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Runny nose

bdee
bdee Member Posts: 304
edited March 2014 in Colorectal Cancer #1
Does anyone have a constantly running nose all the time? I take clarinex (even though my oncology doctor suggested I don't) because if I don't the stuff runs down my throat and out my nose. I go through a box of Puffs in a week, I have to use the kind with lotion or my nose goes all red.
I can't blow my nose because the Avastin makes me bleed too much and if I blow, a nose bleed for a 1/2 hour.
This has been going on for about 8 months and my doctor knows about it but says it has nothing to do with chemo.

Debbie in Arkansas
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Comments

  • dianetavegia
    dianetavegia Member Posts: 1,942
    5 FU?
    Are you also on 5FU? My nose ran like crazy. My eyes watered like I was crying. My nose NEVER runs so I know it was chemo.

    I typed in 5 FU runny nose and got soooooo many hits. They all say: Symptoms may include cholinergic syndrome (may include runny nose, increased saliva, tears and stomach cramps.
  • bdee
    bdee Member Posts: 304

    5 FU?
    Are you also on 5FU? My nose ran like crazy. My eyes watered like I was crying. My nose NEVER runs so I know it was chemo.

    I typed in 5 FU runny nose and got soooooo many hits. They all say: Symptoms may include cholinergic syndrome (may include runny nose, increased saliva, tears and stomach cramps.

    Yes
    I am on 5FU. My eyes don't water that much, but I do have trouble swallowing some times because of so much saliva.

    Thanks,
    Debbie
  • chicoturner
    chicoturner Member Posts: 282
    runny nose
    Hi, I'm on Avastin and irinotecan and I have a runny nose constantly! It's worse after treatment and sort of tapers off before I start again! I am the tissue queen! Jean
  • bdee
    bdee Member Posts: 304

    runny nose
    Hi, I'm on Avastin and irinotecan and I have a runny nose constantly! It's worse after treatment and sort of tapers off before I start again! I am the tissue queen! Jean

    Avastin
    Does taking Avastin make you bleed profusely? There are times I just want to blow my nose off it runs so bad and the running never tapers off for me.

    Thanks.
  • dianetavegia
    dianetavegia Member Posts: 1,942
    bdee said:

    Avastin
    Does taking Avastin make you bleed profusely? There are times I just want to blow my nose off it runs so bad and the running never tapers off for me.

    Thanks.

    Yes and Yes
    There was a huge thread on colon club and I've seen it mentioned here. 5FU made me have nosebleeds.

    Terry on colon club is a triage nurse. She said to gently blow out the clot and then pinch the nose closed for 5 - 10 minutes minimum. This allows a new clot to form. This is worsened in the winter because it's so dry.

    I have never had a bloody nose or nose bleed until 5FU.

    Type in Avastin bloody nose: Avastin side effects... Acid or sour stomach; belching; bloody nose; change in walking and balance ...
  • Crow71
    Crow71 Member Posts: 679
    Hi Debbie. My nose starting
    Hi Debbie. My nose starting running about fifteen minutes into my first treatment in September and hasn't stopped since. I carry tissue with me everywhere. I can get away with blowing very gently. I don't want to contradict your dr., but my runny nose is a direct side effect of chemo.

    Doesn't it suck when you think your nose is running, and you don't really pay attention when you wipe it because you've wiped it 20 times in the last ten minutes, and then you realize you are bleeding all over the place? Or does that just happen to me?

    Roger in North Carolina
  • Paula G.
    Paula G. Member Posts: 596
    Yap
    Hi,
    My husband's nose runs all the time. The chemo made it run and the avastin makes it bleed. He doesn't take anything for it just deals with it. We should have bought stock in the kleenex company. I am affraid it is just one of the side effects. Paula
  • Paula G.
    Paula G. Member Posts: 596
    Crow71 said:

    Hi Debbie. My nose starting
    Hi Debbie. My nose starting running about fifteen minutes into my first treatment in September and hasn't stopped since. I carry tissue with me everywhere. I can get away with blowing very gently. I don't want to contradict your dr., but my runny nose is a direct side effect of chemo.

    Doesn't it suck when you think your nose is running, and you don't really pay attention when you wipe it because you've wiped it 20 times in the last ten minutes, and then you realize you are bleeding all over the place? Or does that just happen to me?

