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Got some people that need to check in.....worries us when we don't hear from ya......

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

.......OK, you know who you are...understandable that sometimes are just not good times but we wanted to let the ones that are missing know that we still hold you in our hearts and prayers and thoughts in hopes that all is well and that God has wrapped His comforting arms around you all.....check back in when you can ......God bless all of you.....

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VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I haven't posted for a few days...but not because things are bad. Actually, I have good news - surgeon released me, meds have made my depression go away, I have regained control of my bowels, I am working again, etc. I do start chemo again next week, but it's just mop-up and not so bad - only 4 times.

Here's my reason...Guilt. Here I am only 5 months out from DX and already my docs are saying I have beat the beast. I know we can't be totally sure for years, but I currently have no known cancer left in my body. Then I read about others who are struggling so much, and I feel guilty. I know, I know, but it's how I am I guess. So I don't respond because I don't know what to say "Sorry you are hurting, BTW - I am fine" just doesn't seem right.

Vicki

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I understand completely but isn't that what we all strive for. To see you in here means that you have done the job that all of us go through and you have come out the other side unscathed so far, but you did your time in the field of battle. Albeit not as long as most but none the less the same battle. You should be proud to have beaten him down , that gives others hope in knowing that there are a lot of people in here showing that it is beatable. In here you give hope to the people that are still holding on and being pulled through. It shows them that the journey is not all for naught. You are a shining star for people, especially me. It shows me that I hopefully will do the same. By the way.....My needle comes out tomorrow and I am done.....hopefully forever. It may not seem right but thats what we fight for and everyone that beats it down deserves every minute of freedom. You have gone through more in the last 8 months than most of the population will go through in their lifetime. Don't feel guilty about that. You have earned the right to be in here. With the rest of us Semi-colons....remember you still are and always will be a "Semi-Colon".....Congratulations sweetie....you've earned it...and I couldn't be happier ....God Bless ya...

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I just told hubby I love you, and he agreed! LOL! Thank you. I needed that talking to.

Vicki

Kathleen808's picture
Kathleen808
Posts: 2361
Joined: Jan 2009

Hi Vicki,
You have been through so much and fought so hard. That is wonderful news that your docs have shared with you! Celebrate!
Aloha,
Kathleen

CherylHutch's picture
CherylHutch
Posts: 1399
Joined: Apr 2007

I'm chiming in here with Buzzard, Vicki! Don't you dare desert us now that you may have beaten the beast :)

I'm hoping that there are tons and tons of people who fought the battle, won and have moved on with their lives and haven't come back to post because their offline lives are just so full and busy. That is my sincere wish for everyone who takes on the battle... but for those of us who are still fighting it and haven't been given a clean bill of "NED", then it would be fabulous if all you "NEDDERS", no matter what stage you were DX'd with.. could come back and remind the rest of us that there are more NEDDERS than we will ever realize. That gives all of us hope that we, too, can beat the monster... be it a couple of months, or a couple of years... or even if it means being in treatment for 10 years before we get our "Certificate Of NED" :)

So... this is to everyone who is fighting the monster... when you get your Certificate, go out, rejoice, reclaim your monster-free lives... but do come back and keep waving those certificates at the rest of us so we know they are attainable :)

Hugggggs,

CHeryl

johnnybegood's picture
johnnybegood
Posts: 1122
Joined: Oct 2008

im sorry you feel guilty but please dont.its people like you who are NED and on the other side that keeps us going.if it werent for all these people i would be going nuts.i have only got 1 down so please come back it helps so much and congrats.Godbless.....johnnybegood

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

You owe it to the newbies to come back and offer the hope that you have! You remember how scared you were when you were first diagnosed. You remember the belief that you were going to die and soonest, and if you survived you were going to have an ostomy, etc.... You persevered through the radiation and chemo, you had the surgery and you got GREAT news! You have worked hard to be the veteran that you are and should be very proud! Use your experience as a lesson for all! Pass it forward, girl! You are a champion and should be proud!
mary

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I know...I had a momentary brain fart. I will continue as long as there are friends here who need me. Count my blessings and share my story. It IS possible to beat the beast!

