Still NED

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scouty
scouty CSN Member Posts: 1,965 Member
edited March 2014 in Colorectal Cancer #1
After my first ever colonoscopy 10 days ago (all clear) and my quaterly CT scans and blood work yesterday and today, I continue to dance with NED.

Since it has been 2 years since I stopped chemo with no recurrence, my onc wants to go to scans every 6 months instead of 3. Since my cancer does register on CEA, I will have bloodwork done after 3 months at least this first time.

I have developed an allergic reaction to the CT IV contrast and we tried the meds for it this time and they did NOT help at all. Within minutes of the contrast going thru my bloodstream, I was doing my best Larry the Lobster imitation (red from head to toe and very itchy). A couple of IVs of benedryl cleared it up, but we won't do that again. As I told the nurses yesterday after my reaction, "if this is the worst thing that happens in the next 24 hours, I'll take it"!!!!!!

I'm relieved, fortunate and very lucky!!!!!!

Lisa P.

PS. My post comes out Tuesday.
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Comments

  • KathiM
    KathiM CSN Member Posts: 8,028 Member
    #2
    YEA YEA YEA YEA YEA YEA YEA!!!!!!


    MAJOR NAKED HAPPY DANCE!!!!!!!!!

    You rock, my dear!!!!!!!!

    (I have reactions to the contrast, too...I guess we just can't be scanned anymore...'cause we are meant to be NED 4-ever!!!!!!!!)

    BIG FLUFFY NED hugs!!!!!
    Kathi
  • kerry
    kerry CSN Member Posts: 1,313 Member
    #3
    Lisa, Lisa, Lisa!!!!!! Oh Happy Days!

    Congratulations and whoopee!! I'm soooooo happy for you and for me, cause your my friend and I want you around here for a long, long time, because I need you to kick me in the Butt when my chemo is finished and I get on my nutrition life change!!!

    Great news.

    Love,

    Kerry
  • shmurciakova
    shmurciakova CSN Member Posts: 906 Member
    #4
    Yea! That is awesome news. I figured you would be fine but I know full well how nerve racking it is!
    I usually get .25 ml of IV Benadryl before my scan and that takes care of the allergy issue. I had a couple of mosquito bite sized hives one time and ever since then they gave me Benadryl. It is kinda nice because then I am all drugged out and don't worry as much!
    Did you mean your PORT comes out Tuesday? I did not know you still had one. Geez, get rid of that thing. You don't need it any more! Yea!
    -Susan H.
  • spongebob
    spongebob CSN Member Posts: 2,565 Member
    #5
    Congrats, Darlin'!

    See what happens when you study? CONGRATS! Lemme know when you order your pink bowling shirt. You know, Actually I think they should be either blue or brown - I'm getting a little sick of pink... I mean, great cause and all, but PUH-LEEZ, let's spread the love around a little bit! I mean, it is called T AND A, right? Oh boy, do I see a great ad campaign in the offing if we could pair up colon cancer and breast cancer...

    (I know, "Bob, go back to Jr. High School.")

    Cheers!
  • scouty
    scouty CSN Member Posts: 1,965 Member
    #6
    KathiM said:

    YEA YEA YEA YEA YEA YEA YEA!!!!!!


    MAJOR NAKED HAPPY DANCE!!!!!!!!!

    You rock, my dear!!!!!!!!

    (I have reactions to the contrast, too...I guess we just can't be scanned anymore...'cause we are meant to be NED 4-ever!!!!!!!!)

    BIG FLUFFY NED hugs!!!!!
    Kathi

    sounds great to me!!!!!!!
  • scouty
    scouty CSN Member Posts: 1,965 Member
    #7
    kerry said:

    Lisa, Lisa, Lisa!!!!!! Oh Happy Days!

    Congratulations and whoopee!! I'm soooooo happy for you and for me, cause your my friend and I want you around here for a long, long time, because I need you to kick me in the Butt when my chemo is finished and I get on my nutrition life change!!!

    Great news.

    Love,

    Kerry

    You know I will do whatever I can to help you!!!!! Who knows, it might even involve a road trip........

    Gives my best to Ms Maggie and Mr Drysdale.

    Love, Lisa

    PS. Only 1 more round until you get YOUR GOOD NEWS!!!!!!!!
  • scouty
    scouty CSN Member Posts: 1,965 Member
    #8
    shmurciakova said:

    Yea! That is awesome news. I figured you would be fine but I know full well how nerve racking it is!
    I usually get .25 ml of IV Benadryl before my scan and that takes care of the allergy issue. I had a couple of mosquito bite sized hives one time and ever since then they gave me Benadryl. It is kinda nice because then I am all drugged out and don't worry as much!
    Did you mean your PORT comes out Tuesday? I did not know you still had one. Geez, get rid of that thing. You don't need it any more! Yea!
    -Susan H.

