NH Malt Lymphoma of the Stomach

2

Comments

  • jeno48
    jeno48 Member Posts: 2

    fibroleo
    I still have the Malt Lymphoma / stomach after the H-pylori was treated with antibiotic...H-pylor gone...Lymphoma remains...not sure where I go next....I do know that I go for another biopsy and back to see the oncology hemolotogist for 3rd time.. Would like to know how you are doing...
    indydorsey

    Malt Lymphoma
    Hello Fibroleo,

    I was diagnosed with MALT Lymphoma 3 years ago. My symptoms were stomach burning, nausea, bloating, and a mind numbing fatigue. It was really the fatigue that tipped me off but everyone is different. After several tests came in negative I got a second opinion at Dartmouth Hospital in Lebanon NH. They found the lymphoma. I understand that there are 2 kinds of stomach related MALT, one is caused by H-pylori and the treatment is antibiotics. The second is not. I was treated with a drug called Rituxin. The lymphoma was diagnosed with a scope...blood tests...cat & pet scans. I had a 6 week treatment plan followed by endoscopy exams every 3 months. The tumor was completely gone by 9 months and I have been cancer free for 3 years. Please get a second opinion if you are not happy with your treatment. If I hadn't insisted that something was wrong I never would have received treatment. Good Luck!
  • jeno48
    jeno48 Member Posts: 2
    Malt Lymphoma
    I was diagnosed 3 years ago with MALT lymphoma. If you still have questions please feel free to email me.
  • indydorsey13
    indydorsey13 Member Posts: 38
    jeno48 said:

    Malt Lymphoma
    I was diagnosed 3 years ago with MALT lymphoma. If you still have questions please feel free to email me.

    Malt Lymphoma ( stomach )
    I don't have an email address for you...Is your Malt Lymphoma Stomach ? Anyone with experience with Stomach Malt Lymphoma can email me at: indydorsey13@att.net
  • indydorsey13
    indydorsey13 Member Posts: 38
    jeno48 said:

    Malt Lymphoma
    I was diagnosed 3 years ago with MALT lymphoma. If you still have questions please feel free to email me.

    Gastric Malt Lymphoma
    jeno,

    How are you doing with your lymphoma ???? I was diagnosed Sept. 22, 2009....I will have my 4th biopsy & ultrasound this Wed.... My biggest complaint is that I am TIRED to the place that I feel SICK... My husband had his lung REMOVED 2 wks ago from LUNG CANCER diagnosed same week as this my stomach lymphoma problem !!! He had 2 mo. of chemo. & rad. before the pneumonectomy...( all of this could add to TIRED ). I had the 2500 mg antibiotic for 14 days in Oct.....got rid of he H-pylori, but still have the cancer ( lymphoma ) cells so the biopsy shows !! Back to 3rd trip to hemotologist Mar. 9.... Do you think I have a chance of escaping treatment ? Nothing like a good miracle...just goes away !!! indydorsey13@att.net
  • indydorsey13
    indydorsey13 Member Posts: 38
    jeno48 said:

    Malt Lymphoma
    I was diagnosed 3 years ago with MALT lymphoma. If you still have questions please feel free to email me.

    Gastric Malt Lymphoma
    jeno,

    How are you doing with your lymphoma ???? I was diagnosed Sept. 22, 2009....I will have my 4th biopsy & ultrasound this Wed.... My biggest complaint is that I am TIRED to the place that I feel SICK... My husband had his lung REMOVED 2 wks ago from LUNG CANCER diagnosed same week as this my stomach lymphoma problem !!! He had 2 mo. of chemo. & rad. before the pneumonectomy...( all of this could add to TIRED ). I had the 2500 mg antibiotic for 14 days in Oct.....got rid of he H-pylori, but still have the cancer ( lymphoma ) cells so the biopsy shows !! Back to 3rd trip to hemotologist Mar. 9.... Do you think I have a chance of escaping treatment ? Nothing like a good miracle...just goes away !!! indydorsey13@att.net
  • indydorsey13
    indydorsey13 Member Posts: 38
    jeno48 said:

    Malt Lymphoma
    I was diagnosed 3 years ago with MALT lymphoma. If you still have questions please feel free to email me.

