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**** WE NEED A MOOPY UPDATE ****

Jeanne D's picture
Jeanne D
Posts: 1867
Joined: Mar 2009

Hey Moopster! We haven't heard how you are doing in awhile, and,

inquiring minds want to know. ( well I do anyway lol )

So, how are you doing? How are the treatments going? How is your skin holding up? Are you

getting rest? Feeling ok?

Ok, I know, a lot of questions, but, it is only because I love you and am concerned!

Post whenever you can. And, HI JOE!

Love, Jeanne

Aortus's picture
Aortus
Posts: 967
Joined: Jan 2009

Hi Jeanne!

Moopsy and I are in the clinic now, waiting for our weekly meeting with the amazing Dr. Taylor. Once I get her fed and get her home, I will ask her to fill y'all in. Thank you so much for caring, Jeanne - it means so much to us both!

Love,
Joe

P.S. Ask Moopy about her upcoming career as (get this) a punk rocker!

Kristin N's picture
Kristin N
Posts: 1969
Joined: Mar 2009

YEA! We heard something. Thanks Joe! We all do care about the both of you! I will be waiting to see her posting when she feels like it to bring us up to date.

A punk rocker! ROCK ON!

Love ya both

Kristin

Christmas Girl's picture
Christmas Girl
Posts: 3688
Joined: Apr 2009

Our dear Moopster?

Must be related to the new hair... Mohawk-ish? :-)

Kind regards, Susan

rjjj's picture
rjjj
Posts: 1826
Joined: Jan 2009

Hope your visit with your DR. is all good. I know how tiring radiation can be and You just rest all you can. I also am still very tired, but the burns suprisingly are healing very fast. I hope you have no burning at all dear.

As for hair..punk rocker sounds cool,mine was a porkepine head but now it is starting to fill in and get thicker...kind of like GI Jane, but I don't quite pull it off as well as Demi..Oh well, it is hair and i am glad to have it. I haven't worn a wig in about 6 weeks just my ball-caps. I just can't wait untill it grows more so i can color it. It is coming back gray, and no i won't grow old gracefully! LOL!

Not to much longer left my friend and before you know it you will be back home living happily ever after with your prince charming.
Lotsa love, Jackie

Aortus's picture
Aortus
Posts: 967
Joined: Jan 2009

You're in, GI Jackie, whether you want to be or not!

What instrument do you play or think you know how to play? The only instruments taken are drums (TJ) and piano accordion (Tasha). Respond soon, and Moopy (Susan and I are more minions than we are managers) might let you wear a uniform on stage!

survivorbc09
Posts: 4376
Joined: Jun 2009

Good to see you post Moopy and a punk rocker? Glad you are halfway done! You will do it!

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

Thanks, my friends, for asking about me. I just finished 17 out of 29 treatments. The doc says my skin is not any more red than expected at this stage, and my bloodwork is good. I am beginning to feel the burn, as Jane used to say. Am following your advice and greasing up with Aloe and Aquaphor.

The worst thing is my left arm, due to lying with it over my head for so long. It hurts and is stiff. Aleve is good, I've discovered. I'm losing range of motion with the arm, too, so next up is an appt. with Physical Therapy. Sure wasn't expecting that with rads! Oh, well, I am soooooo tired with rads that I sleep a lot, anyway. Jeanne was right: rads are not a breeze. Which I could use right now, come to think of it.

Wishing you all a cool day and week and much love,
Moopy

mimivac's picture
mimivac
Posts: 2147
Joined: Dec 2008

So nice to hear from you, Moopy. Glad that everything is going as expected, despite the arm pain. A physical therapist will hopefully give you some good strategies for that. My rad. onc. warned me about losing range of motion and developing long-term shoulder pain, too. She suggested certain exercises to try to keep my arm and shoulder "loose." Hope everything continues to go well. You are more than half-way there!!

Mimi

tjhay's picture
tjhay
Posts: 655
Joined: Oct 2008

If you are starting a rock band due to the hair thing i think u should make me your drummer, i got the do, and i got rythem, even if i can spell.
So glad that you are doing well, sleep all you want i did. and still do, 2 naps a day generaly. and i am not ashame to admit it
happy smiles
tjhay

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

Hey, TJ, you're in. Just use your early menopause anger and go with it. I've got black spiky little hairs--(ok, pepper and salt). So, we both have the look going for us.