    Thanks Susan,

    I took predisone and had benedryl beforehand but still reacted to it. The nurse said he has been working there 10 years and I was only the second one to react after doing the meds....special or weird....how bout both!!!!!

    Yes I meant port. I get a little superstition and don't want to jinx anything but my onc was pretty persuasive.

    Thanks again, Lisa
  • scouty
    scouty CSN Member Posts: 1,965 Member
    #9
    spongebob said:

    Congrats, Darlin'!

    See what happens when you study? CONGRATS! Lemme know when you order your pink bowling shirt. You know, Actually I think they should be either blue or brown - I'm getting a little sick of pink... I mean, great cause and all, but PUH-LEEZ, let's spread the love around a little bit! I mean, it is called T AND A, right? Oh boy, do I see a great ad campaign in the offing if we could pair up colon cancer and breast cancer...

    (I know, "Bob, go back to Jr. High School.")

    Cheers!

    Funny you bring up the whole pink thing. We discussed it at CP4 and all agree that women get other cancers not just breast and they need to figure out how to spread the money around to others. I will not wear pink nor blue, I still want brown as our color!!!!!!

    While at the hospital today, they actually had a warning about how many merchandisers are selling pink stuff without a penny going to any kind of breast cancer "stuff".

    I wish they would let us do a bootie cancer commercial!!!!!!!

    Hugs and thanks,

    Lisa
  • valeriec
    valeriec CSN Member Posts: 348 Member
    #10
    Lisa,
    This is awesome, wonderful, and amazing news! I am soooooooo happy for you. Good luck with port removal. I know all will be fine. Thanks for all your support with my mom..very much appreciated.
    God Bless,
    ValerieC
  • spongebob
    spongebob CSN Member Posts: 2,565 Member
    #11
    valeriec said:

    Lisa,
    This is awesome, wonderful, and amazing news! I am soooooooo happy for you. Good luck with port removal. I know all will be fine. Thanks for all your support with my mom..very much appreciated.
    God Bless,
    ValerieC

    Heya, Valerie -

    How's mom doing?
  • betina61
    betina61 Member Posts: 642 Member
    #12
    Congratulation Lisa,so happy for you, is so good to share these wonderful news.
  • DK2006
    DK2006 Member Posts: 126
    #13
    Congratulations!!
    Thanks for sharing this great news!!
    Best wishes,
    Donna
  • Unknown
    Unknown
    #14
    This comment has been removed by the Moderator
  • kerry
    kerry CSN Member Posts: 1,313 Member
    #15
    unknown said:

    This comment has been removed by the Moderator

    I was reading Vogue magazine this afternoon and it appears that "brown" and various shades of "brown" are the IN color this year!!

    Kerry
  • vinny3
    vinny3 CSN Member Posts: 928 Member
    #16
    That's wonderful news Lisa. You are an inspiration to the rest of us in how one can change the diet and lifestyle and kick the beast in the ****.

    ****
  • spongebob
    spongebob CSN Member Posts: 2,565 Member
    #17
    kerry said:

    I was reading Vogue magazine this afternoon and it appears that "brown" and various shades of "brown" are the IN color this year!!

    Kerry

    A friend just brought me a bag of chocolate covered macadamia nuts from Hawai'i. I LOVE them - I tae half the bag in one crazy sitting (I guess I lost my mind for a moment) - TELL ME about different shades of brown....!!!

    Uh-Oh... gotta RUUUUuuuunnnnnnn
  • Betsydoglover
    Betsydoglover CSN Member Posts: 1,248 Member
    #18
    Lisa -

    I am SO HAPPY for you. Go out and paint the town!

    You are my inspiration. I am three weeks shy of one yearsoff chemo - two years off and NED is so awesome!

    Get than damn port out Tuesday and start putting this behind you!

    Happy Dance (as they say)

    Betsy
  • stage4mom
    stage4mom Member Posts: 22 Member
    #19
    vinny3 said:

    That's wonderful news Lisa. You are an inspiration to the rest of us in how one can change the diet and lifestyle and kick the beast in the ****.

    ****

    Congratulations, Lisa, I am so happy for you. You are an inspiration to us all.

    Jane
  • HowardJ
    HowardJ Member Posts: 474
    #20
    Great news!!! Thank you for sharing!

    Howard
  • fedester
    fedester CSN Member Posts: 753 Member
    #21
    hey lisa,
    great news, go celebrate and have a good time.
    you go girl.
    all the best
    bruce

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