    Roger in North Carolina

    Roger,
    The same thing

    Roger,
    The same thing happened to John when he was at work. He said he felt like he grossed out everyone.
    They all understood.
  • Buzzard
    Buzzard Member Posts: 3,043
    Paula G. said:

    Yap
    Hi,
    My husband's nose runs all the time. The chemo made it run and the avastin makes it bleed. He doesn't take anything for it just deals with it. We should have bought stock in the kleenex company. I am affraid it is just one of the side effects. Paula

    Mine ran when I started chemo......
    and quit when I finished...............period.....never a nosebleed though....Oxy/leu/5fu
  • idlehunters
    idlehunters Member Posts: 1,787
    Buzzard said:

    Mine ran when I started chemo......
    and quit when I finished...............period.....never a nosebleed though....Oxy/leu/5fu

    Nosebleeds
    I take Avastin and 5FU........ Nosebleeds got soooooooooo bad that the blood ran out even when I didn't blow my nose..... so fast it would hit my shirt before I could even get a kleenex up to my nose. I posted a thread on here and got a lot of suggestions. I don't remember who it was that said to try a saline nasal spray (thank you so much!!!) BUT.... it was like a miracle cure. My nosebleeds are at a minimum now. I could not believe how well it works! I use it first thing in the morning....wait about 10 minutes and then do my first blow of the day..... I still get light blood here and there.... BUT.. I also got REAL snot...ewe..gross....but it's those small things that make me happy..LOL. At night I always put vaseline or neosporin in each nostril to keep it from drying out and then those buggies are soft and much easier on the nose. I use the spray throughout the day when I feel my nose getting dry.

    Jennie
  • abmb
    abmb Member Posts: 311
    When my husband was on chemo
    When my husband was on chemo he always had a runny nose to the point that when he would sneeze I would take cover. He also had watery eyes all the time. I always asked if he was okay and he would ask why, I would say it looks like you are crying. He didn't even notice sometimes that his eyes were watery. Now that he is finished with his chemo the runny nose has stopped. Take care and keep applying lotion. Margaret
  • Crow71
    Crow71 Member Posts: 679

    Nosebleeds
    I take Avastin and 5FU........ Nosebleeds got soooooooooo bad that the blood ran out even when I didn't blow my nose..... so fast it would hit my shirt before I could even get a kleenex up to my nose. I posted a thread on here and got a lot of suggestions. I don't remember who it was that said to try a saline nasal spray (thank you so much!!!) BUT.... it was like a miracle cure. My nosebleeds are at a minimum now. I could not believe how well it works! I use it first thing in the morning....wait about 10 minutes and then do my first blow of the day..... I still get light blood here and there.... BUT.. I also got REAL snot...ewe..gross....but it's those small things that make me happy..LOL. At night I always put vaseline or neosporin in each nostril to keep it from drying out and then those buggies are soft and much easier on the nose. I use the spray throughout the day when I feel my nose getting dry.

    Jennie

    Hey Jennie. I've been
    Hey Jennie. I've been wondering how you and your nose have been. I'm so happy to hear the bleeding has gotten better and that you have gotten "REAL snot" and soft buggies. Awesome!!!
    Keep on blowin'
    Roger
  • pluckey
    pluckey Member Posts: 484
    me too
    i have a bloody nose in the morning- about 6 blows worth and runny all day..i didn't connect it to the chemo at all but i bet it is....really annoying.
    i keep a tube of aquafor in my purse and bathrobe and smea it under my nose all day long....

    i'm on 5fu, leucavorin and erbatux..ironotecean previously

    peggy
  • menright
    menright Member Posts: 256
    Me too!
    I have had a constant runny nose for the last several months. Based on all this input, it must be from the chemo. I also have bloody nose episodes and I attribute this to the Avastin.

    You are not alone. I am unsure how long it will last. I have been off chemo now for a month and still the runny nose.

    Mike
  • bdee
    bdee Member Posts: 304
    Crow71 said:

    Hi Debbie. My nose starting
    Hi Debbie. My nose starting running about fifteen minutes into my first treatment in September and hasn't stopped since. I carry tissue with me everywhere. I can get away with blowing very gently. I don't want to contradict your dr., but my runny nose is a direct side effect of chemo.