You will need a rock star name, however. Mine is Moopy Mohawk. Maybe TJ Tantrum for you?

Keep the beat,
MM

p.s. sorry about the menopause thing. I'm actually happy about no period, and still too tired to be bi+chy. Although I guess only Aortus can confirm that....

Christmas Girl's picture
Christmas Girl
Posts: 3688
Joined: Apr 2009

Can't be left out of your rock band...

I wholeheartedly nominate Aortus as Business Manager. Because he's very intelligent. Plus, since he's not an avid practitioner of Retail Therapy - he'd be good at handling the $ money, insuring profits to be shared by all! Besides, he always has your very best interests in mind.

I nominate myself as Promotions Manager, leaning on my 20+ years in advertising. (Only if Aortus is agreeable to the partnership.)

With TJ Tantrum on drums (practicing Menopause Therapy) - what will be your role, Moopy Mohawk? Front woman/lead singer? YES! (Don't worry - if you can't actually sing, you surely could lip synch to someone else's voice!)

C'mon, ladies! We need musicians! Back-up singers! Crew! Step up!

And, we need a name for the group...
The Moopinators, with Moopy Mohawk
Menopausal Moopinators
Chemically Induced Menopausers
BC Bi+ches

OK, I'll stop. Sorry. Got a bit carried away. :-)

Kind regards, Susan

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

Thanks Steff,Jan, Aurora,Pammy and Christmas Girl. What a nice lift you all give me here at the half-way point, with the end not in sight yet.

Pammy, backup singer you will be. How about special appearances sometimes as lead? Keep in mind, since you will not be sporting the spiky look (too bad for you), you will need to do something. How do you feel about purple or burgundy hair, or some other not-found-in-nature- hair color? You look petite, so you can wear spiky heels. I'm having trouble with a rock star name, though. Kiss is already taken.

Susan, you are awesome. I'm honored to have your skills and talents as promotion manager. (By the way, seriously I would like to know more about your work. Didn't you say you worked for Hallmark? Don't know much about promotional work and would enjoy learning.) As for Business Manager, Aortus is perfect: first because he does not practice retail therapy, as you cleverly noted, and also because I always know where his wallet is. No grapes of wrath tours for us!

Names, hmmmm, maybe one of the last two. It's a group effort, after all. I don't want to end up being a stage hog. Even if I am currently greased up like a pig.

I bet Cat would write some original songs for us, too.

Thanks for the fun and encouraging messages,

love, Moopy

lynn1950's picture
lynn1950
Posts: 2573
Joined: Jun 2008

Moopy, soon you will be looking back at this whole thing. Really. And I want to be in your band. I want to be a backup singer (no mike on; have you heard my voice?) and the archivist, because I am such a nerd.

Christmas Girl's picture
Christmas Girl
Posts: 3688
Joined: Apr 2009

Oooh, we've added two back-up singers: Pammy & Lynn. With Lynn doing double duty as Archivist - great idea, Lynn!

Songwriters - yeah, Cat. Maybe Claudia, too, if she's willing. Gotta get Cat involved somehow - she's got FOUR tattoos! Perfect! Cat could also be the Photographer - c'mon, Cat! Step up!

A travel expert could be Tour Manager. And a self-professed fashion diva could be in charge of Costumes, Hair & Makeup.

Need musicians. TJ Tantrum on drums, so far... Anybody play guitar? Keyboards? Anything other instruments?

More names to consider - Moopy Mohawk gets to choose:
Princess Warriors
Journeywomen

Kind regards, Susan

rjjj's picture
rjjj
Posts: 1826
Joined: Jan 2009

I will find a new funky color and streak my hair pink (when it is long enough.. oh yeah I am hoping that we can all dance with Ned on stage....The happy happy neekid dance!
love, jackie

Aortus's picture
Aortus
Posts: 967
Joined: Jan 2009

Welcome aboard, GI Jackie!

