My mother passed away with vulva cancer in '91. I
got it in 1999. My mom had to have her vulva removed. It went into her lymph nodes and then it
traveled to the other lymph nodes.
I had a small bump on the skin between the two. A
Dr told me it was a genital wart but it wasn't, it was cancer. I didn't want surgery so I told the dr. just do chemo and radiation. My labia is
swollen and hard especially where the hair was. I
am doing hyperbarics right now because my oooweee
down below isn't healing due to infection.
I haven't, but I know what it is to be so scared. Hugs to you! Please e-mail me.. I'd like to talk to you. I've had an enlarged Bartholin's forl like 7 years now, but no dx for cancer there. I have had VIN III all over the place, lol.
My email is Allynesma@aol.com
I have not, but I have had squamous cell carcinoma on the vulva and I know the fear and anxiety. Please feel free to write. Maybe we can help each other.
I went through 8 weeks, 5 days a week radiation and chemo following radical vulvectomy. It wasn't as bad as I thought it would be. It worked. The cancer had spread to my lymph nodes and I had to have the treatments to hopefully get rid of the cancer cells. IT WORKED I HAVE BEEN CANCER FREE FOR 18 MONTHS NOW. I GO UP FOR MY SIX MONTH CHECK-UP IN JULY. Do it, you won't regret it.
I am in the same boat. Going to start radiation and chemotherapy this coming week. Have you already started and if so what are you experiencing -- besides total terror?
I haven't had radiation but have had multiple surgeries to remove vulvar cancer. Luckily, it has not spread to my lymph nodes.( I had them removed in the right groin and they were negative.)
But I know the fear and anxiety you are going through. Please keep in touch. You can e-mail me any time.
Diane
hi, I went through radiation 4 years ago for 30 sessions. it is scary but you just tell yourself you have to do it and then you can start putting the days behind you one at a time and before you know it your done. It dosn't make it easy as your going through it but one day behind you is one day less you need treatment. keep your chin up and best wishes
Joined: Apr 2003
Re: Radiation
My mother passed away with vulva cancer in '91. I
got it in 1999. My mom had to have her vulva removed. It went into her lymph nodes and then it
traveled to the other lymph nodes.
I had a small bump on the skin between the two. A
Dr told me it was a genital wart but it wasn't, it was cancer. I didn't want surgery so I told the dr. just do chemo and radiation. My labia is
swollen and hard especially where the hair was. I
am doing hyperbarics right now because my oooweee
down below isn't healing due to infection.
Joined: Mar 2003
Re: Radiation
I haven't, but I know what it is to be so scared. Hugs to you! Please e-mail me.. I'd like to talk to you. I've had an enlarged Bartholin's forl like 7 years now, but no dx for cancer there. I have had VIN III all over the place, lol.
My email is Allynesma@aol.com
Joined: Apr 2003
Re: Radiation
I have not, but I have had squamous cell carcinoma on the vulva and I know the fear and anxiety. Please feel free to write. Maybe we can help each other.
Joined: Apr 2003
Re: Radiation
I went through 8 weeks, 5 days a week radiation and chemo following radical vulvectomy. It wasn't as bad as I thought it would be. It worked. The cancer had spread to my lymph nodes and I had to have the treatments to hopefully get rid of the cancer cells. IT WORKED I HAVE BEEN CANCER FREE FOR 18 MONTHS NOW. I GO UP FOR MY SIX MONTH CHECK-UP IN JULY. Do it, you won't regret it.
Joined: May 2003
Re: Radiation
I am in the same boat. Going to start radiation and chemotherapy this coming week. Have you already started and if so what are you experiencing -- besides total terror?
Joined: Feb 2003
Re: Radiation
I haven't had radiation but have had multiple surgeries to remove vulvar cancer. Luckily, it has not spread to my lymph nodes.( I had them removed in the right groin and they were negative.)
But I know the fear and anxiety you are going through. Please keep in touch. You can e-mail me any time.
Diane
Joined: Mar 2004
Re: Radiation
hi, I went through radiation 4 years ago for 30 sessions. it is scary but you just tell yourself you have to do it and then you can start putting the days behind you one at a time and before you know it your done. It dosn't make it easy as your going through it but one day behind you is one day less you need treatment. keep your chin up and best wishes