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Small Cell Lung Cancer Discussion Group

mbsurvivor
mbsurvivor CSN Member Posts: 18
edited March 2014 in Lung Cancer #1
Looking for others that are survivors of sclc and those dx'ed with sclc to start a discussion group. I am a survivor since 08/14/00 and wish to help others through their battles with this disease.

Richard
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Comments

  • michaelcie
    michaelcie CSN Member Posts: 133
    #2
    Hi Richard, I have scls and went thru three types of chemo (carbo-platnum, vp-16, and taxol, I also received 6 and one half weeks of radiation five times a week. I am in remission now and just had a ct-scan today to see if I am still in remission and am praying. They wanted me to get prophylatic brain irradiation but I am not sure if I want to go thru this because of the side effects: this might not be a wise decision but I am not sure. Well if there are any questions that I can answer for you just let me know and maybe we can share notes on our battle . Mike
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  • mbsurvivor
    mbsurvivor CSN Member Posts: 18
    #3
    michaelcie said:

    Hi Richard, I have scls and went thru three types of chemo (carbo-platnum, vp-16, and taxol, I also received 6 and one half weeks of radiation five times a week. I am in remission now and just had a ct-scan today to see if I am still in remission and am praying. They wanted me to get prophylatic brain irradiation but I am not sure if I want to go thru this because of the side effects: this might not be a wise decision but I am not sure. Well if there are any questions that I can answer for you just let me know and maybe we can share notes on our battle . Mike

    Hello Mike,

    I had my sclc removed on 08/14/00 and finished chemo with Cisplatin and CPT-11 Camptosar 03/01. Have been feeling great lately. I would like to establish a group of us for discussions about small cell. My email address for friends with cancer concerns is friends@joys.net.

    Richard
    Myrtle Beach, SC
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  • trishk
    trishk CSN Member Posts: 3
    #4
    Hi. I'm new to this discussion board. I was diagnosed with SCLC in Feb. 02. I have just finished 6 rounds of chemo. CT scans showed good results with 2 original tumors, but there appears to be a met to the spine. Had an MRI done Wed. and have a Dr. appt. Tues. to get results. I would love to participate in discussion with other SCLC people and share our experience, strength and hope.

    Thanks,
    Trish
    "Expect a miracle."
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  • mbsurvivor
    mbsurvivor CSN Member Posts: 18
    #5
    trishk said:

    Hi. I'm new to this discussion board. I was diagnosed with SCLC in Feb. 02. I have just finished 6 rounds of chemo. CT scans showed good results with 2 original tumors, but there appears to be a met to the spine. Had an MRI done Wed. and have a Dr. appt. Tues. to get results. I would love to participate in discussion with other SCLC people and share our experience, strength and hope.

    Thanks,
    Trish
    "Expect a miracle."

    Hi Trish I am a small cell lung cancer survivor from 08/14/00. I have a web site located at http://www.cancer-survivors.info My email address is located there also. We need others to join our chat room.
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  • delligatti
    delligatti CSN Member Posts: 21
    #6
    Richard, It looks like I made it to the site, I think!
    Ann & Joe
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