Vicki

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

It happens to me at 2:45 today..CST........I will be back on then to give the update.....God Bless all of you.......

angelsbaby's picture
angelsbaby
Posts: 1171
Joined: May 2008

I think that is awsome, NED is what everyone hopes for

changing2
Posts: 118
Joined: Jul 2008

Yes, I'm still here in the background most days just to keep up with everyone and to know how to pray!My prayers continues for Angelbaby and others. As for me well, I stopped all treatments in Jan. as the Vectibix failed. Over the course of 2 years I've done everything offered. I've done every treatment plus repeated some in different combinations.
Good news is...that although my CEA is steadily rising etc I feel good!I get tired more easily but yesterday I tilted the garden for a few hours and that's a huge area!
Next week I plan on leaving for the Carribean and who knows what from there:) I have a great faith in my Redeemer who paid my ticket into heaven and someday I'll be there to cash in on His gift but for now I'm living life to the fullest. Who knows, maybe I'll go into remission....all I know is I'm not going "home" one day sooner than my Creator has planned!
Take care and I'll continue to pray for us all. I thank you all for your thoughts and prayers as well!

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

God knows whats in store for you and you do as well to be in the mindset that you are in...Remission would be great but eternal life is the ultimate. Yes, He did pay all of us that believe in Him a free pass to Eternity and I am sure that one day I will see you there. Live your life here on earth to the utmost then spend eternity with everyone that has passed away before you. We will all meet there someday where there will be no sickness or health problems...just peace and tranquility....God Bless you.......

jams67's picture
jams67
Posts: 927
Joined: May 2006

After being NED stage iv, for 3 years and 7 mo., I don't always respond when I check in with you guys,mostly lurking, but I do pray for all of you every day, and I know it will help. Someday we will take that trip to heaven, but in October I plan to go to Key West and hang out with other semi-colons for CP7. We have a great time and don't dwell on the negative side very much. It is a great time for all, and we look forward to meeting the people we've gotten to know on CSN. Some of them are only semi-normal, just kidding, and some are still in treatment. But we all do as much as we can to live life to the fullest.
Looking forward...
Jo Ann

Colon Palooza 7 will be in Key West, Florida October 21st-25th.

We have gotten a block of rooms at the Casa Marina Resort with some great rates! If you click on the link below you can check out the hotel and if you click on guest rooms each of the different kinds of rooms. The rates are guaranteed if you want to come early or stay later, just tell them when you make your reservation.

Island Vista rooms - $159

Ocean View rooms - $199

One bedroom suites (non view) - $225 (by far the best deal I could find at any of the hotels in Key West)

One bedroom suites (ocean view) - $319

http://www.casamarinaresort.com/

The resort opened on New Years Eve 1920 and every US president has visited or stayed at the resort , with the exception of George W Bush. It has 2 outdoor pools, the island’s largest private beach, jet skis, parasailing, Hobie Cats, snorkeling, scuba diving, deep sea fishing and much more. They offer beach massages and have 24 hour room service too.

The planning for the weekend agenda is still in the works but some of our options are: lunch on a private island, sunset cruises, Ernest Hemingway and Harry Truman museums, the Aquarium, the National Park (Suzann can get another stamp), Fort Jefferson, train and trolley tours and or course the free sunset concerts on Mallory Square and the nightlife of Duval Street. Motor Scooters are my preferred mode of transportation while there since everything is so close but bicycles would do too.

For those of you not familiar with the Colon Paloozas, here’s a quick history and hopefully others will post their perceptions and experiences to tell you more (visuals and more info can be accessed at : http://colonpalooza.com/). In 2004, some on this board that had become “friends in the battle” decided to plan something where those that were able could meet face to face, hug to hug. 5 years later we are still having them and still meeting and hugging. They are not anything really formal (a bunch of semi-colons could never pull that off) with a few events planned if you are interested. You are welcome to do your own thing/things too. It is a celebration of life and lives and there could be a tear or two shed as we remember friends, soon to be followed by fun and laughter. Over the years, dozens have attended and good times were had by all. I am especially appreciative of the time we were able to spend with “those who have gone on before us” (Nanuk, Kerry, and Jana). I actually feel like they are right there with me while we are having our fun and think they would be disappointed if we stopped having the events. I know I would if the shoes were reversed.

The theme for this year’s Palooza is “INCREASE YOU LAUGH EXPECTANCY ATTEND CP7”. And look for more posts as there is more information to share. If you have any personal request, ideas of what to do, or questions about the event, send me an email here.

