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Nausea already??

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Day two of the chemo pump (5FU) and I am puking already? Is this normal? The docs and nurses told me I probably wouldn't see any adverse symptoms for a couple of weeks. And I am one who rarely gets nausea for any reason, so this sucks. I have Compazine, and it helped some last night.

I don't want to be a whiner, just wondering if I am facing six weeks of this.

Vicki

claud1951's picture
claud1951
Posts: 429
Joined: Jun 2007

Vicki,

Since we are all different (I'm sure you are getting tired of hearing that already!), you just don't know what your effects will be.

My stomach "rolled" the first couple of times. Once I knew my tummy wasn't feeling right, I took the pills and I ended up not vomiting. All in all, for the 12 rounds (I was on chemo) I think I might have vomited twice.

How are you this morning? Is the vomiting lasting? Always let your onc nurses/doctor know if you think it's lasting too long. They want you to call with any questions or concerns.

We're with you every step of the way!

Claudia
Stage 3, colon cancer.
NED since Dec 07

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I am still nauseous this morning, but I will head it off with meds before it gets bad. And I figured out that carbonation helps as well.
Thanks for listening. I go for my radiation in about an hour and I will talk to them.
Vicki

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

BUT that is me...I look at a spinning wheel and my head spins...lol!

I found that smaller, more frequent meals, always having something in my tummy, really helped.

Also, as you have already found...stuff with fizz. Interestingly, Coke (regular, NOT diet) REALLY helped!!! Better than 7-up.

Ginger ale. Candied ginger (it's really strong, but I nibbled at it). Scalloped potatoes.

It was normal for me. But, I would still ask today.

I STILL have your back, dearheart!

Hugs, Kathi

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Kathi, why not diet?

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

I tried diet...didn't work as well...

I didn't have as much success with Pepsi...the formulation is a bit different, I guess. Since my success with Coke during chemo, I now use it anytime my tummy is a bit off...like on my trip back from The Netherlands last time with a case of raging stomach flu....

Hugs, Kathi

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

not going to get any effects for a couple of weeks? who are they kidding?! Probably just hoping to head any off with positive reinforcement! Nausea was a biggie for me. Definitely helps if you have SOMETHING in your tummy at all times. I kept a dish of saltines with peanut butter on them next to my bed at all times. I didn't do carbonation cause i don't ever drink soda, didn't keep it around. Mint tea helped me tremendously. However, even with all that, i needed better meds. When I got on the Emend and Decadron combo, I finally didn't have nausea or vomiting anymore. Towards the end, I needed to add phenergan on days 1 and 2, but that was it! Keep on it and talk to your onc and nurses to get it under control. Nausea is a biggie that tends to keep people from wanting to continue chemo. Vomiting is even worse, as not only do you not want to eat anything, but you get dehydrated, etc. Hang in there and keep us posted.
mary

chynabear's picture
chynabear
Posts: 483
Joined: Jul 2005

My team stressed to treat symptoms and side effects the second I started having them... ie, if I had nausea, take anti-nausea med immediately; if I had a loose stool, take immodium at first sign; rinse with mouth-sore mouthwash every day before I got mouth sores; etc.

I can't say I felt great during chemo, but I only had a few times where I actually puked. I had a first and second line of defense meds for nausea. First was for mild nausea and second for heavy nausea. If first didn't work, take second. They worked for me.

If you have something and it doesn't work.. request something else. Just as nobody is going to experience this exactly the same, meds don't work exactly the same on everyone. Also, each of my treatments wasn't exactly the same. There were a few that I stayed in bed for days and a few that I was up and at it again without really missing a beat. Don't get horribly discouraged. It isn't fun, but you can do this. If your side effects are really bad, the doctors need to know this as well so that they may reduce or change your treatments.

As others have said, find foods that work for you. Things aren't going to taste the same during chemo and you may have to get creative.

I hope you feel better soon!

Tricia

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I did talk to the techs this morning. They said they meant the serious side effects from radiation probably won't start for a while...nausea often is right out the gate - which is why I was given the Compazine before I even started chemo. They also stressed eating several small meals.

I think I've headed off the worst of it today. I took the Compazine right away, and I have been nibbling all morning. I sure was grouchy for the rads, though. An hour and a half round trip in the car, while feeling lousy, for a 5 minute treatment. And it's cold an snowy today...there, I have ALL my whines out! LOL!

Thanks to all. I will get tougher. Vicki

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

Don't try to be tough, this sucks and you deserve to not be happy about it! Whine whenever necessary. I know I hate having to get out of my home zone when i'm not feeling well, would hate to have to make the trip to get radiation while feeling chemo ick! Hope you are feeling better soon.
mary

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Never mind, take care of YOU!

