Semi-Colon Roll Call

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Comments

  • pcs1453
    pcs1453 Member Posts: 75
    My Turn
    Stage 3 for me in Oct. 08. Sigmoid colectomy Nov. 08 produced 2 positive lymph nodes. Currently on Round 5 of chemo. One more to go. My infusion was Tuesday and as I type this my finger tips are numb. I just have to remind myself, it could have been a lot worse and by the end of April I will be done. For all I know, I could be NED already. I hope so.

    Best Wishes to all of you.
  • lisa42
    lisa42 Member Posts: 3,625
    my diagnosis/history
    Hi All,

    -8/07 diagnosed as stage IV
    very low-lying rectal tumor, grown through the bowel wall
    multiple mets to both lungs & liver- considered inoperable
    -9/07-1/08Folfox + Avastin w/good response
    -Feb'08-March'08- chemo/rads for rectal tumor w/super results- rectal tumor disappeared 100%
    - no cancer found in rectum/colon on biopsy during flex sig, so no surgery on rectum
    -May'08- Liver resection
    -8/08- PET scan showed recurrence- 1 lesion in liver & numerous in lungs- back on chemo
    -3/09- CT scan showed liver lesion and hilar lymph gone, but nodules in lungs still no change.
    -4/2/09- had PET scan- it showed "no evidence of any metabolically active metastases"
    I'll be starting soon on "maintenance" treatment to keep it from growing or becoming active again.

    I live in Fallbrook, CA

    Lisa
  • johnnybegood
    johnnybegood Member Posts: 1,117
    pcs1453 said:

    My Turn
    Stage 3 for me in Oct. 08. Sigmoid colectomy Nov. 08 produced 2 positive lymph nodes. Currently on Round 5 of chemo. One more to go. My infusion was Tuesday and as I type this my finger tips are numb. I just have to remind myself, it could have been a lot worse and by the end of April I will be done. For all I know, I could be NED already. I hope so.

    Best Wishes to all of you.

    present
    dx sept 08 stage 3 rectal cancer.put in hospital on dec.5 after having 5 weeks of xeloda and radiation.it really did a number on me got down to 94 lbs,got my strengh back and had my tumor removed and a temporary iliostomy on dec 30,08.i had my iliostomy reversal on feb.4 09 .had 10 nodes removed 5 showed up bad.currently doing 12 treatments of good ole oxy and 5fu.got 2 down and 10 more to go.its been rough but i think i can...i think i can....i know i can Godbless....johnnybegood
  • Kanort
    Kanort Member Posts: 1,272
    Round Rock!!
    Kay, here, from Round Rock, Texas....outside of Austin. A huge round rock resides in a small creek in the center of town...thus...Round Rock!

    Diagnosed in 2003 with stage 3 sigmoid colon cancer. Given Folfox before it was even approved for stage 3...135mg! NED since completing chemo in the summer of 2004.

    Hugs to all,

    Kay
  • Kathleen808
    Kathleen808 Member Posts: 2,342
    kailua
    Hi
    My husband **** was diagnosed 1/12/09 after a routine colonoscopy.
    Age 51, Stage IIIc, 7/17 nodes
    1/27/09 - 75% of colon removed, tumor was in the cecum (7 cm of small intestines removed too)
    Started Folfox 6 on March 09. 2 out of 12 rounds done.

    We live in Kailua, Hawaii and love it!

    So good to see everyone checking in. :)
    Aloha,
    Kathleen
  • Kathleen808
    Kathleen808 Member Posts: 2,342

    Stage 4 here dx 9/06. Liver
    Stage 4 here dx 9/06. Liver surgery, 2 lung surgeries, Folfox, I am now suffering emmmm... "recovering" at home from the second lung surgery. Over all things went OK. Surgery Monday and a tough first day... a horrible experience Tuesday with a couple collapsed lungs and real struggles. I actually had the Code "You are going to die" team come in to fix me up..(It actually looks more dramatic on TV and not from a patients viewpoint.) Of course then, because it’s a teaching hospital, all day people came in and poked and proded and bleed me when their class was out to add to their resume of experiences as a Stanford med student. Seriously, I kid around, but this time I was scared to death that morning... I wish I was smart and witty but all I could focus on was a poster made by the science dept right in front of me and just the good memories there saved me as much as the ventilators and drugs given. It truly is amazing how a little kindness shown can really matter. Right now I just hurt... lungs, breathing, back, side... but it will get better. I can not wait to get back to work.



