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5 years ago today---wow, what a day!

stub1969
stub1969 Member Posts: 933 **

Hello everybody!  I've been on a little break for the past couple of months.  I'm sure the events of this past year contributed to the need for a break. 

I just wanted to share that on this day in 2016, I was told by my nephrologist they found a lesion on the lower pole of my right kidney in scans he had ordered for my medullar sponge kidneys.  My nephrologist works at our small local hospital and he said he would forward the information to the urology department and that department would be in contact to schedule an appointment.  I didn't wait for that call.  I reached out to the Mayo Clinic in Rochester Mn.  The next week I was meeting with Dr. Chow in Rochester and getting baseline scans.  The good and bad news from those baselines were that they didn't think any RCC had spread, but they thought I had another primary on my thyroid--what a blow!

 

Surgery for the RCC was scheduled for August 26, 2016, and surgery for my thyroid was scheduled for September 28, 2016.

 

Because of a little mix-up, my kidney scans originally scheduled for this past June have been moved to August 18.  Praying for continued NED.

 

I'll keep you posted---

Stub

Comments

  • tgpath1
    tgpath1 Member Posts: 52 **
    edited July 28 #2
    Prayers that you continue to

    Prayers that you continue to be NED! I had my radical nephrectomy on 3/11/21 and my first clean scans last month.  I love hearing NED years out...it gives me peace of mind!!

  • Canadian Sandy
    Canadian Sandy Member Posts: 716
    edited July 29 #3
    Praying for your continued

    Praying for your continued Ned status Stub. I had 2 cancers diagnosed that year also......as if one wasn't enough. Cool

  • lobbyist0724
    lobbyist0724 Member Posts: 471 **
    edited July 29 #4
    Praying for you

    Hi Stub, nice to hear from you, it is just amazing how fast time flies. I am praying for you for another NED scan.

    My 5th scan is actually scheduled for tomorrow and I am crossing my fingers praying for another NED as well.

     

    Good health to all!

  • Bay Area Guy
    Bay Area Guy Member Posts: 521 **
    edited July 29 #5
    You'll do great Stub.

    You'll do great Stub.  Remember, we do everything in parallel!

  • jazzgirl
    jazzgirl Member Posts: 203
    Hey Stub

    There's something about this 5 year marker that brings it all back - maybe for those at 10, 15, etc also? I had surgery on 7/27/16 - all this week I've been reliving that time and feeling grateful for how things are now. It's a time to take a big breath and and think, "Here, now." Prayers for your upcoming scans. Take care ~

  • jazzgirl
    jazzgirl Member Posts: 203
    edited July 29 #7
    Duplicate again..

    oops

     

  • stub1969
    stub1969 Member Posts: 933 **
    edited July 30 #8
    tgpath1 said:

    Prayers that you continue to

    Prayers that you continue to be NED! I had my radical nephrectomy on 3/11/21 and my first clean scans last month.  I love hearing NED years out...it gives me peace of mind!!

    Easier??

    My first scan was right after Thanksgiving in 2016.  I was a nervous wreck.  I'm not going to lie--I still get anxious, but not to the level of my first few scans.  I always try to think about the wise words of a former member (Foxhd).  His words of advice were to think of scans as precautionary measures.  IF they find something, then you've given the doctors an opportunity to treat it.  It does help to think of them this way.

    I'm sure stage 3 weighs heavily on your mind.  Be committed to your scans.  I look forward to hearing from you on your 5 year NED status!

    Stub

  • stub1969
    stub1969 Member Posts: 933 **
    edited July 30 #9

    Praying for your continued

    Praying for your continued Ned status Stub. I had 2 cancers diagnosed that year also......as if one wasn't enough. Cool

    Two....

    Hi, Sandy!

    As you know, finding two cancers is a big punch in the gut!   Honestly, after I thought about it, I was relieved that my thyroid cancer was a second primary.  My story would have been much different had it been metastasis from my RCC. 

    Hope you continue to stay well, Sandy!

    Stub 

  • stub1969
    stub1969 Member Posts: 933 **

    Praying for you

    Hi Stub, nice to hear from you, it is just amazing how fast time flies. I am praying for you for another NED scan.

    My 5th scan is actually scheduled for tomorrow and I am crossing my fingers praying for another NED as well.

     

    Good health to all!

    Good vibes today

    Keep us posted on your results, Lobby.

    Wishing you only the best.

    Stub

  • stub1969
    stub1969 Member Posts: 933 **

    You'll do great Stub.

    You'll do great Stub.  Remember, we do everything in parallel!

    Right on, Bay!

    Always good to "see" you and hear from you, Bay.

    Stub

  • stub1969
    stub1969 Member Posts: 933 **
    jazzgirl said:

    Hey Stub

    There's something about this 5 year marker that brings it all back - maybe for those at 10, 15, etc also? I had surgery on 7/27/16 - all this week I've been reliving that time and feeling grateful for how things are now. It's a time to take a big breath and and think, "Here, now." Prayers for your upcoming scans. Take care ~

    10..15

    I look forward to those big markers.  I'll keep your advice close to my heart, Jazz.

    Stub

  • Mmoses25
    Mmoses25 Member Posts: 156 **
    You will do great

    Stub you will do great your one of the ones that give me hope so good luck and I will be praying for you 

  • stub1969
    stub1969 Member Posts: 933 **
    Thanks

    Moses--thanks for the encouragement and the prayers.

    Stub