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neurapathy is a side effect of some chemos

imagemkr
imagemkr CSN Member Posts: 34
edited March 2014 in Lung Cancer #1
thought I would write what I found out, since no one knows anything about it, and it is common and quite crippling. Go figure, they don't know anything about it but it is common? That peg must not fit in their hole. Okay, you can ask your docter to refer you to a pain specialist, or I just do an over the counter thing,every 6 hours, and put my feet up above my heart and the swelling goes down. It is some kind of toxic nerve damage from cisplatin, it all depends on how much they put in your iv bag. You can talk to the american cancer society and they have the imformation. sometimes it goes away some times it does not ever. hope this helps someone
Tee
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  • towanda
    towanda CSN Member Posts: 19
    #2
    Hey I'm taking cisplatin and I haven't heard anything about this. What the hell? What should I do?
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  • imagemkr
    imagemkr CSN Member Posts: 34
    #3
    towanda said:

    Hey I'm taking cisplatin and I haven't heard anything about this. What the hell? What should I do?

    Dear Towanda:
    I did not mean to alarm you. please call 1-800-227-2345. neurapathy is nerve damage, and you may not experience it, I am so sorry. What you are doing is the best defence against small cell, and I truely belive if we can keep cancer at bay for just a little while longer, they will have a cure. Love,
    Tee
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