The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Lymphedema

bethb
bethb CSN Member Posts: 2
edited March 2014 in Breast Cancer #1
I am experiencing severe lymphedema after my mastectomy one year ago. I have had massage therapy and am now using a lymphedema pump. It is not helping. Does anyone have any other suggestions or remedies?

Comments

  • debw
    debw CSN Member Posts: 99 *
    That's sad to hear. I'm keeping mine under control with pressure sleeve and glove. Have you tried watching your salt? I keep mine kind of low. My swells up too if I'm tired or use the arm for lugging heavy packages. I would thing that extended massage therapy would help. How many did you have? Debw
  • This comment has been removed by the Moderator
  • cthip
    cthip CSN Member Posts: 7
    read the book Lymphedema by jeannie But & Gwen White, P.T. and also attend a support group for lymphedema. www.lymphnet.org (support groups) Good Luck, it has helped me alot.
  • pbofmn
    pbofmn CSN Member Posts: 1
    Hey i hear ya about lymphedema i have it also right from the start. I have been just exercising my arm and messaging it and that seem to be the best for me i did get fited with a sleve but dont like it and i dont think it works. I have also been using a message therapist but that gets expensive.