stuff going on this week

lisa42
lisa42 Member Posts: 3,625 Member
edited March 2014 in Colorectal Cancer #1
Well, this week will be a full one for me...
Tomorrow morning (Monday), I'll be having a PET/CT scan. I usually walk out of the place w/ a CD of the scan and then I go the next day to the hospital records room and get my copy of the written report. My CEA has been rising over the past 8 weeks, which has always been a telling indicator for me of new activity. I had been off the Avastin for a while though due to my colonoscopy a few weeks back & have now had it again with my past two Folfiri treatments. It will be interesting to see if going back on the Avastin for these past two treatments will have made a difference in my CEa and/or scan results. It seems maybe more than coincidental that my CEA started to rise when I had to stop the Avastin 6 weeks before my colonoscopy (I was off it for a total of 13 weeks). Who knows though how effective the Avastin is in me, because I had my recurrence back in August when I was on Avastin and Xeloda as maintenance. We'll see what the scan shows...

Last Monday was my last Folfiri treatment before ending it at least for the trial time of 11 weeks to to go see Dr. Cantrell in Nashville this week, start the new treatment and take it for 10 weeks, then rescan again. I fly out Wednesday and will have two appointments with him on Thursday and Friday, then fly home again Saturday. If all goes as Dr. Cantrell and I spoke about on the phone, I will be starting the treatment right away. I'll take the Lovastatin for 2 weeks and build up to the desired dose for my weight, then start in with the interferon after that and take the two combined for 8 weeks.
I'm a little nervous of what will or won't be seen on my PET scan tomorrow, but glad I'm getting scanned right before starting this new treatment of Lovastatin and interferon- we'll have my most up to date info from the scan and bloodwork and we'll know exactly what is in me at the start of this new treatment.

I'll let you know what my scan results are and then report in again after returning from Tenneessee. I'm actually also looking forward to this trip as a mini getaway as well- my sister in law is going with me and we'll visit with my nephew and his wife and hopefully have a couple of nice evenings with them.

I know there are several others who are going through things this week- chemo and trying to find clinical trials that will work, looking for answers for HIPEC treatment, plus more than just that, I'm sure (edit add on: I just read about John having colostomy surgery Monday or Tuesday- prayers will be with him). As I go on down this experimental road of treatment, my prayers are also with all of you for success and healing.

Take care everyone!
Lisa
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Comments

  • Julie 44
    Julie 44 Member Posts: 476 Member
    Prayers
    Dear Lisa,
    Wow you have alot going on..I wish you better luck on your Pet scan than I had....Also good vibes to you for your doctors visit in Tenn...Safe trip and I will be praying that all goes well for you...Let us know how you make out...JULIE
  • coloCan
    coloCan Member Posts: 1,944 Member
    Wishing good luck on your scans and success
    with your new treatment, Lisa.....Steve
  • KATE58
    KATE58 Member Posts: 299
    coloCan said:

    Wishing good luck on your scans and success
    with your new treatment, Lisa.....Steve

    Good luck Lisa!
    I'll keep

    Good luck Lisa!
    I'll keep you in my prayers.
    GOD BLESS
    KATE
  • ittapp
    ittapp Member Posts: 383 Member
    Lisa, I will be praying hard
    Lisa, I will be praying hard for you today. I really feel like you are paving the way for a new way of treatment. I am amazed at your determination and know that this is going to work for you.I will be keeping you in my heart and prayers for the trip. God bless you, Patti
  • just4Brooks
    just4Brooks Member Posts: 980 Member
    We'll be sending good thoughts your way
    We'll be sending good thoughts your way. Do you need a ride to the airport or anything? Let me know
  • lisa42
    lisa42 Member Posts: 3,625 Member

    We'll be sending good thoughts your way
    We'll be sending good thoughts your way. Do you need a ride to the airport or anything? Let me know

    Thank you!
    Thank you everyone for your well wishes and prayers! Brooks, I had actually forgotten you live so close by! That's right- we will have to get together sometime!
    I'm good for going to and from the airport though, but thanks! :)
  • Patteee
    Patteee Member Posts: 945
    lisa42 said:

    Thank you!
    Thank you everyone for your well wishes and prayers! Brooks, I had actually forgotten you live so close by! That's right- we will have to get together sometime!
    I'm good for going to and from the airport though, but thanks! :)

    I am so excited for you and
    I am so excited for you and the Nashville trip/experience! I will put you on the "good thoughts and prayer" list of mine- and look for updates on this week!
  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    Thinking of You
    You have a lot on your plate. I'm hoping that the scan comes out good and that all is successful with your new treatment. You have been down a long road and you still are on your journey. You are in my thoughts and prayers during the months ahead while you go through this. Keep us informed.