There are only a limited number of rooms and if we need more I can GUARANTEE YOU, the rates will be higher. To reserve your room; call 1-877-597-9696, you will need to tell them you are with the Colon Palooza 7 group to get the rates (the weekend rate for the Island Vista rooms are already up to $229 today). If you really want to come and need less expensive accommodations, send me an email, there are places but not ones where I could get a block of rooms. The weekend we are there is the beginning of a 2 week Mardi Gras like festival (we’ll be there the tranquil part of the festival I’m told) so the rates will probably only go up over time.

The Colon Paloozas are open to any and everyone that “experiences colorectal cancer” whether you are a “newbie” or an “old timer”. Bring whomever you want to share a very special and enlightening time with, the more the merrier. The mix is what makes them so special so those of you new to your journey, come on down and meet some of your new and “old” friends from the board.

You can fly directly into Key West. Most of the airlines now have the smaller jets that can land there so rarely do you have to take a “puddle jumper”. Of course you would fly into Miami, rent a car and drive scenic 3 hours down.

That’s it for this message, email me if you have any questions etc. Hope to see you there!!

Lisa P.

dianetavegia's picture
dianetavegia
Posts: 1953
Joined: Mar 2009

[Quote]I have a great faith in my Redeemer who paid my ticket into heaven and someday I'll be there to cash in on His gift but for now I'm living life to the fullest. Who knows, maybe I'll go into remission....all I know is I'm not going "home" one day sooner than my Creator has planned![End Quote]

Amazing testimony of FAITH! God is good and I couldn't agree with you more! Praise Jesus!

Diane

angelsbaby's picture
angelsbaby
Posts: 1171
Joined: May 2008

have a good time on your vacation you deserve it.

michelle

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

What a great attitude! I know it will not be one day sooner than God intends for it to be. I hope and pray you'll get to go into remission, but you definitely have the right Godly- attitude about it all. Enjoy your trip to the Carribean!

Lisa

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

Don't you dare feel guilty! You are one to be looked up too, and are so inspiring to me, a horribly frightened newbie, who had hopelessness and fear when first dx'd, and then I came to this board too see if there was hope for it, and since finding this board and all you special NED'ers and special Non-NED'ers, no matter what you are, and how hard you/we/all are fighting to get there to NED, gives me a reason to fight the beasts a$$!!!!

Please note you are a reason that people have a hope of living with this :)

Hugggsss to you and congrats are getting rid of this stupid disease, it's what we want for all of us, keep inspiring!!

~Donna

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I am over it...sort of! I will definitely remain here. I have a story to tell, especially to newbies. I was so scared when I was DX'd, and I did have an awfully hard time with radiation/chemo. I have to hold out hope that sometimes, you win!

Thanks for the kind words. Hang in there.

Vicki

Sandi1's picture
Sandi1
Posts: 278
Joined: Aug 2008

Hi Everyone,
Just wanted to update everyone - my husband in currently as I write this on his last chemo. He will get a month off and then do his scans and then will do maintenance chemo for the rest of his life. He has decided to go with the IV drip and his pump instead of the pill. The oncologist told him that the pill makes side effects worse and he just can't handle that right now. The IV and pump seem to work good for him and it does not bother him to have it. Anyway, his CEA is down to 1 from 17 and he gained a few pounds and is hold steady at that weight. Slowly, we are starting to do more things and he is regaining his strength. On his month off we will be building him back up (he does have anemia - which started with the last chemo) so we will be eating lots of dark green leafy veggies to build him up whether he likes it or not. We have travelled alot this year - we went to New Hampshire skiing, we went to Canada to visit my family (we always drive there) and we will be going back to Canada for Easter. I also told my husband, that I don't care if my work fires me I will take time off to be with him so we can travel, I always held back so I could have time off at Christmas - but it's not worth it - I want to be with him.
So, just wanted to update everyone on Mike's progress and I'm sure that things are going to work out well for us. God bless everyone of you that prayed for us during this horrible ordeal, and I keep everyone of you in my thoughts and prayers.
Sandi

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

Sandi, sounds like you and Mike are making the best of your situation! You are so right about using the time to travel and enjoy your lives now, rather than waiting for Christmas or whatever! Live in today, you won't regret it tomorrow!
mary

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

I'm starting to get used to my pump after only 3 treatments, they really do start becoming like a "buddy" to you LOL..