I always carried a few quart-sized ziploc bags with me, just in case I felt sick in the car...just that knowledge was a comfort.

Bundle up! You don't need to be cold on top of the reaction to the chemo. Be prepared, you may experience cold sensitivity...are you getting carboplatin as well as the 5FU? I can't remember what you said (darn chemo brain...lol...even 4 years later!!!!) If so, all of the 'platins' are know for causing it.

Also a metalic taste to everything...I drank Propel instead of water because it's got a strong taste that mask it....

I agree with all, the best thing to do is head all symptoms off at the pass...before they get too bad...

I had carboplatin (it really has platinum in it!). I always figured that my body was worth more than normal people's because of the soaring price of platinum....rofl!

Hugs, Kathi

BTW, regarding the radiation....at the first sign of a redness...sort of a sunburn...ask your doctor for something to help....figure 2 days from your notice till full effect....I used aquaphor, A&D ointment, and cornstarch...(my radiation was given with me laying on my belly, so the point of entry was my backside, which gets the effects the worst...)

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

As far as I know, I am only getting 5FU in my pump. My daughter just called to tell me her tricks. She just went through her 3rd rough pregnancy (dehydration, nausea, hospitalization, etc.) She developed a way to hook a plastic grocery bag to the bottom of the steering wheel, so she could be prepared when driving down the road! She also swears by the sea bands on the wrist. We'll see.

As for the cold sensitivity, I am not really susceptible (yet) It was only 25 degrees this morning - anyone would have been cold! I chose an early morning radiation time, because I thought then I could get on with my day. Now I am glad, because the nausea seems to get worse midday.

Mary - thank you. I am normally the strong one in the family - hubby calls me 'Pioneer Woman' because I always have to do it for myself. But this has knocked me back some. I think I will wallow today. Oh, and they told me I don't get my weekend off from radiation - because of the holidays next week, we are doing Sun-Wed. Wahhh! At least Dick can drive me Sunday!

Vicki

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

my comment about the radiation....

BIG hugs!!!!

Kathi

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

yes, they did warn me about the 'burn'. I am also on my tummy for this. I swear I can feel it (I know, I am psyching myself out.) They told me to keep Desitin handy. I also have Lidocaine & hydrocortisone for my hemorrhoids and plan to use that as well.

Like I said...this sucks. But then I remember that we can be cured. I have lost family members to other cancers.

V

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

Just remember this is all temporary....and the goal is getting on with your life!!!

I may have said this before, but it REALLY helped me thru...

Pick a place to go as a reward after treatment. I scheduled a 3-day spa trip to a place I had gone before. So I spent my lowest moments planning and visualizing my trip. As it turned out, it had to be postponed because of my second, breast cancer diagnosis...but after that, one year later, I went!!!

Hugs, Kathi

taraHK
Posts: 1961
Joined: Aug 2003

Don't be afraid to ask to try different anti-nausea meds. There are a LOT out there. I experimented with several before I found what worked best for me (Emend). Still have some nausea, but no vomiting. I also swear by peppermint tea, ginger tea, and nibbling on crackers, small frequent meals. Good luck!
Tara

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

The eating small meals, and some occasional carbonated drinks, helps. I hate mint in all forms, but ginger is something I love! Also, I have been so constipated for days, and (only you guys will understand this!) this morning had success in that area. I feel like a new person!

Yesterday I was tired and cranky (and had to poop but couldn't, which didn't help my disposition!) and my wonderful husband made me the best damn turkey/avocado sandwich I have ever eaten. I swear, this sandwich would win awards! LOL! And this from a guy who thinks cooking is making reservations, or pressing the microwave button on instant popcorn! I think the T/A sandwich is now my comfort food....

Vicki

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

Lots of vitamins and healthy fat, which can help getting the bowels moving as well! I like avocado on just about anything!
mary

Kanort's picture
Kanort
Posts: 1275
Joined: Jan 2004

Hi Vicki,

Try graham crackers for the nausea. They worked for me!!! My first chemo was given without Emend, and it was my worst. Be sure and let the staff know how sick you were this time. Hopefully, the next treatment will be kinder to you.

Hugs,

Kay

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

This afternoon I started to bleed where the needle goes into the port. I can tell you it scared the you-know-what out of me. The doctor had me go to the cancer center, where an oncology nurse took it all apart, cleaned the area and reset everything. However, due to a number of reasons, not the least which was that I was too tense, it took 4 tries to get the new needle in. Let me tell you how that hurt! She froze the area with that spray- numbing stuff, but I could still feel it. By the time we were done, both she and I were crying together. None of this was her fault - apparently I have an anomaly. But, we persevered and now all is well.