    Kim
  • idlehunters
    idlehunters Member Posts: 1,787 Member

    Thinking of You
    You have a lot on your plate. I'm hoping that the scan comes out good and that all is successful with your new treatment. You have been down a long road and you still are on your journey. You are in my thoughts and prayers during the months ahead while you go through this. Keep us informed.

    Kim

    Lisa
    Hey girl...... I have been almost as anxious as you to see how this new treatment works. I just have this deep down feeling that it is your calling. I just know it is what you need and I cannot wait for results. Please keep me informed. I am sending you a PM with my phone number to make sure you have it and to call me with every new thing happening.... I will keep you in my prayers every day. This is it girl!!!

    Jennie
  • dorookie
    dorookie Member Posts: 1,731 Member
    Keep Us Posted
    I will be traveling to Texas on the days you see Dr. Cantrell. I am so excited for you. Please keep us posted, are you taking a laptop or will you have access to a computer to keep us updated? I will have my laptop on the road and will be trying to check in. Keeping you in my prayers and my fingers crossed for a great results to your scans.

    God Bless and best of luck, have safe travels.

    Beth
  • AnneCan
    AnneCan Member Posts: 3,673 Member
    Best of luck, Lisa with all
    Best of luck, Lisa with all your appointments this week. I think it is very nice that you will be able to have some social time when you are on your trip! Please keep us informed; I know I am very interested in what you find our!
  • VickiCO
    VickiCO Member Posts: 917
    Gotcha covered with prayers, Lisa
    I'll be thinking of you all week. Keep up the fight...you are a strong and amazing woman.

    Many hugs, Vicki
  • thready
    thready Member Posts: 474
    Prayers are with you
    Lisa,
    We will be praying for you, for good results, for safe travel, for a time of rest and for success in this new treatment!
    You are an awesome role model and a great example of courage.
    Take care and let us know how it all goes.
    Jan
  • Kathleen808
    Kathleen808 Member Posts: 2,342 Member
    Lisa
    Lisa,
    You do have a lot going on this week. I am praying for you for everything you will be doing, scan, travel, time with family, time with Dr. Cantrell and your new treatment. You are a very strong lady and I am praying for good results.
    I am glad that you are planning on enjoying your trip. The time without immediate family can be a time for rest and taking care of yourself.
    We look forward to hearing from you.

    Aloha,
    Kathleen
  • KFen725
    KFen725 Member Posts: 108 Member
    Praying
    Lisa, may the scan have surprisingly GOOD results and I pray that things go great for you with Dr. Cantrall!

    Kelly
  • PhillieG
    PhillieG Member Posts: 4,866 Member
    Lisa
    You are a source of inspiration to me and many others. Avastin was a lifesaver for me years ago, I hope it brings your numbers down again. You certainly have a full week. I'm glad you can mix a little get-away fun time in there. Please keep us posted.
    You are in my thoughts and prayers.
    -phil
  • tootsie1
    tootsie1 Member Posts: 5,044 Member
    Whew!
    Hi, Lisa.

    You DO have a lot of stuff going on this week. I will be praying for good answers for you and safe travels. We'll all be anxious to hear about how you're doing!

    *hugs*
    Gail
  • dianetavegia
    dianetavegia Member Posts: 1,942 Member
    I'm excited for you
    I've been praying and awaiting this day, too. Praying for wonderful results for you and hope you have loads of fun,too.

    Diane
  • Buzzard
    Buzzard Member Posts: 3,043 Member

    I'm excited for you
    I've been praying and awaiting this day, too. Praying for wonderful results for you and hope you have loads of fun,too.

    Diane

    Sending my Number along.....
    I am 2.5 hrs away from Nashville...If you are of assistance of anything at all please call me. It would be my pleasure to help. Hopefully it will be problem free and also a blessing for you...Have a ball with you relatives and if you need anything at all simply call..... Clift
  • JDuke
    JDuke Member Posts: 438
    Lisa
    May your travels be safe, your scans be clear, your treatment be successful and your strength and courage steadfast. Sending prayers and positive thoughts your way.
    Joanne