    On the good news side, there was only one met that he could find by palpating the lung. He did have to do the open procedure which was OK with me. Next big question coming up the 30th is follow up chemo. I have faced this before and was told that with lung mets, there really isn't data out there and I still have a below 1 CEA and NED. I will ask more later about this.

    Thanks all

    Chip

    thinking of you
    Wow Chip! I will keep you in my prayers. So sorry you are hurting.
    Aloha,
    Kathleen
  • Joy1216
    Joy1216 Member Posts: 290
    Poster Child
    Diagnosed 03/02/06 after a routine colonoscopy (my first). Colon resection 03/22/06. Stage 1 (or as my gastroenterologist says, I am the poster child for early detection). Still NED three years later.

    We live in Lee's Summit, Missouri, which is a suburb of Kansas City.
    Joy
  • Glv49
    Glv49 Member Posts: 206
    DX 7/29/03 StageIV,
    DX 7/29/03 StageIV, colectomy, radiation, chemo 5FU, oxillaplatin, leucovorin, colostomy reversal, port removed... NED since 2004!

    Gail
  • Glv49
    Glv49 Member Posts: 206
    Glv49 said:

    DX 7/29/03 StageIV,
    DX 7/29/03 StageIV, colectomy, radiation, chemo 5FU, oxillaplatin, leucovorin, colostomy reversal, port removed... NED since 2004!

    Gail

    Forgot to put where I am
    Forgot to put where I am from...lol.. Pittsburgh, PA

    Gail
  • dorookie
    dorookie Member Posts: 1,731
    Im Here
    Live in a small town about an hour outside of Phoenix called Coolidge.

    May 07 DX at age 38, had some bleeding, did a colonoscopy and the doc called me the next day to tell me I had cancer, within two weeks I had seen a colon doc and a ONC and has surgery to remove part of colon, found out it was stage 3 with some lymph nodes involved. Started chemo in July 07 for 3 months, then 6 weeks of radiation and oral chemo (xeloda) then 3 more months of Chemo. Finished in late Feb 08, PET scan revealed no cancer anywher so I was considered NED. Had my 3 month check up in June, cat scan found somethingin lung, did a PET scan it didnt lite up so was again cleared. Next 3 month (Oct 08) check up again cat scan found something in lung, this time the PET scan lite up. Had a biopsy to see if it was colon cancer or another primary cancer, Nov 12 08 was told it was colon cancer, Nov 18 had surgery to remove it, got great margins and the path report said the margins were clear no cancer. Dec 08, started Xeloda and I am starting my 6th round today, two more to go after this one.

    I have to be honest, I am totally scared to death about it coming back. But I pray and try to stay positive. I love reading so many good stories were people are NED and staying that way. I pray that this time I will stay NED as well. I also always include everyone here in my prayers, this board has been a godsend to me and I thank everyone of you from my heart for being there for me on so many occasions.

    God Bless
    Beth
  • jenben59
    jenben59 Member Posts: 136
    kimby said:

    NW Ohio
    I'm 10 miles from the Michigan border and 30 miles from the Indiana border outside a small town. Very rural and flat, but close to family and good people. Not pretty or fancy, but nice.

    Where do you live?

    Kimby

    I was born many years ago in Cleveland, Ohio
    I was born many years ago in Cleveland, Ohio but as youngsters lived in Strongsvilee then parents moved us to Bay Village, Ohio. I've lived in Texas for quite some time now and it turns out one of the ONC's gew up in the Cleveland area. Rural areas are quite peaceful and I enjoy them.
  • lizbiz
    lizbiz Member Posts: 120
    dorookie said:

    Im Here
    Live in a small town about an hour outside of Phoenix called Coolidge.

