Wilms' Tumor

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  • jwilltx0
    jwilltx0 Member Posts: 1
    #22
    boosmom said:

    HEllo. MY son is 6 and we found out he had wilms tumor on dec 15/06 and had surgery dec 20/06 to remove his right kidney. We are now on the fourth chemo treatment. Please write back i have no support groups and i keep searching the net and finding good and bad things. i would really like to hear from you and would like to know how your son is doing. Thank you.

    Hi, just wanted you to know that I had Wilm's tumor in 1961 at age 6. They removed my right kidney. I am now 46 and doing well. I am a competitive runner and cyclist. My life has been great and I have NO ill effects from my cancer. Radiation and chemo were not much fun, I missed a lot of first grade. I guess that didn't hurt me though. I am now a college professor. Let me stress again that my life has been great and cancer is a distant memory for me. I pray it will be that way for your son as well.
  • father-to-4
    father-to-4 Member Posts: 2
    #23
    kbmomanddad said:

    Stacy - we are brand new to CSN today. We're parents of a 3 yr old girl who was diagnosed with bilateral Wilms Tumor in March. She's undergone 9 chemo treatments (10th scheduled this week), and just had a 2nd CT Scan to evaluate for surgery. The first scan showed really good results, but the doctors wanted more chemo before proceeding with the surgery. Like you, we've been overwhelmed by the whole experience, and have been looking to connect with others who are going through or have gone through this - especially since bilateral WT is so uncommon. We hope you and your son and family are all doing well. Pls let us know how things are. Thanks.

    kb's mom and dad

    My youngest child, Magdalena was diagnosed with bilateral wilms at the beginning of 2007. We have had 4, 3 week rounds of chemo, 3 CT's 2 Ultra Sounds...next week we go into surgery to remove one of her kidneys while the surgeon also opens the other kidney to "resect" the tumorous masses on the other kidney. she was 13 months old when she was diagnosed. and this has been a scary time for us. I have been keeping a journal online...but would GREATLY appreciate hearing from you as we hope all is well with your daughter especially considering that we are in a similar spot as you were about a year ago. Here is the journal I have been keeping...
    www.caringbridge.org/visit/magdalena

    It would be great to hear from you and any others who could help.

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