    Gastric Malt Lymphoma
    jeno,

    How are you doing with your lymphoma ???? I was diagnosed Sept. 22, 2009....I will have my 4th biopsy & ultrasound this Wed.... My biggest complaint is that I am TIRED to the place that I feel SICK... My husband had his lung REMOVED 2 wks ago from LUNG CANCER diagnosed same week as this my stomach lymphoma problem !!! He had 2 mo. of chemo. & rad. before the pneumonectomy...( all of this could add to TIRED ). I had the 2500 mg antibiotic for 14 days in Oct.....got rid of he H-pylori, but still have the cancer ( lymphoma ) cells so the biopsy shows !! Back to 3rd trip to hemotologist Mar. 9.... Do you think I have a chance of escaping treatment ? Nothing like a good miracle...just goes away !!! indydorsey13@att.net
  • miss maggie
    miss maggie Member Posts: 929

    Gastric Malt Lymphoma
    jeno,

    How are you doing with your lymphoma ???? I was diagnosed Sept. 22, 2009....I will have my 4th biopsy & ultrasound this Wed.... My biggest complaint is that I am TIRED to the place that I feel SICK... My husband had his lung REMOVED 2 wks ago from LUNG CANCER diagnosed same week as this my stomach lymphoma problem !!! He had 2 mo. of chemo. & rad. before the pneumonectomy...( all of this could add to TIRED ). I had the 2500 mg antibiotic for 14 days in Oct.....got rid of he H-pylori, but still have the cancer ( lymphoma ) cells so the biopsy shows !! Back to 3rd trip to hemotologist Mar. 9.... Do you think I have a chance of escaping treatment ? Nothing like a good miracle...just goes away !!! indydorsey13@att.net

    malt NHL
    Hello,

    I finally found threads regarding malt NHL. I found your threads on the discussion board very enlightning. I will also paste a copy of this email on the discussion board in the event it might be helpful to others.

    The middle of sept 2009 I had the most terrible pain in my stomach, which I have no memory of to this day. I was rushed to the hospital ER. I had a ct scan which showed my bowel had perforated. I was immediately operated on, and was in ICU for 2 weeks, then 1 more week of hospitalization. Total 3 weeks in hospital. I thought I would never leave the hospital. The DX was stage 1, low grade, B cell NHL. They also found H-pylori bacteria and ulcers. Since I was in ICU I would imagine I was on very strong anti-biotics. I went to my oncologist, had a pet scan, pet scan showed node in neck, but after a neck biopsy negative. Then a bone marrow biopsy, which also came back negative.

    In dec 2009, I had treatment of rituxan once weekly for 4 weeks. I had no side effects from the rituxan. I saw my oncologist the end of jan 2010, and have another appointment with the oncologist the end of may 2010. I will then be scheduled for another pet scan. I am so scared that the H-Pylort might return. How do they test for that? Someone told me they can test for this bacteria by a blood test and my siliva??? Perhaps it is better to have a colonoscopy????

    Anything you can add, will be greatly appreciated. Let me know how you are doing. Your last thread, I believe was in feb 2010.

    God bless you and others. By the way, our DX is very positive with everything I have read. I would be more than glad to forward the text on our DX to anyone that is interested.

    Take care Maggie tcfcmaggie@aol.com
  • miss maggie
    miss maggie Member Posts: 929

    malt NHL
    Hello,

    I finally found threads regarding malt NHL. I found your threads on the discussion board very enlightning. I will also paste a copy of this email on the discussion board in the event it might be helpful to others.

    The middle of sept 2009 I had the most terrible pain in my stomach, which I have no memory of to this day. I was rushed to the hospital ER. I had a ct scan which showed my bowel had perforated. I was immediately operated on, and was in ICU for 2 weeks, then 1 more week of hospitalization. Total 3 weeks in hospital. I thought I would never leave the hospital. The DX was stage 1, low grade, B cell NHL. They also found H-pylori bacteria and ulcers. Since I was in ICU I would imagine I was on very strong anti-biotics. I went to my oncologist, had a pet scan, pet scan showed node in neck, but after a neck biopsy negative. Then a bone marrow biopsy, which also came back negative.