    May 07 DX at age 38, had some bleeding, did a colonoscopy and the doc called me the next day to tell me I had cancer, within two weeks I had seen a colon doc and a ONC and has surgery to remove part of colon, found out it was stage 3 with some lymph nodes involved. Started chemo in July 07 for 3 months, then 6 weeks of radiation and oral chemo (xeloda) then 3 more months of Chemo. Finished in late Feb 08, PET scan revealed no cancer anywher so I was considered NED. Had my 3 month check up in June, cat scan found somethingin lung, did a PET scan it didnt lite up so was again cleared. Next 3 month (Oct 08) check up again cat scan found something in lung, this time the PET scan lite up. Had a biopsy to see if it was colon cancer or another primary cancer, Nov 12 08 was told it was colon cancer, Nov 18 had surgery to remove it, got great margins and the path report said the margins were clear no cancer. Dec 08, started Xeloda and I am starting my 6th round today, two more to go after this one.

    I have to be honest, I am totally scared to death about it coming back. But I pray and try to stay positive. I love reading so many good stories were people are NED and staying that way. I pray that this time I will stay NED as well. I also always include everyone here in my prayers, this board has been a godsend to me and I thank everyone of you from my heart for being there for me on so many occasions.

    God Bless
    Beth

    Diagnosed...
    Stage 3 in May 2008 at the age of 32, 2 feet of colon removed, 9 lymph nodes, 1 positive

    Underwent 12 rounds of FOLFOX and found out cancer had spread despite that.

    Now: Stage 4 as of January 2009, 1 liver met, 2 intra-abdominal mets, all surgically resectable

    Currently undergoing FOLFIRI+Avastin, will have reconnection/resection surgery in June 2009 after my 6th treatment

    CT/PET showed all stable after my 3rd FOLFIRI treatment with some very slight shrinkage of liver met.

    I live in New Hampton, NH and go to Mass General for my treatment.

    Hugs and Prayers to all,
    Elizabeth
  • KathiM
    KathiM Member Posts: 8,028
    I got the 2-fer....
    I live in Southern California. Dx stage III rectal ca 12/2004. PET scan found unrelated breast cancer...could someone PLEASE remove me from the list I managed to get on twice!!!!!

    Last treatment was rads for breast cancer 7/2006. NED on both ever since. Actually, NERD on rectal (after removal of rectum and sig colon, J-pouch fashioned from descending colon) 5/2005.

    Hugs, Kathi

    P.S. Hans drove today (without my knowlege...sigh...scared the PEE out of me...demanded the car keys, felt like I was talking to a kid!!!!). But, he is doing better...must be all those grand thoughts from you all!!!
  • tkd3g
    tkd3g Member Posts: 767
    Long Island, New York
    Hi all. Wow, it's been a long time. This site is like an old friend, always there when you need them.

    Stage 3 Rectal CA.
    Diagnosed March 04
    6 weeks Chemoradiation ( 5Fu )
    Surgery - 15 inches of colon, 95% of rectum
    Follow up Chemo - Oxy until I decided the chemo would kill me.( 3 out of 12 treatments) Switched back to 5FU to finish.
    Getting ready to do the Happy Naked Dance for the 5th time in June ( NED 4.10years )

    Barb :)
  • crazylady
    crazylady Member Posts: 543
    Great Post!
    Hi Everyone,

    Dxed 3/04 stage 2 rectal cancer at age 46. Had chemo/radiation then surgery 6/04 resulting in permanent colostomy, then 6 months of mop up chemo.
    Mets to right lung 10/05. Since then have had surgery on right and left lung and numerous rounds of chemo. I've actually lost count. Currently have mets in both lungs and am on xeloda and avastin. Scans last month showed that everything was stable.

    I live in the San Fernando Valley in Southern California.

