Myelodysplastic Syndrome preleukemia

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  • Zeph317
    Zeph317 Member Posts: 3
    #22
    Thanks for the Company
    Hello Everyone,

    Thank you for your entries. I was diagnosed with MDS 6 months ago. I am 51 years old and have rarely been sick a day in my life. Since then I have been hospitalized around seven times with neutropenic fevers. It's taken me 6 months to finally accept that I have some type of illness, I guess the hospital stays were a clue. Anyway, I wanted to thank you. I don't feel so alone. I plan to log on again. I'm still battling with letting go of my denial.
  • Butterflys_Bridge
    Butterflys_Bridge Member Posts: 3
    #23
    cathyking said:

    Hi Nancy. My name is Cathy King and I am also a survivor of MDS. 7 1/2 years post-transplant now. It's rare to find another woman so young to have had this disease. If I can help in any way, even by listening, please don't hesitate to ask. I am now 36. I was 28 when I had the transplant. I still struggle with the most annoying things, but we are alive! I'd love to hear from you. Where are you from? Take care. Cathy

    Hi Cathy. I am new to this
    Hi Cathy. I am new to this site today and looking for posts MDS and AML related. I am a 51 year old female who was diagnosed with high risk MDS in Jan-10. Had allo bone marrow transplant in July-10 and did very well through the transplant. Never really returned to my normal self but happy in my new norm. Just last week (after bone marrow biopsy) found out I have AML. Totally devasted by this news as I was doing so well. Now I have to decide what treatment route to go ... 7+3 or vidaza. It is so encouraging to hear other stories on this site and I hope that you are still doing ok. If anyone else reads my message I would so appreciate any encouragement, advice or just to hear about you story. May God bless us all and give us the strength to keep on keeping on!

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