anyone else with Mets?

jane38

nancys said:

Hi Annie, Intruding....NEVER....Welcome aboard our survivor's journey. We all keep in touch and share information just as you have done tonight. We share our happy stories, our sad stories and our fears and our hopes and best of all, "we pray for one another." You will find a wonderful mix of people here at CSN. I have formed very close relationships with several that I met here. You heard from Jane and Murphy, two of my favorite people, already and others will respond to you as well. I agree that when it comes to meds, that we must be very careful. I am just starting my chemo, go for my second "cocktail" this Friday. My hair is starting to come loose when I brush. but I am determined to not let that hair loss bother me. We'll see how I feel when I see it all gone??? Stay with us and post again, we all need one another. Your new friend, Nancy

Remember, Nancy and anyone else about to become bald, losing your hair really is not bad at all. No more shampooing, no conditioning, no blow drying, no worrying about a "bad hair day". Just slap on that wig, a scarf and or a hat and you're set for the day. Personally, I enjoyed being bald. Rarely wore my wig, only when my bald head would embarrass the person I was with, namely Kathy, my oldest daughter. I found out I have a very pretty-shaped head. no dents or bulges. I wore it proudly. I wanted people to know I was in the fight for my life and wanted them to think about it and maybe do something for themselves for early detection. The only hair I really missed was my eyebrows and eyelashes. No more shaving either. That's a plus. Jane

sueholm

jane38 said:

Remember, Nancy and anyone else about to become bald, losing your hair really is not bad at all. No more shampooing, no conditioning, no blow drying, no worrying about a "bad hair day". Just slap on that wig, a scarf and or a hat and you're set for the day. Personally, I enjoyed being bald. Rarely wore my wig, only when my bald head would embarrass the person I was with, namely Kathy, my oldest daughter. I found out I have a very pretty-shaped head. no dents or bulges. I wore it proudly. I wanted people to know I was in the fight for my life and wanted them to think about it and maybe do something for themselves for early detection. The only hair I really missed was my eyebrows and eyelashes. No more shaving either. That's a plus. Jane

wow, didn't think about losing my eyelashes!. thanks for warning me! chemo starts in next week or two. susan

tiger

nancys said:

Hi Annie, Intruding....NEVER....Welcome aboard our survivor's journey. We all keep in touch and share information just as you have done tonight. We share our happy stories, our sad stories and our fears and our hopes and best of all, "we pray for one another." You will find a wonderful mix of people here at CSN. I have formed very close relationships with several that I met here. You heard from Jane and Murphy, two of my favorite people, already and others will respond to you as well. I agree that when it comes to meds, that we must be very careful. I am just starting my chemo, go for my second "cocktail" this Friday. My hair is starting to come loose when I brush. but I am determined to not let that hair loss bother me. We'll see how I feel when I see it all gone??? Stay with us and post again, we all need one another. Your new friend, Nancy

Hi Nancy, Tiger here, when I started to loose my hair, instead of letting it get to me and seeing myself look ill with only a few strands of hair sticking out of my head, I went and had it shaved off, Everyone comments on what a nice shaped head I have, no dents or bumps, no more shampooing and drying and fussing, i have a wig but i have not worn it yet, I wear a ball cap or a bandana, and not one of those ugly turban things either, i bought material and made a nice colorful bandana, and in summer it is nice and cool. I wear my pink ribbon pin and let people think a little when they see me, and maybe my confidence in myself will help another cancer patient who sees me, because in the past year i have met so many people with cancer who you would never have suspected, and alot of them complain that their wigs feel like dead cats sitting on their heads, so maybe being strong for ourselves will inturn be strenght for someone else.
Stay strong and happy and keep the faith.
Love Tiger xoxox

jane38

sueholm said:

wow, didn't think about losing my eyelashes!. thanks for warning me! chemo starts in next week or two. susan

I didn't even think about the eyebrows and eyelashes as being "hair". It was a real shocker when I did find out. Learned how to draw on my eyebrows which I never had to do before. I had thick, nicely arched black eyebrows. I never did learn how to put on false lashes. Can't have everything. Jane

Unknown

nancys said:

Hi Annie, Intruding....NEVER....Welcome aboard our survivor's journey. We all keep in touch and share information just as you have done tonight. We share our happy stories, our sad stories and our fears and our hopes and best of all, "we pray for one another." You will find a wonderful mix of people here at CSN. I have formed very close relationships with several that I met here. You heard from Jane and Murphy, two of my favorite people, already and others will respond to you as well. I agree that when it comes to meds, that we must be very careful. I am just starting my chemo, go for my second "cocktail" this Friday. My hair is starting to come loose when I brush. but I am determined to not let that hair loss bother me. We'll see how I feel when I see it all gone??? Stay with us and post again, we all need one another. Your new friend, Nancy

This comment has been removed by the Moderator

pamtriggs

unknown said:

This comment has been removed by the Moderator

Dear Alane - The liver responds very quickly to the body & can show these high results. My oncologist said that it can mean either a lot of damage or a lot of healing going on. Unless other factors back it up he just watches them. Also pain killers containing paracetmol can do a lot of damage to the liver in large doses (more than 8 per day). Sounds like a case of a poorly communicating onco to me. If mine goes away he leaves contact details for a locum & even phoned from vacation in Wales to the locum here in New Zealand (where I live) when I had a bad reaction to a drug being used. You have to be a bit pushy with these docs to get the information you need. Remember it's your body & your life so get pushy. Hang on in there. I am holding your hand in the bad moments & the good. Pam from New Zealand.

Unknown

pamtriggs said:

Dear Alane - The liver responds very quickly to the body & can show these high results. My oncologist said that it can mean either a lot of damage or a lot of healing going on. Unless other factors back it up he just watches them. Also pain killers containing paracetmol can do a lot of damage to the liver in large doses (more than 8 per day). Sounds like a case of a poorly communicating onco to me. If mine goes away he leaves contact details for a locum & even phoned from vacation in Wales to the locum here in New Zealand (where I live) when I had a bad reaction to a drug being used. You have to be a bit pushy with these docs to get the information you need. Remember it's your body & your life so get pushy. Hang on in there. I am holding your hand in the bad moments & the good. Pam from New Zealand.

This comment has been removed by the Moderator

lalonde13

maggie said:

Hi Susaan! I'm Maggie, I was diagnosed with breast cancer in Aug.1999 with lymph nodes positive. Chemo does effect everyone different,but they have so many nausea drugs now that really works. I usually would get sick on my 3rd day after chemo. I hope that everything turns out fine for you, I will remember you in my prayers. Take care and stay in touch , Maggie

I had 4 treatments of adriamycin and cy(something) and also 4 treatments of taxotere. The first 4 treatments went fairly well, no nausea at all thanks to Zofran, but the taxotere was hell. I almost gave up after the 1st treatment but managed to finish all 4 and thanked God for the strength to do so.

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