chenheart's picture
chenheart
Posts: 5180
Joined: Apr 2003

I am willing to write AND sing! I have never met a Karaoke bar I didn't like! LOL Once, when I visited inlaws in a tiny town in Idaho, the family had actually reserved a big table at the local bar for me, as they had hired a Karaoke DJ! It was so hilarious!I made my sister in law and cousins sing with me ( they were DRAGGED kicking and screaming, but a pitcher or 2 of beer helped the bravado) I can't remember who came up with the name, but someone called us "Chen and the Cherry-okies"...as in they were karaoke virgins! LOL

I actually sang in a casino in Lake Tahoe when I was there for the 4th of July...I was in a ballad kinda mood and sang The Carpenters "SuperStar" written by Leon Russell. And people got up and danced, thank you very much!! Ok, they were drunken gamblers, but they danced! LOL

So I am sooo in!!! Let the games begin!!!

Hugs,
Claudia

lynn1950's picture
lynn1950
Posts: 2573
Joined: Jun 2008

Flash from the past! And what town would that be? Weiser? Midvale? Surely not Cambridge! Thanks Claudia. Lynn

outdoorgirl's picture
outdoorgirl
Posts: 1569
Joined: Apr 2009

more openings in your group?
How bout singing backup-I always thought that would be fun to do! Just don't ask me to dance...

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

So sorry, my friend. I completely missed your post--as well as you while you were on vacation.

Backup singer would be great. Lynn and Pammy and you can also be featured in some songs, you know, like Diana Ross and the Supremes.

What's your rocker babe name going to be? Also, you do have to have some hair thing going.

This is looking like we're going to need a hair stylist/colorist.

lynn1950's picture
lynn1950
Posts: 2573
Joined: Jun 2008

Do you know how those Supreme backups ended up?!? Yikes. Just call me "little l."

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

Uh-oh, I forgot the not-so-supreme ending. Good point, band archivist.

Little L--I like it!

lynn1950's picture
lynn1950
Posts: 2573
Joined: Jun 2008

Uh- uh, Not Little L, little l. I believe that puns are the highest form of humor, even if visual. :) I am taking my job seriously so I don't get fired. xoxoxo Lynn

outdoorgirl's picture
outdoorgirl
Posts: 1569
Joined: Apr 2009

I'm going for the mullet look(even though in reality my hair isn't long enough for it yet.Keep getting it cut short-like it that way!)With way too much hairspray frizzed out bangs! Can't think of a name yet though-what do you think?
Bet you are glad to have a break away from rads this weekend!

Akiss4me's picture
Akiss4me
Posts: 2192
Joined: May 2009

Moopy Mohawk...hmmmm...has a pretty good ring to it. It just sorta flows. And I like TJ Tantrum too. I'll volunteer back up singer....only because you may find me in the back snoozing, not singing!!
So, look for signs of burning around zapping 16-17??? My boobie is HOT for hours afterward and I sting in my underarm inscision a little, but nothing to speak of. So glad you are making it through. I figure I will be sick of it, oh say, by next week or so (ha,ha).
Good to hear from you moopy and glad your half way through. :) Pammy

tjhay's picture
tjhay
Posts: 655
Joined: Oct 2008

OH I love it, going to change my name to that, it has a ring that just seems to fit my mind set I think.
So what is the band name? Its gotta be a good one now, should we take a pole and see what everyone thinks?
happy smiles and keeping the beat
TJ Tantrum

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

OK, TJ, do you think we need to start a new thread then? Or just submit more suggestions before voting? JJ suggested the RAD Bs, and I added....(drum roll please TJ) featuring TJ Tantrum.

aurora2009
Posts: 545
Joined: Jun 2009

You're a really trooper, I've been reading your story all along, And you're a real inspiration to us all!!!!!!!!!!!!