    In dec 2009, I had treatment of rituxan once weekly for 4 weeks. I had no side effects from the rituxan. I saw my oncologist the end of jan 2010, and have another appointment with the oncologist the end of may 2010. I will then be scheduled for another pet scan. I am so scared that the H-Pylort might return. How do they test for that? Someone told me they can test for this bacteria by a blood test and my siliva??? Perhaps it is better to have a colonoscopy????

    Anything you can add, will be greatly appreciated. Let me know how you are doing. Your last thread, I believe was in feb 2010.

    God bless you and others. By the way, our DX is very positive with everything I have read. I would be more than glad to forward the text on our DX to anyone that is interested.

    Take care Maggie tcfcmaggie@aol.com

    thank you dorsey
    I am pasting your reply to this discussion board in the event it can help others.

    Dear Dorsey,

    Thank you for your speedy reply to my email.

    I am so saddened to hear both you and your husband have to go through such trials at the same time. I understand how heartbreaking it can be. I lost my husband may 25, 2004 to pancreatic cancer. He was dx in may 2002. But, at least I was well at the time. How difficult it must be for you, not feeling so well yourself. I suppose at least they are giving your husband treatment, not totally hopeless. That is good news. Most certainly, it is still a struggle.

    Thanks for info of detecting H-Pylori. Yes, it is very rare our condition, but curable. I am glad to hear that the Pylori bacteria is gone. It sounds like you nhl is confined to the stomach lining only, and is still stage 1.. That is good news. Hopefully, and yes the radiation will zap the 20% left.

    I have no idea the dosage of anti-biotics I was given at the hospital. All I know is this, perforation of the bowel is very serious. The doctors pulled me through, therefore I trust that I was given strong anti-biotics.
    I am great at this time. I have a few problems with me knees, but I will learn to live with it.

    God Bless both you and your husband. Prayers to both of you.

    maggie
  • miss maggie
    miss maggie Member Posts: 929

    thank you dorsey
    I am pasting your reply to this discussion board in the event it can help others.

    Dear Dorsey,

    Thank you for your speedy reply to my email.

    I am so saddened to hear both you and your husband have to go through such trials at the same time. I understand how heartbreaking it can be. I lost my husband may 25, 2004 to pancreatic cancer. He was dx in may 2002. But, at least I was well at the time. How difficult it must be for you, not feeling so well yourself. I suppose at least they are giving your husband treatment, not totally hopeless. That is good news. Most certainly, it is still a struggle.

    Thanks for info of detecting H-Pylori. Yes, it is very rare our condition, but curable. I am glad to hear that the Pylori bacteria is gone. It sounds like you nhl is confined to the stomach lining only, and is still stage 1.. That is good news. Hopefully, and yes the radiation will zap the 20% left.

    I have no idea the dosage of anti-biotics I was given at the hospital. All I know is this, perforation of the bowel is very serious. The doctors pulled me through, therefore I trust that I was given strong anti-biotics.
    I am great at this time. I have a few problems with me knees, but I will learn to live with it.

    God Bless both you and your husband. Prayers to both of you.

    maggie

    cranberry juice & H-Pylori
    Hello all,

    I just wanted to pass on info that I found on the sloan kettering website. Type in "cranberry juice" where it says "search". Cranberry juice is not only good for urinary tract, but is also helpful at keeping the H-Pylori bacteria away. And yes, please be tested often for the bacteria.

    God Bless all. maggie
  • PBJ44
    PBJ44 Member Posts: 1

    Malt Lymphoma / Stomach
    I would like to communicate with anyone who has Malt Lymphoma ( especially stomach ).. I was diagnosed Sept. 22... I had another biopsy / ultrasound Oct. 14 after taking 2500 mg. antibioticfor 14 days for the H Pylori bacteria... I go back for another biopsy (? ) / procedure on Nov. 19, and see the Hemotologist again in Dec.