    Doesn't it suck when you think your nose is running, and you don't really pay attention when you wipe it because you've wiped it 20 times in the last ten minutes, and then you realize you are bleeding all over the place? Or does that just happen to me?

    Roger in North Carolina

    Roger
    No, it happens to me too. I never know if it is blood or mucous coming out of my nose. I really hate it to happen when I'm around people. It kind of freaks them out when my nose just starts bleeding for no reason.
  • bdee
    bdee Member Posts: 304
    menright said:

    Me too!
    I have had a constant runny nose for the last several months. Based on all this input, it must be from the chemo. I also have bloody nose episodes and I attribute this to the Avastin.

    You are not alone. I am unsure how long it will last. I have been off chemo now for a month and still the runny nose.

    Mike

    Thanks to everyone
    Your replies really help. I have trouble believing my doctor sometimes. I think he doesn't tell me the side affects of the chemo because he thinks I'll have the side affects just because he told me about them. Does he think I'm a hypochondriac? (I have no idea if I spelled that right)

    Thanks,
    Debbie in Arkansas
  • luv3jay
    luv3jay Member Posts: 533
    OH MY GOODNESS!! I thought
    OH MY GOODNESS!! I thought it was just me!! I know the nosebleeds are common with Avastin, but I thought the constant runny nose was only my issue! And I sneeze constantly too! I'm glad you started this thread because I thought I was the only person with the runny nose issue.

    -Sheri
  • bdee
    bdee Member Posts: 304
    luv3jay said:

    OH MY GOODNESS!! I thought
    OH MY GOODNESS!! I thought it was just me!! I know the nosebleeds are common with Avastin, but I thought the constant runny nose was only my issue! And I sneeze constantly too! I'm glad you started this thread because I thought I was the only person with the runny nose issue.

    -Sheri

    Sneeze
    I also have the sneezing issue. Really makes it gross if you were just about to blow your nose and you sneeze. Gross!!

    THanks,
    Debbie in Arkansas
  • lcarper2
    lcarper2 Member Posts: 635
    bdee said:

    Sneeze
    I also have the sneezing issue. Really makes it gross if you were just about to blow your nose and you sneeze. Gross!!

    THanks,
    Debbie in Arkansas

    nose bleeds
    I am on Xeloda 3000 mg for 14 days off 7 and my nose runs all the time I ask mt ONC about the blood I was blowing and he said it was due to dry weather..just buy alot of clean-x I also have a cough like a cold comming on but not sick...
  • syfox
    syfox Member Posts: 1
    Runny nose
    i am being treated for lung cancer with a platin family drug & it caused a fairly steady runny nose. My pharmacist suggested a saline spray called NasaMist (over the counter) at Rite Aid - it worked.
  • Ken-Roy
    Ken-Roy Member Posts: 1
    Constant Runny Nose After chemo
    I have had a constant runny nose ever since my first dose of chemo back in 1986 (one year program) it is very frustrating to hear from your doctor to take allergy meds to 'alleve' this nuisance. You would think that they would know exactly what to do to treat the very cause. It did not happen by itself after all, something the chemo did to to my glands to cause this. There has to be a solution to this out there somewhere !
  • k1
    k1 Member Posts: 220
    Neil-Med
    Neil-Med Sinus Rinse Kit with bottle (not nettipot). Gentle, safe, soothing and the stuff will come out of your sinuses before it drains down to your throat. Available at Walgreen's or CVS for around $15. I start right after chemo before it gets out of hand.

    K1
  • Brenda Bricco
    Brenda Bricco Member Posts: 579
    My hubby too...
    His nose ran like crazy when he was on chemo (5FU). ;)
  • Jane822
    Jane822 Member Posts: 50
    Runny nose
    I'm on 5FU and Avastin and have a constant runny nose. No nose bleeds though. I have Puffs all over the place and seem to have to blow my nose continuously. have taken non-drowsy benedryl and it doesn't help at all. Will try the saline spray and see if that helps.
  • th_in_canada
    th_in_canada Member Posts: 46
    Jane822 said:

    Runny nose
    I'm on 5FU and Avastin and have a constant runny nose. No nose bleeds though. I have Puffs all over the place and seem to have to blow my nose continuously. have taken non-drowsy benedryl and it doesn't help at all. Will try the saline spray and see if that helps.