Aurora

outdoorgirl's picture
outdoorgirl
Posts: 1569
Joined: Apr 2009

our Moopster is a tough little cookie for sure and Joe makes a great cheerleader!!

fauxma's picture
fauxma
Posts: 3581
Joined: Dec 2008

Moopy
More than half way through. How sweet is that? And glad that your burns are no greater than expected. Keep using those lotions and hopefully you won't have any major problems. I found that the worst for me was my arm. Not to the same degree as yours, but I had to have it over my head and holding this bar. It would be stiff and sometimes the tech would help me lower it. It was especially stiff on the simulation days. Oh, and the 1st treatment the program crashed and I was asked to stay in that position while they rebooted it. It must have been 20 minutes. At that time, the tech came in and said if I wanted to get up it was okay and they would just reposition me when it was up. But fortunately it came back up right then, she left the room and we finished it. She said it doesn't happen often and if it does it is usually on the 1st one. I was lucky that the moment it was done, I would do a few shoulder circles and swing it gently and it was okay. Physical Therapy is an excellent idea. You do not want to lose range of motion. Glad you are sleepig when you need to because that is one of the best things you can do for your recovery.
Hope the next 12 treatments fly by and you and Joe and darling pups are all home again.
Stef

phoenixrising's picture
phoenixrising
Posts: 1511
Joined: Feb 2007

Good to hear from you and I'm glad you're over half way there. I know it will be good to get this over with and get back to your own home esp with all the heat. Soon it will be over and it will all be a bad dream as you move on with your life. Sorry to hear about your arm but it sounds like you've been given good advice....if only you had the energy right?? You take care and get all the rest you need....no worries :)

hugs
jan

Jeanne D's picture
Jeanne D
Posts: 1867
Joined: Mar 2009

I hadn't heard from you in awhile and was getting concerned if you were doing ok with your rads. Halfway done! That is great! I started getting pink in a few places after my 3rd week. Glad your bloodwork is good! Yes, grease yourself up with Aquaphor! That stuff really helps your skin to stay moist and keeps it from getting tight. I still use it occasionally Moopy. And, I am about 2 months out almost. My radiation oncologist still wants me to use Biafine, so, I use it occasionally too. He said I was still going to be cooking for quite awhile and I needed it.

So sorry about your arm. Like I said, mine laid comfortably almost next to me in a sling like thing. So, it never bothered me. Maybe, you need something stronger, like a prescription for Ibuprofen. But, check with doc first. And Moopy, rads are not a breeze like some said. Or, for me, 37 treatments were NOT!

Just get lots of rest, and, grease yourself like a pig. lol So good to hear from you, you lil punker! Miss you!

Love, Jeanne

Aortus's picture
Aortus
Posts: 967
Joined: Jan 2009

Everybody at Barnes-Jewish/Siteman Cancer Center is absolutely wonderful, but they are so freeking cheap with the skin goop. First it was Walgreens aloe vera, and now we have to buy aloe vera ourselves. They do give Moopster these farty little tubes of Aquaphor whenever she asks, but we both get tired of squeezing it out like toothpaste. That stuff is thick! So tonight we bit the bullet and got the industrial size drum of Aquaphor. Muuuuch easier to use even if we did have to pay for it ourselves.

Christmas Girl's picture
Christmas Girl
Posts: 3688
Joined: Apr 2009

Sheesh. At my rad onc center, they had baskets of the stuff on all the tables in the reception/waiting area. Another huge basket on the registration desk. So, didn't even have to ask for it - just grabbed by the handfuls and shoved into my purse/coat pockets. All forms, too: lotion, creme, gel.

I've seen those drums/jars of Aquaphor in the stores: "industrial size" - indeed.

Kind regards, Susan

P.S.: Your purchase last night does NOT qualify as Retail Therapy, by the way...

RE's picture
RE
Posts: 4638
Joined: Feb 2004

Moopy, what an intlaierest future career path you have laid out for yourself! I am so looking forward to hearing the tones you put out! I am glad you have 17 under your belt, you are getting there! It is great to hear your blood work is all good, happy to hear that indeed! You are almost there, soon we will all be celebrating with you!!!!

Hugs,

RE

Noel's picture
Noel
Posts: 3100
Joined: Apr 2009

OMG Moopy a rock star? Dare we even speak to her? Are we allowed to? LOL

So good to see you posting Moopy. And halfway there! About this time, you will be getting tired of them, but, keep plugging away. And, know that you will finish! And, you will be better and healthier for it!

Love, Noel

Aortus's picture
Aortus
Posts: 967
Joined: Jan 2009

The originator of the "punk rocker" idea was Dr. Taylor herself. She is a very soft-spoken, low key person. Not "just" a radiation oncologist, but a professor of radiation oncology at Washington University Medical School. A very, very kindly woman... but very, very serious too.

