The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Merkel Cell Carcinoma

justwhatiwanted
justwhatiwanted CSN Member Posts: 12
edited March 2014 in Skin Cancer #1
Anyone else out there with this??? Mine was found in a lymph node in the neck with an unknown primary. I am 26 and will be starting treatment soon (radiation followed by chemo). It would be nice to hear that I'm not the only person out there with this... :)

Heather
Like Care

Comments

  • here4you
    here4you CSN Member Posts: 2
    #2
    hay I have it too so dont feel bad aabout it ok I have cell carcinomaso if you ever want to talk about iti am here
    Like Care
  • pearljam58
    pearljam58 CSN Member Posts: 2
    #3
    Heather,
    I just ran across your message. I am a 2 time cancer survivor.(prostate&Merkel Cell)I have been in remission for 31/2 years from stage 2 merkel cell carcinoma.There aren't many of us out there with merkel cell.Mine was a tumor on my left buttock, an unusual place to find it.Hang in there. I hope that by now you are in remission and doing great as I am. I just left my oncologist today. I am on a 6 month checkup schedule and a one year ct scan schedule.
    Good luck and good health,
    Marshall
    Like Care
  • luther
    luther CSN Member Posts: 5
    #4
    pearljam58 said:

    Heather,
    I just ran across your message. I am a 2 time cancer survivor.(prostate&Merkel Cell)I have been in remission for 31/2 years from stage 2 merkel cell carcinoma.There aren't many of us out there with merkel cell.Mine was a tumor on my left buttock, an unusual place to find it.Hang in there. I hope that by now you are in remission and doing great as I am. I just left my oncologist today. I am on a 6 month checkup schedule and a one year ct scan schedule.
    Good luck and good health,
    Marshall

    Hi,
    My name is Luther. It has been a long time since I have come to this network. I had merkel cell and on Oct. 8 I will celebrate my eighth year in remission. My granddaughter, Meg, is helping me in communicating with all of you. To communicate with me my granddaughter's e-mail is prissygurl10@aol.com. I want you all to know that no matter how bad you feel, physically or emotionally, God will always be there. I had no hope until God put his healing hand on my shoulder and gave me a wife, Peggy, and a family that supprted me through all of this.

    I hope to communicate with you soon,
    Luther
    Like Care

Discussion Boards