Leukemia survior making a documentary

marmar
marmar Member Posts: 2
edited January 2023 in Childhood Cancers #1
Hey Everyone, I am a 20 year old survivor of Leukemia. I am a media studies and sociology major at the Claremont Colleges in Califonia. I am currently working on a documentary about the experience of cancer. I would love to hear peoples stories to include in my film. I am also open to talking to anyone, off the record. Hope to hear from you, and thank you.

Comments

  • imstillhere
    imstillhere Member Posts: 1
    Hello, I am a 36 year old survivor of Leukemia (26 years in remission). When diagnosed at 9, cancer was a whispered word and the odds of surviving it were pretty slim. BUT, I had a great support group of my family, an amazing doctor, and a frame of mind that I wasn't going to let this conquer me. That mindset has shaped my world (for better and for worse) and I think that I wouldn't be the person that I am today without having to experience this disease. If you'd like to talk, I'd love to hear from you!
  • sunkist
    sunkist Member Posts: 2
    I have already been in a documentary about cancer an dleukemia and I'd love to be inyours if you need any more volunteers. My storie is basically on my website if youwant to read it. There are some details that I left off, email me if you you'd like my help. Oh, I alo live in California....about 1 1/2 hours north of Santa Barbara.
  • Loras
    Loras Member Posts: 1
    Hi, I'm a 26 year survior of ALL Leukemia. I would be glad to help you out if possible. I live in Virginia. Contact me at [email protected] if you would like
  • JaWnM
    JaWnM Member Posts: 6
    Im a 27 year old Leukimia (ALL) survivor from San Diego, CA. 17 years in remission. I went through 4 years of Chemo and right in the middle of my treatment my Doc had medical burnout and left back to her native country. Lovely huh! Fortunately for me and a few other Childrens Hospital here in SD took over our care and got me to where I am today. Nice and Healthy. Let me know if you would like some input or anything.
    John
  • payoola
    payoola Member Posts: 2
    Hey marmar - I'm a 14 year survivor, was diagnosed at 17yrs and am now 32. I was treated in the adult system; makes getting follow up a bit of a problem where I am. I'm excited to hear that a doc is being made by a survivor - right now I'm working slowly on a Master's degree, and fighting the bloody system. Also working slowly on learning disabilities within a new and innovative way that is helping with my 'chemo brain'. The doctors around here still try to tell me it doesn't exist (whatever ...). I'd love to share my tale of endurance and success ... best to you in your endeavour!
  • Hessa318
    Hessa318 Member Posts: 1
    Hi

    i have all leukemia ,Iam 9 years old...I'm on maintanance now can u tell me what is your advise after treatment...should I change my diet?

  • Emeraldsketch
    Emeraldsketch Member Posts: 3
    Would love to help!

    Hi, my name is Annie and I'd love to help but my case is a little unique. See I was dagnosed at 2 months and was adopted at 2 so I don't have a lot of info from the actual time I had ALL. But I can give insight into what it's like post treatment and my experiences growing up as a cancer survivor And of my amazing Doctor that basically was my dad for a year and a half. If you are interested in my story message me any time. 

  • Alt83
    Alt83 Member Posts: 2 Member

    I really wish I would’ve come across this group years ago!

  • alliatkins
    alliatkins Member Posts: 1 *

    hi! i'd love to help spread awareness and share my story. i'm a senior at UT right now and was diagnosed with AML when i was 13. i had a pretty rough treatment process with a lot of complications like being put in a coma for 10 days during my 2 week ICU stay. after i finally made it to remission, i had to start high school still basically bald and it was definitely interesting (mostly isolating) experience. i remember just feeling so alone since i was the only teenager in my oncology ward and i'd love to do something to make the next AML teen feel less misunderstood.