    runny nose
    I have had a runny nose since about the 3rd round of FOLFOX + Avastin. The Avastin caused nose and sinus damage and the ENT specialist said I would just have to live with it. Btw, I've been off that chemo for over a year - still runny nose. I do use the sinus rinse most days.
  • judman92
    judman92 Member Posts: 31
    lcarper2 said:

    nose bleeds
    I am on Xeloda 3000 mg for 14 days off 7 and my nose runs all the time I ask mt ONC about the blood I was blowing and he said it was due to dry weather..just buy alot of clean-x I also have a cough like a cold comming on but not sick...

    nose bleeds
    I have been having nose bleeds on and off since starting chemo. I am getting ready to switch to Xeloda 500mg 14 days on and then a week off then Avastin. I'm kind of nervous about starting the Xeloda I hope I can tolerate it. Do you have a lot of side effects?
  • herdizziness
    herdizziness Member Posts: 3,624
    HUMIDIFIER
    Cold water humidifier will help the nosebleeds, leave it on high at night when your sleeping, as close to you as you can, you will see a lessening of the nose bleeds.
    About two years ago my husband had daily nose bleeds (Not due to cancer)and I finally thought of a humidifier, it made all the difference, he still gets a nose bleed maybe every couple of months or longer and it has done wonders.
    Can't help with the runny nose though, sorry about that.
    Winter Marie
  • ambrose5
    ambrose5 Member Posts: 1

    runny nose
    I have had a runny nose since about the 3rd round of FOLFOX + Avastin. The Avastin caused nose and sinus damage and the ENT specialist said I would just have to live with it. Btw, I've been off that chemo for over a year - still runny nose. I do use the sinus rinse most days.

    runny nose
    It's been quite a while (2 years) since I've had my chemo treatments but I still have a runny nose (just on right side). My doctor said it could last for years but it really is annoying, especially on a windy or sunny day.

    Is there anything I could take to help alleviate the constant dripping?
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252
    Avastin and Irinotecan
    My first 12 tx of chemo was FOLFOX. I had no issues with bloody noses, and only minimal runny nose (compared to normal).

    Avastin is the culprit for the nosebleeds. They can get pretty bad. I was on Avastin for over a year. One thing that can help a lot is to run a humidifier in your home if you live in a cool climate where you have a furnace running for the winter. Also lining the insides of your nostrils with Vaseline can help a bit. If it gets too bad, they can cauterize vessels to help. Keep your oncologist informed on how bad the nosebleeds get.

    I got the double-whammy because I was on Coumadin (blood thinner) at the same time because of a history of blood clots while on chemo. If my INR got too high, the nosebleeds were very bad. I'd wake up covered in blood at night. Are you on blood thinners? Before this, I'd never had a bloody nose in my life except when I broke my nose. The bloody noses slowed down after I stopped the drug. It took over 2 months for them to stop completely.

    The Irinotecan is normally the culprit for the runny nose. I was on that for over a year also. I've been off both since October, but still have issues with my nose running more than normal - especially when I eat or drink anything. That is always the most annoying! I used to purchase those cute little square tissue boxes - now I buy the huge economy size! I have boxes everywhere in my house - family room, kitchen, living room, bedroom, bathroom, and in my car. My coat pockets are full too - I don't go anywhere without a tissues within grabbing distance. Often I get no warning for the runny nose, but I can count on it for sure when I eat or drink. It has gotten better since being off chemo, but is still bothersome. I go through about 1/4 or less of the amount of tissues I was going through (I was using 6 huge boxes or more in a week).

    I found Puffs Plus to be the best. I'm usually the coupon and generic queen, but on chemo I don't skimp on two things - TP and tissues! Cottonelle and Puffs Plus are necessities.
  • Kathryn_in_MN
    Kathryn_in_MN Member Posts: 1,252
    Crow71 said:

    Hi Debbie. My nose starting
    Hi Debbie. My nose starting running about fifteen minutes into my first treatment in September and hasn't stopped since. I carry tissue with me everywhere. I can get away with blowing very gently. I don't want to contradict your dr., but my runny nose is a direct side effect of chemo.

    Doesn't it suck when you think your nose is running, and you don't really pay attention when you wipe it because you've wiped it 20 times in the last ten minutes, and then you realize you are bleeding all over the place? Or does that just happen to me?

    Roger in North Carolina

    Yep
    I've had that happen - yuck!