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corrine

Hi, my name is Corrine. My son who is 5 years old, was diagnosed with Lymphoblastic Lymphoma (NHL), on Sept. 6, 2000. He is in his second Phase of chemotherapy. If anyone has anything to share, I would welcome your input. Thanks.

tntg

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Hi sorry thats its almost 10 years laters to the day, but I wanted to let you know that your beautiful son has touched my heart in ways only you could know. Thank you. My son's cancer is a different form of (NHL) than your son-he has Primary Central Nervous System Lymphoma and he is 10 years old. I just wanted to let you know that we are always with you and your son. Once again, thanks back to both of you.

Jeff esslinger

PRIMARY CENTRAL NERVOUS SYSTEM LYMPHOMA

HI

 I just joined today so sorry this is 6 years late. I  didnt want to intrude on your life but felt maybe I should reach out 

First off I hope your son is doing well these days .

  I was 29 in 1993 living in sacramento when I was diagnosed with PCNS  which you know is very rare. I was just a kid myself  when I got sick  and seeing your son at age 10 having to go through this I couldnt even imagine ,so I had to say hi 

I fitst got treated  at Stanford  hospital where my doctors gave me 4 months to live with traditional treatment , but they  had just got a letter from the National institutes of Health  asking to refer patients to them if they had PCNS

  THE NIH in Beshesda Maryland had just came out with a pilot study that I  eventually got accepted to. Because of that study and its success , the protocal  was released to be used throughout the US. 

24 years later Im still here doing great  , no lapses in remission  living a very normal life thankfully.

I truly hope your son is doing well and wanted to convey to him while he should appreciate every day ,expect many more years.

     jeff esslinger