    Malt Lymphoma / Stomach w/ no H Pylori
    I was diagnosed in 2005 with Malt Lymphoma in my stomach but had no signs of H Pylori. I received one month of radiation treatments. So far I have not had any signs of the Malt Lymphoma since.
  • miss maggie
    miss maggie Member Posts: 929
    PBJ44 said:

    Malt Lymphoma / Stomach w/ no H Pylori
    I was diagnosed in 2005 with Malt Lymphoma in my stomach but had no signs of H Pylori. I received one month of radiation treatments. So far I have not had any signs of the Malt Lymphoma since.

    NHL w/no H Pylori
    I am thrilled to read the good news from your post.

    Did you have non-hodgkins malt lymphoma? When you were dx in 2005, how was it discovered?

    I was dx in sept 2009. I had terrible pain, went to ER, bowel perforated and ulcers. I had surgery. I was in the hospital for 3 weeks, and also received heavy doses of antibiotics. A biopsy confirmed h-pylori, stage 1, b cell, low grade NHL. I received 4 weeks rituxan in dec 2009. I will be going for a pet scan in may or june 2010. Curious, why you were given radiation, and no rituxan?

    Stay well, and God Bless
  • lvraider
    lvraider Member Posts: 5
    PBJ44 said:

    Malt Lymphoma / Stomach w/ no H Pylori
    I was diagnosed in 2005 with Malt Lymphoma in my stomach but had no signs of H Pylori. I received one month of radiation treatments. So far I have not had any signs of the Malt Lymphoma since.

    4-04 Large Bulky Gastric NHL B & T cells treatment: Remission
    Tried 8-rituxan & 6-velcade (bortezomib, fast push 30-seconds, with vein scarring asked after two doses, asked for 3-min slow injections) did not work at all. Then in Oct 04 23-days radiation at UCLA. Result: remission. I did have rituxan every 6-month maintenance for 3-yrs after 4-doses each time ending 1-09. Did have side effects from those treatments. Shortness of breath & short-term memory problems. Mine may have been also caused from lots of 100mg vioxx.

    Anyone with memory problems?
  • annie1968
    annie1968 Member Posts: 1
    I have Gastric MALT Lymphoma...need support
    Hello,
    I was diagnosed with Gastric MALT Lymphoma on April 19, 2011. So far my treatments have not been entirely successful. I had the antiobiotics, then ritauxan, then radiation (20 sessions) and then another dose of antibiotics. Apparently, my cancer is puzzling. They haven't seen it like this before. I should be cured but am not. I have searched everywhere for a GML safe nutrtiional diet but come up empty. I have sought a second opinion and was told no. You can't get a second opinion without having the consent from the first doctor.

    I am looking for support more because I have been told that if my next scope is still showing no signs of improvement I will be looking at chemo and will lose my hair. I am devastated. I found a treatement that helps chemo patients keep their hair but my oncologist said this treatment would not be a good idea. I have been searching and some say it is safe and some do not (peguin ice caps therapy). Has anyone out there been through chemo? Did you lose your hair? Has anyone tried the Penguin Ice Caps? Does anyone have a good diet regimen? Help please!!
  • vinny59
    vinny59 Member Posts: 1,036 Member
    annie1968 said:

    I have Gastric MALT Lymphoma...need support
    Hello,
    I was diagnosed with Gastric MALT Lymphoma on April 19, 2011. So far my treatments have not been entirely successful. I had the antiobiotics, then ritauxan, then radiation (20 sessions) and then another dose of antibiotics. Apparently, my cancer is puzzling. They haven't seen it like this before. I should be cured but am not. I have searched everywhere for a GML safe nutrtiional diet but come up empty. I have sought a second opinion and was told no. You can't get a second opinion without having the consent from the first doctor.

    I am looking for support more because I have been told that if my next scope is still showing no signs of improvement I will be looking at chemo and will lose my hair. I am devastated. I found a treatement that helps chemo patients keep their hair but my oncologist said this treatment would not be a good idea. I have been searching and some say it is safe and some do not (peguin ice caps therapy). Has anyone out there been through chemo? Did you lose your hair? Has anyone tried the Penguin Ice Caps? Does anyone have a good diet regimen? Help please!!