It seems when I had my radiation this morning, I pressed the needle too hard down onto the table. I will be super, super careful from now on. And today started out so well...

Vicki

KathiM's picture
KathiM
Posts: 8077
Joined: Aug 2005

or take a travel pillow (one of those blow-up semi-circle things) to put under your port.

I am so sorry you cried, my sweet soul...I am putting my arms around you right now...

BIG, fuzzy, warm hugs,
Kathi

BTW, when they put the needle into my port, I always blew out air thru my mouth...it seems to help...

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

I did blow out as she tried to get the needle in, but my port was not aligning for whatever reason. Of course, I blame Dr Doom, the original surgeon that I disliked, and the one who put in the port! LOL! But she said the port was OK, just not able to 'find the spot' probably because of the blood. We rested and then on the 4th try she got it straight in.

Funny thing is, I rarely cry for pain, or for myself. I think I had just had it today.

msccolon's picture
msccolon
Posts: 1956
Joined: Oct 2004

That she can feel for her patients so much that she cries with you! They are probably the most underrated people on this earth! I pray for my oncology team often; I can't imagine having their jobs. You think of the number of people they see in pain and (unfortunately) the number that they see pass on. I would expect a lot of burnout or a lot of very distant people (protecting themselves from the pain). I hope your next radiation treatment goes well. And you probably weren't crying for the pain, you were probably scared and tired and, like you said, had had ENOUGH!
mary

kmygil
Posts: 881
Joined: Feb 2007

I don't know what reality your med team works in, but pukiness descends when it feels like it, not according to schedule. At first I got pukey on day 3, then by tx 4 on day 2, and by tx 6 on the day itself. Toward the end, pukiness was just a state of being, however the antiemetics kept me from actually puking--just nausea. Hang in there. This will pass. Stay hydrated and keep good nutrition even if it is an effort.

Hugs,
Kirsten

krystiesq's picture
krystiesq
Posts: 242
Joined: Jun 2008

My mom's port is really deep and lower than normal. She puts on emla cream two hours before we go to get port accessed and she can't feel a thing.

pamness
Posts: 529
Joined: Nov 2007

I got nauseous day one no matter what the treatment, but you shouldn't be puking day one, two, three, four and really not at all.

First of all - the first line of defense in anti-nausea meds is compazine, it is for mild nausea and given for all sorts of things. Zolfran is the anti-nausea med of choice - works for 8 hours, should control nausea from 5FU and you use compazine and ativan for breakthrough nausea. Common side effect - headache and constipation.

More severe nausea, generally after chemo with 5FU and oxaliplatin and whatever - emend with decadron (a steriod).

Constipation - usually recommended with senokot, a stool softener, apple sauce, prune juice - if that doesn't work - miralax or the equivalent.

I had a horrible time with chemo and was on the emend with zolfran compazine, decadron and ativan and had to take the miralax. I was nauseous for 9 or 10 out of 14 days - with 5FU and oxaliplatin - it was better with the 5FU and radiation - that was where immodium came in. I still took a little zolfran but no emend or decadron - occasionally compazine and/or ativan.

I don't know where you are being treated but your symptoms should be treated more aggressively (it doesn't pose any danger to you). A side effect of compazine is that it can make you very anxious.

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

If you read ALL of my posts, you would know that I have both my nausea and my constipation under control. I am being treated VERY well at my cancer center, and was not passing judgment on my care or my doctors, just asking how others handled the nausea. I appreciate your concern, but I am confused why you seem to think I am getting substandard care? I will follow my doctor's plan, and as long as I take the responsibility to let them know what is happening, they adjust the plan as needed. I am brand new to treatment (5 days now), and still learning when I need to tell the docs what is going on. When I am farther down the road, these questions may not seem as necessary.

Thanks for your input. Vicki

Buzzard's picture
Buzzard
Posts: 3073
Joined: Aug 2008

I am fine...............those words tell me your gonna be fine and thats good to hear...Keep up the positive thoughts....God Bless ya

pamness
Posts: 529
Joined: Nov 2007

But if you wonder why I replied the way I did, look at your first post - it seemed as though compazine was all you were getting. Very happy to hear that things are going well now.,

I wish you all the best.

Happy holidays,

Pam

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

You know, this morning when I went for radiation, I walked in to hear the tech say "Here comes our own Miss Positive Attitude!" I guess it shows...

Thanks for being there, Vicki

VickiCO's picture
VickiCO
Posts: 934
Joined: Oct 2008

Pamness,
This was my grouchy week...I didn't mean offense. Thank you for your concern and help. I will need it as I go forward.

Vicki

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