So it cracked us both up all the more when Dr. Taylor noted in passing last week that Moopy's spiky black hair made her look like a punk rocker. Moopster would have to be the least punky person I know, with Dr. Taylor right after her. We laughed like crazy people all the way home.

jnl's picture
jnl
Posts: 3873
Joined: May 2009

Great to read that you are halfway done Moopy!

And, now that you are a punker? lol

Hang in there, soon you will be done!

Hugs, Leeza

Christmas Girl's picture
Christmas Girl
Posts: 3688
Joined: Apr 2009

Dr. Taylor sounds a whole lot like my med onc, both professionally and personality-wise (thank you, Lord, for his care). Since she started this whole thing, let's get her involved with the band. Honorary Group Physician?

How nice to know that you both enjoyed a hearty laugh over her comment about Moopster's current hair "style"! :-)

Kind regards, Susan

RE's picture
RE
Posts: 4638
Joined: Feb 2004

Nothing like laughter, sounds like Dr. Taylor is one smart cookie. It put a smile on my face to imagine you two laughing all the home! Hugs to both of you!

RE

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

I have a whole new respect for you all who have completed radiation treatments. I'll be doing 29, can't imagine completing 30+, especially looking as beautiful as you did, Jeanne, on your last treatment day.

I like Noel's "Rocker Babe." How about the BC Rocker Babes? or C.S.N. Rocker Babes? Isn't it supposed to be cool to use initials? Lynn, appreciate your archivist skills and backup singing. You and Pammy aren't going to snooze back there, are you?

My gratitude, always, sisters, for your support and humor.

Christmas Girl's picture
Christmas Girl
Posts: 3688
Joined: Apr 2009

I'm likin' those band names, Moopy Mohawk! As I stated above - it's your band, YOU get to pick the name! :-)

Kind regards, Susan

P.S.: Hang in there, friend. The halfway point can be the most difficult of all, a great big hump to get over.

Jeanne D's picture
Jeanne D
Posts: 1867
Joined: Mar 2009

I am in Susan, but, not sure what I can do in the band :(

sausageroll's picture
sausageroll
Posts: 415
Joined: Dec 2008

I just caught up with this thread. Wonderful that you have done 17 already. You will soon be back home and back to normal. Take it easy.

Christmas Girl's picture
Christmas Girl
Posts: 3688
Joined: Apr 2009

Doesn't matter - take your pick. Moopy Mohawk's band is "virtual" via cyberspace! See my recent post above...

How 'bout: Costumes, Hair & Makeup for you? :-)

Kind regards, Susan

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

Jeanne, girl bands need more than one lead singer. You'd be great. How about it?

Keep in mind, you need a stage name and a rocker hairstyle, at least on stage. What will they be?

Jeanne D's picture
Jeanne D
Posts: 1867
Joined: Mar 2009

Yea Moopy, I think I like that! So, I am in!

A stage name? Rocker hairstyle? Hmmmmmmmm..more pressure! Oh lordie lol

I may need a lil time to think all of that out! But, I WILL do it!

Love you,

Jeanne

Maybe, JJ? That is kind of cool! And, now everyone...Here is JJ! lol
And, I can put in all kind of colors in my hair. Incase you didn't notice, I like color. lol And, if I just blow dry it..it sticks out and up! So, think that will do! Ok, I think I've got it ladies! :)

tasha_111's picture
tasha_111
Posts: 2081
Joined: Oct 2008

I play the Piano Accordion (don't know how it'd fit into a rock band, Oh Hell, It worked for the Pogues!)
Turquoise Tasha!

Hugs Jxxxxxxxxxxxxx

Moopy23's picture
Moopy23
Posts: 1753
Joined: Jan 2009

Welcome, Piano Accordianist! Can you streak your hair with turquoise? I know you just enjoyed your first cut... and, I remember you have those rockin' rice boobs.

tasha_111's picture
tasha_111
Posts: 2081
Joined: Oct 2008

First you have to "Take off thee bra and thap it to thy chest"(Best Yorkshire accent). The band traditionally has an accordionist who cannot read music and they play until the accordionist gets way too drunk and falls off his/her stool!
Hey I qualify! lol
Jxxxxx

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