The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Oligodendroglioma

jlkelley
jlkelley CSN Member Posts: 1
edited March 2014 in Childhood Cancers #1
Hello to anyone else also looking for the right support network to land in...I waver between feeling devastated and petrified to feeling guilty since there are so very many other much much worse off than I. I was unlucky enough to have a rare brain tumor, but lucky enough for it to be benign. Two years later is has returned and I am just now in the waiting period before another surgery and to find out if it has remained benign or turned malignant. Regardless, I will go through radiation after the surgery as part of my treatment. It is killing me just waiting. I can hardly breathe. I am trying to be brave and learn from others. I am mostly petrified at wondering about a life-expectancy. I cannot bear to leave my young son and fantastic husband. That is why I am looking in this category "adult survivors"...for someone who can give me hope. Are you out there? My name is Lisa.
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