The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Healed enough to start researching.....

cindyboatner
cindyboatner CSN Member Posts: 1
edited March 2014 in Colorectal Cancer #1
I was a caregiver for my sister who died of colon cancer three years ago. I have healed to the extent that I need to know exactly what kind of cancer she had and why it attacked her. I recall her oncologist saying it was a very rare form of colon cancer called A-Rolla. Does anyone know about this cancer or where I can start my research?

Comments

  • scubadiver_bob
    scubadiver_bob CSN Member Posts: 3
    If she had surgery for the cancer, the pathologist at the hospital she was treated at would be a good place to start. When I had my tumor removed, the pathologist was the one who determined the type of tumor I had and determined how much it had spreed to the lymph nodes. Then the oncologist determined what chemo I received and for how long from the reports he got from the pathologist.

    Hope this helps you out.