    Take care and hope you're all having a great weekend!
    Jamie
  • VickiCO
    VickiCO Member Posts: 917
    KathiM said:

    I got the 2-fer....
    I live in Southern California. Dx stage III rectal ca 12/2004. PET scan found unrelated breast cancer...could someone PLEASE remove me from the list I managed to get on twice!!!!!

    Last treatment was rads for breast cancer 7/2006. NED on both ever since. Actually, NERD on rectal (after removal of rectum and sig colon, J-pouch fashioned from descending colon) 5/2005.

    Hugs, Kathi

    P.S. Hans drove today (without my knowlege...sigh...scared the PEE out of me...demanded the car keys, felt like I was talking to a kid!!!!). But, he is doing better...must be all those grand thoughts from you all!!!

    Kathi
    I am on that list also. Back in 1994 I was DX'd stage 1 cervical cancer, and when they were doing the surgical work-up, discovered uterine cancer, also stage 1. I was told they were two primaries, coincidence on showing up at the same time. Surgery for both, no rads or chemo. Fine after about 6 weeks.

    When the colon cancer showed up now, the first thought was it somehow stemmed from the uterine cancer. Nope - my 3rd primary. I want off the list also!

    Vicki
  • scouty
    scouty Member Posts: 1,965
    tkd3g said:

    Long Island, New York
    Hi all. Wow, it's been a long time. This site is like an old friend, always there when you need them.

    Stage 3 Rectal CA.
    Diagnosed March 04
    6 weeks Chemoradiation ( 5Fu )
    Surgery - 15 inches of colon, 95% of rectum
    Follow up Chemo - Oxy until I decided the chemo would kill me.( 3 out of 12 treatments) Switched back to 5FU to finish.
    Getting ready to do the Happy Naked Dance for the 5th time in June ( NED 4.10years )

    Barb :)

    BARB!!!!!!!!!!!!
    So wonderful to hear from you girlfriend. Hope you are getting the pool ready for the thongs and speedos!!!

    Much love to you,

    Lisa P.
  • scouty
    scouty Member Posts: 1,965
    crazylady said:

    Great Post!
    Hi Everyone,

    Dxed 3/04 stage 2 rectal cancer at age 46. Had chemo/radiation then surgery 6/04 resulting in permanent colostomy, then 6 months of mop up chemo.
    Mets to right lung 10/05. Since then have had surgery on right and left lung and numerous rounds of chemo. I've actually lost count. Currently have mets in both lungs and am on xeloda and avastin. Scans last month showed that everything was stable.

    I live in the San Fernando Valley in Southern California.

    Take care and hope you're all having a great weekend!
    Jamie

    JAMIE!!!
    Durn, serious hugs to you!!!

    I see you are still giving the beast the what for!!! Keep on keeping one and thanks so much for checking in.

    Love, Lisa P.
  • spongebob
    spongebob Member Posts: 2,565
    jenben59 said:

    I was born many years ago in Cleveland, Ohio
    I was born many years ago in Cleveland, Ohio but as youngsters lived in Strongsvilee then parents moved us to Bay Village, Ohio. I've lived in Texas for quite some time now and it turns out one of the ONC's gew up in the Cleveland area. Rural areas are quite peaceful and I enjoy them.

    CLEVELAND ROCKS
    So, jenben, you lived in "the Village"? I grew up in North Olmsted!
  • spongebob
    spongebob Member Posts: 2,565
    tkd3g said:

    Long Island, New York
    Hi all. Wow, it's been a long time. This site is like an old friend, always there when you need them.

    Stage 3 Rectal CA.
    Diagnosed March 04
    6 weeks Chemoradiation ( 5Fu )
    Surgery - 15 inches of colon, 95% of rectum
    Follow up Chemo - Oxy until I decided the chemo would kill me.( 3 out of 12 treatments) Switched back to 5FU to finish.
    Getting ready to do the Happy Naked Dance for the 5th time in June ( NED 4.10years )

    Barb :)

    SHRINKAGE!
    Hey there! How the heck are you, Elaine?

    Too long!