I'm glad to hear about your hubby getting better! I am also anemic, been like that all of my life. I was never able to give blood, wish I could! it scares me to have blood troubles with cancer.

Good too see you, and thanks for the update!

Hugsss!
~Donna

lisa42's picture
lisa42
Posts: 3661
Joined: Jul 2008

Glad to hear he's down to his last chemo treatment before scans and "maintenance".

That's the point I'm coming to, too- but don't actually know if it will be my last "regular" chemo- depends upon what Tuesday's scan shows.

Hope Mike continues to do well.

Blessings,
Lisa

trainer's picture
trainer
Posts: 242
Joined: Sep 2008

Mike here, just been busy, but I've been lurking. My 3-month PET after surgery was NED, which I'd already reported. The ONC is a very cautious doctor, which I appreciate. The PET showed something in my ear, my lung and my liver. The ear concern was nothing, the specialist said probably just some water in the ear. The lung was scar tissue from a serious bout with pneumonia when I fell asleep on the deck of a boat in Lake Michigan 30 years ago and the liver concern was fatty liver disease, which I already knew about. So I continue my daily prayers for all and for my own cancer treatment result. I continue to cheerfully harass people to get a screening and once people who know me understand that I got it early, they are more inclined to listen and act on it. So far, about 50+ have either gotten one or said they will. Unfortunately, two friends now have cancer; one is ovarian and the other colon cancer.

i really do feel like I'm in the company of great and good giants when I lurk about the site and see what's developed. I remain in awe of all of you who are not taking the cancer lying down. Mary and I are looking forward to CP7 in Key West. Hope to see you all there.

changing2
Posts: 118
Joined: Jul 2008

Thanks for all the encouraging notes:) I should be leaving Tuesday for the Carribean! Praying for you all... stay well and I'll be checking in here and there. Hope we still hear from some others that are still missing. Jcavanugh? (sp?)

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

special prayer tonight for you .......have a great trip and let us know how it went....God Bless and be safe.........

Madre's picture
Madre
Posts: 124
Joined: Apr 2008

I miss a lot of the familiar names I was used to seeing when I first joined last year. My prayers go out to all the new names that have joined. This site has been a huge support for me and when I was home for 7 months during treatment I came on here everyday faithfully. I ended treatment on October 22, 2008, went back to work Nov 3, 2008, got downsized on January 28, 2009 and now I am looking for a new job, being a mom to my kids, a wife to my husband and helping to plan my nephew-son (I raised him for 9 years) wedding this August. I am curretnly NED and go for my 1 year followup colonoscopy in May. Can't belive it's been a year since this whole nightmere started. But I met all of you and I am greatful to be alive. My dad has just recently been diagnosed with lung cancer and I have urged him and his wife to go on this site. Although I've checked out some of the other links and the semi colons are the best. Happy Spring!!

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

welcome back and thank you for posting how well you are doing! Wedding planning is so much fun!
mary

sheri22
Posts: 278
Joined: Jan 2009

Just to post a quick note to you TO LET YOU KNOW i GOT MY SCAN RESULTS LUNGS TUMOR SHRANK FROM 15 CENT TO 11 CENT AND PELVIC FROM 6.7CENT TO 5.7 CENT AND THE ca BLOOD TEST IS FROM
125 TO 40 JUST WANT EVERYBODY TO KNOW THAT PRAYERS DO HELP I do keep you all in my prayers
I hope to see more miracles posted if this keeps going good I can handle the chemo every 2 weeks
Sher22

Shayenne's picture
Shayenne
Posts: 2370
Joined: Jan 2009

So glad to hear about your good news Sheri! prayers do help, and I pray for you all everyday! I hope more good news for you as well always!Always good to hear encouraging news from anyone!

Hugsss!
~Donna

sheri22
Posts: 278
Joined: Jan 2009

Donna
I think you are right behind me on the chemo , did you get a scan yet or any tests I keep wondering about you too hopefully soon you will be geting some good news too you desrve good news
HUGGS SHERI22

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Sheri22,
That is great news.......isn't God wonderful....I hope miracles rain down for you....Keep smiling...God Bless you.....

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

Need to check in here guys asap.......

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