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3rd time around way to difficult

alta29's picture
alta29
Posts: 435
Joined: Mar 2005

Started folfox again...waiting on insurance to approve Avastin..can u believe that ? They said that because is not proven to work/or not to work...insurance sometimes give us a hard time....anyways...I kind of forgot how tired I used to feel 3 years ago....my skin is sooooo dry that it's breaking out...but I am still fighting it...cannot give up....but I need words of wisdom...specially from those stage IV that have been NED for a while....it helps soooo much..let's pray/hope for a cure this year....
God bless

lfondots63's picture
lfondots63
Posts: 822
Joined: Jan 2006

Oh, I'm so sorry to hear that you are back on the poison but I know that you can beat this again. I'm sure you will get lots of posts. I can't remember what some people did for skin. Didn't sponge have a remedy? Or ask your chemo nurse or onc? Side effects suck. HUGS. Thinking of you and sending good vibes.

Lisa F

rmap59
Posts: 266
Joined: Jun 2007

Hi,
I hope we get a president in office that really cares about healthcare woes. The insurance in this country can really suck. I had to wait on an approval for xeloda too. I am sorry you have to do this again. Keep fighting and keep posting. We all care.

Prayers to you, Robin

hopefulone
Posts: 1048
Joined: Jan 2007

Hang in there Alta. Avastin worked well for my hubby, along with xeloda and oxal. We had to fight to get approval for the clinical trial he was on . Hoping you hear good news soon. Keeping you in my prayers. Keep the faith
God Bless
Diane

m120407's picture
m120407
Posts: 9
Joined: Nov 2007

I'm so sorry you have to start up with folfox again. I know how tough that is. I am with you, we can never give up. I am also praying for a cure. I finished my 2nd round of treatment last September - met to liver.

God Bless

pink05
Posts: 553
Joined: Mar 2006

I know you are going through a difficult time not only dealing with the chemo, but also now having to worry about whether or not your insuranc will cover this. Please do not give up hope. My dad was stage IV almost two years ago and as of November, he has been NED for over a year. You are always in my prayers!!!

-Lee-

betina61's picture
betina61
Posts: 644
Joined: Aug 2006

Oh Alta,I am so sorry that you have to go through all of this again,but things will get better allways at the begining things looks worst at least that is how it was with me,hopefully the insurance will approve the Avastin which I have heard is very effective,and shortly you will post here that you are Ned,like hundreds of others stage IV survivors, I will pray for that everyday.

betina61's picture
betina61
Posts: 644
Joined: Aug 2006

Oh Alta,I am so sorry that you have to go through all of this again,but things will get better allways at the begining things looks worst at least that is how it was with me,hopefully the insurance will approve the Avastin which I have heard is very effective,and shortly you will post here that you are Ned,like hundreds of others stage IV survivors, I will pray for that everyday.

kmygil
Posts: 881
Joined: Feb 2007

Just sending you a hug.

jerseysue's picture
jerseysue
Posts: 626
Joined: Oct 2005

I'm praying for the best for you. I'm stage IV and I'm still taking Xeloda this is my 3rd time around as well. Hoping nothing but the best for you.

scouty's picture
scouty
Posts: 1976
Joined: Apr 2004

Hi Ileana,

I'm sorry you're having a hard time but keep at it.......can't wait to hear your good news.

Get some Extra Strength Gold Bond Body Lotion that has the triple action relief (moisturizing, itch relieving, and soothing). Someone gave me some while my skin was all screwed up and it was a godsend.

Keeping you in my thoughts.....

Lisa P. (stage IV, mets to liver and lung....now NED 3 years and 2 months)

vinny3's picture
vinny3
Posts: 933
Joined: Jun 2006

Sorry that you have to go through chemo again. Hang in there. Have your onc keep after them about the Avastin. It is widely used, especially at your stage. You continue in our prayers. Keep us informed.

Dick

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