    hi
    Hello, I've been through chemo twice, once for head and neck cancer and once for my NHL. Losing your hair does suck, the second time around I shaved it off myself. I know being a guy its easier losing your hair, but you have to realize that hair does not make the person you are inside, male or female. Your number one goal is to beat cancer! Stay as positive as possible. Believe it or not my oncologist gave me a script for a wig, I never used it... your hair will grow back...... Vinny
  • onlytoday
    onlytoday Member Posts: 609 Member
    annie1968 said:

    I have Gastric MALT Lymphoma...need support
    Hello,
    I was diagnosed with Gastric MALT Lymphoma on April 19, 2011. So far my treatments have not been entirely successful. I had the antiobiotics, then ritauxan, then radiation (20 sessions) and then another dose of antibiotics. Apparently, my cancer is puzzling. They haven't seen it like this before. I should be cured but am not. I have searched everywhere for a GML safe nutrtiional diet but come up empty. I have sought a second opinion and was told no. You can't get a second opinion without having the consent from the first doctor.

    I am looking for support more because I have been told that if my next scope is still showing no signs of improvement I will be looking at chemo and will lose my hair. I am devastated. I found a treatement that helps chemo patients keep their hair but my oncologist said this treatment would not be a good idea. I have been searching and some say it is safe and some do not (peguin ice caps therapy). Has anyone out there been through chemo? Did you lose your hair? Has anyone tried the Penguin Ice Caps? Does anyone have a good diet regimen? Help please!!

    Second Opinion
    Annie,

    First of all, I am sorry that you have to be on this sight, but you have come to the right place... great people and tons of info here.

    Who told you that the first doc has to give consent for a second opinion?? When I was diagnosed,May 2010, I not only got a second, but a third opinion! I still have two different oncologists involved! I would say check with your healthcare provider first to check for coverage, but it is important! Especially with your doctors being puzzled!

    I have Nodal Marginal Zone Lymphoma stage iv and Malt lymphoma in my stomach. The malt was found while doing stomach biopsies and there are no tumors at this time. H Pylori is negative. Right now they are waiting for a bacterial overgrowth in my sm intestine to clear and then they want to treat with chemo because the Marginal Zone NHL is on the move. They are not concerning with the Malt right now but keeping a watch on it.

    I don't know of any specific diet- others may know. I just stay on a healthy diet. Right now - no gluten, no sugar, no lactose because of the bacteria problem in my sm intestine. But generally I just stay away from junk food and eat healthy. I also stay very hydrated all the time.

    I always get a second opinion - every step of the way. Both of my doctors know this.

    I have not lost my hair from treatment, but others have (like Vinny) and i'm sure they'll chime in.

    God Bless you and all the best.

    Donna
  • sooz1
    sooz1 Member Posts: 3
    Gastric Malt

    Hi I was treated w radiation August 2016 for Stage 1 Gastric Malt H Pylori Negative.  Just Had a post radiation Biopsy and I'm waiting for results

  • sooz1
    sooz1 Member Posts: 3
    edited January 2017 #38
    PBJ44 said:

    Malt Lymphoma / Stomach w/ no H Pylori
    I was diagnosed in 2005 with Malt Lymphoma in my stomach but had no signs of H Pylori. I received one month of radiation treatments. So far I have not had any signs of the Malt Lymphoma since.

    Radiation

    Hi I was treated w radiation August 2016 for Stage 1 Gastric Malt H Pylori Negative.  Just Had a post radiation Biopsy and I'm waiting for results.  Did the radiation kick your Gastric Malt to the Curb?  Are you in Complete Remission?  If not what was the next step?

  • lindary
    lindary Member Posts: 711 Member
    edited January 2017 #39
    old thread

    You posted on a very old thread. You may want to go to the lymphoma group in the discussion board and start a new thread with your question.

     

  • rose1957
    rose1957 Member Posts: 3
    I was diagnosexd after having

    I was diagnosexd after having an endoscopy  in August. They found a m& M size lymphoma.   In my stomach. Pet scan clear except for some areas by jawline which ENT stated is not lymphoma.   Had ct scan of head and neck. No masses.  So go back to oncologist this friday. Dont know if any treatment will be recommended. Worried about medical bills. Climbing everuday even wifh insurance.

  • rose1957
    rose1957 Member Posts: 3
    edited October 2017 #41
    Malt extradol gastric lymphoma

    That was the diagnosis.