and also on rare cancers boards. If you query "MMMT" you will find them. I pasted some links below.

    Good luck to your family and I sincerely hope that your mother-in-law feels better and beats that disease.

    http://en.wikipedia.org/wiki/Mixed_M%C3%BCllerian_tumor

    http://www.asco.org/ASCOv2/Meetings/Abstracts?&vmview=abst_detail_view&confID=55&abstractID=36402

    http://mrwhatis.com/mmmt-ovarian-cancer.html

    http://onlinelibrary.wiley.com/doi/10.1002/cncr.20256/full

    www.journalmc.org/index.php/JMC/article/viewFile/1/42

     

  • mariej
    mariej Member Posts: 1
    #59
    NYRDH said:

    Ovarian Cancer

    Hi Shelly,

    I was diagnosed with Ovarian Cancer Stage IV mid Jan. 2013.  I am a young, just turned 50, healthy woman with no family history of cancer. So this came as a shock to me. I am now accepting and coming to turns with it.  I already had Laparscopy surgery and 2 cylces of chemo and believe I will be having one more before I go into surgery.  Apparently, I am taking it well and I thank God for that.

    From everything I have read, there is no long term cure, just prolong the quality of life.  It always returns at one point or another.  I know there are many miracle cures out there but yours caught my attention.  I did go into the UK website which is very informative.  I am interested in purchasing the B17.  I live in NY and I read they may not ship to US.  If you don't mind, where do you live and where did you purchased the B17?

    If you prefer, you can email me directly at:

    nyrdh@earthlink.net

    B17 (Laetrile)

    Before you spend anything on B17, here's an article on it:

    http://en.wikipedia.org/wiki/Amygdalin

  • alan salih
    alan salih Member Posts: 1
    #60
    jenniferasturtevant said:

    I have survived Stage 4 Ovarian Cancer. I have been cancer free since 1996. Would love to hear from you. Please email me at okiegirlforever@sbcglobal.net

    Question

    Have a nice time

     

    I'm Hawzheen Ramazan from Iraq

     

    my loved aunt unfortunately diagnosed with ovarian cancer 2011. 

     

    last week  by PET scan, it was appeared that she has recurrence of her disease, and she should receive treatment again

     

    I'm anxious, I searched in internet and found your Email address.

     

    I'm happy when I hear someone survived with ovarian cancer, I want to congratulate you.

     

    Please I like to hear from you what did you do? did you used any special treatment? did you have a dietary regime that helped you?

     

    (Madam excuse me, in recent time because of my anxiety and lots of negative thinking, I told my self that there is no survival from ovarian cancer, those people that they said they are survivor, is just a hope that some website give it to patients, just in order to make a hope for those patients, but it's not real! am I wrong? , I hope strongly that I'm wrong!, please if you can confirm to me that really there is in fact survivors of ovarian cancer Please).

     

    Thank you for your help

     

    best regards

     

    Hawzheen Ramazan
  • Wai Fund
    Wai Fund Member Posts: 1
    #61
    New Resource see Ovarian Cancer SURVIVORS

    hi there, 

    my mother is an ovarian cancer survivor and because of our experience we put together a website that we hope you will visit and share. it's a work in progress--so it's starting sparsely and will grow slowly but we hope to provide hope and inspiration. pls share so we can share our strength with those fighting this horrible disease. eventually we hope to do fundraising so we can fund research and find early detection, better treatment and ultimately a cure for ovarian cancer. 

    you can SEE SURVIVOR VIDEOS--pls share so we can reach anyone who needs hope.

     

    www.WAIFUND.COM

     **sorry for the duplicates--accidently hit it twice. but pls share--we just want to pay it forward. 

    thank you. 

    ev

Discussion Boards