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medullary breast cancer

loulou13
loulou13 CSN Member Posts: 5
edited March 2014 in Breast Cancer #1
I was told i had medullary breast canceron July 1 Opted for double mas. on July 11th Started cmf chemo Had my second treatment. Having a hard time with chemo any suggestions. No posititv nodes. Need help with chemo./Tammy
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  • shirlann
    shirlann CSN Member Posts: 229
    #2
    Whoopeee! I finally found another medullary. Hi buddy!!! Why did you have chemo with no positive nodes? Anyway, I am on another site with a lot of gals who are on chemo and having a terrible time. The chemo itself does not seem too bad but a lot of infections seem to go with it. Anyway, I am so glad to find you, we are only 6% of the breast cancer people. A select few. Hugs, Shirlann
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  • jeancmici
    jeancmici CSN Member Posts: 665 *
    #3
    shirlann said:

    Whoopeee! I finally found another medullary. Hi buddy!!! Why did you have chemo with no positive nodes? Anyway, I am on another site with a lot of gals who are on chemo and having a terrible time. The chemo itself does not seem too bad but a lot of infections seem to go with it. Anyway, I am so glad to find you, we are only 6% of the breast cancer people. A select few. Hugs, Shirlann

    Hi Shirlann,

    Seems I read that you 6% people have a better prognosis too.

    BTW, do you have any more jokes - Emailed rhe dumb blonde one to someone with mets and depressed - she got a good LOL from it.

    Jean
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  • loulou13
    loulou13 CSN Member Posts: 5
    #4
    shirlann said:

    Whoopeee! I finally found another medullary. Hi buddy!!! Why did you have chemo with no positive nodes? Anyway, I am on another site with a lot of gals who are on chemo and having a terrible time. The chemo itself does not seem too bad but a lot of infections seem to go with it. Anyway, I am so glad to find you, we are only 6% of the breast cancer people. A select few. Hugs, Shirlann

    Hey> I guess the reason for chemo is because of my age 39 and a really strong family history. I had my second chemo Thur. What do you know about medullary breast cancer? Are you going through chem? Tammy
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  • shirlann
    shirlann CSN Member Posts: 229
    #5
    loulou13 said:

    Hey> I guess the reason for chemo is because of my age 39 and a really strong family history. I had my second chemo Thur. What do you know about medullary breast cancer? Are you going through chem? Tammy

    No, mine was only 4mm & 3mm so I just had a lumpectomy and rads. I am just short of 4 years out and feeling just fine. Hope you have good luck too. Hugs, Shirlann
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  • shirlann
    shirlann CSN Member Posts: 229
    #6
    shirlann said:

    No, mine was only 4mm & 3mm so I just had a lumpectomy and rads. I am just short of 4 years out and feeling just fine. Hope you have good luck too. Hugs, Shirlann

    Hi, dear, well, not too much. It is clled medullary because the tissue resembles "Medulla" or brain tissue. Otherwise, it is really just BC. Medullary's tend to be agressive on the scale of nuclei activity, but when caught, they are slightly less likely to recur or metastasize. Not much different, really, just that I felt so lonely. All the others have Lobular or the other one? Getting goofy, well, I am glad I found you anyway. Hope you do well, I am sure you will. Gentle hugs, Shirlann
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  • banker
    banker CSN Member Posts: 317 Member
    #7
    HI, I am on CMF at the present time, going OK, ups and downs, my second time around, had CAF in 1998. If you want to e-mail me you can reach me here or at
    charmin@froggernet.com,
    glad to help you and give you some tips.
    Hugs Emmi
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