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Need help

Liely
Posts: 15
Joined: Apr 2021

Hello Everyone,

please help as i am very worried and anxious. 

I had Ct Scan for other issues and the report shows 1.4 Cm cysts in the left kidney and 1.1 in the right kidney. It says 

the largest has lesions have higher HU for simple cysts. Further evaluation with US needed.

I did follow up with US and the report is: there is a mildly irregular echogenic mass in the left upper kidney and there's a small adjacent 1 Cm cysts. And the cysts in the right kidney which showed on CT Scan is simple cysts.   And also it's overall the sonography appearance is nonspecific. And further evaluation by  MRI is needed. Gp called me and said not to worry you had this since 2017 And he placed referral to see urologis. should i make an appointment with urologist or do the MRI first. Thank you so much for your time!

by the way this is the first I am posting on forum. i amvery happy to find this great community.

wishing you all the best!

Mmoses25's picture
Mmoses25
Posts: 135
Joined: May 2020

There very small and they haven't changed since 2017 go have a mri that will ease your mind hope the best for you your going to be fine there very small

APny's picture
APny
Posts: 1998
Joined: Mar 2014

Try not to worry.  If there hasn't been any change since 2017 chances are they're benign cysts. Get the MRI and hopefully it'll put your mind at ease. Even if worse came to worst it's very small and could be taken care of. All the best to you. 

Liely
Posts: 15
Joined: Apr 2021

Thank you so much for your replies!

The reason i am worried the reports says it has higher Hsounsfield unit.

once again thank you so much!

 

donna_lee's picture
donna_lee
Posts: 1014
Joined: Feb 2009

Check my user name to read my story about cancerous shows on CT"s, etc.  I still have cysts in my remaining kidney, what's left of my liver and in my pancreas.  Tests like that show a lot of things you may have been living with for years....and they never bothered you.

If you are having them monitored, so much the better for you.  Try to relax.

Air hugs,

donna_lee

Liely
Posts: 15
Joined: Apr 2021

Do you know what's the importance of hounsfield units on a mass?

thanks!

Koman
Posts: 1
Joined: Sep 2020

Hounsfield units are a measure of light intensity/density on CT scan. Things like water/cyst have low HU while solid organs have high HU. Contrast in blood vessels or blood outside vessels have higher HU that water. It does not tell u anything about if something is cancer vs non-cancer. In your case HU is used to determine simple cyst vs solid mass. A slightLy higher value only means cannot tell or there is a more solid structure to the cyst making it either a complex cyst. doctors can only confirm diagnosis with histology when they review tissue under microscope after mass/cyst removal or biopsy. Biopsy limited in Renal mass/cyst. However removal invasive so often times, doctors review if size grows as larger sizes or rapid growth have higher probability of cancer. Hope that helps.

Liely
Posts: 15
Joined: Apr 2021

Thank you so much!

I am wondering if the Hu was higher number due to contrast they give me. Since i am allergic to contrast and the technision was worried and wasn't comfortable administrating the dye. Kept asking me if I am ok. She was new and told me she will raise the flow faster to finish the scan faster. First she was struggling to find my veins. just a thought I do t know if it make sens. 

Liely
Posts: 15
Joined: Apr 2021

Thank you so Much Donna!

I read your story and I am glad you are doing fine.

wishing You all the best. 

icemantoo's picture
icemantoo
Posts: 3349
Joined: Jan 2010

My first thougt is it may be  too small to diagnose. Second, because it possibly effects both kidneys get the follow up with the Uro, asap. Hopefully only active surveilallance for now.

 

 

 

 

icemantoo

 

Liely
Posts: 15
Joined: Apr 2021

Hello Icemantoo,

The cysts on my right kidney is simple cyst.

The one I am worried is the left kidney 1.4 with High hounsfield. What's the hounsfield unit means? Is the high number worrisom?

Thanks

 

a_oaklee
Posts: 567
Joined: Nov 2013

I would schedule an appointment with a urologist asap and also get the MRI as soon as you can.   Doesnt matter which is first, just take first available.

Also get copies of all your own lab work and scans.   It sounds like your GP didnt tell you about the 2017 scan result.   If thats true, its outrageous, and yet unfortunately all to common.   

Please be your own protector and advocate for your health.

Liely
Posts: 15
Joined: Apr 2021

a_Oaklee Thanks for your comment!

The report from 2017 says simple cysts. 

Liely
Posts: 15
Joined: Apr 2021

Where sould I go and see an expert Urologist in SF Bay Area? 
please let me know 

thanks!

icemantoo's picture
icemantoo
Posts: 3349
Joined: Jan 2010

Cysts on both kidneys  deserve a look from the experts.

 

 

 

 

 

 

icemantoo

 

Liely
Posts: 15
Joined: Apr 2021

Thanks Iceman!

a_oaklee
Posts: 567
Joined: Nov 2013

Generally your insurance company and your GP help you with a referral.  Anyone at UCSF would be a good choice I imagine.   Specialists in my area wont book an appt with me without referral from my GP.  It still can happen fast.  We've seen specialists within 1 day.   Im sure it depends on the urgency of the situation, and the size of the institution, among other things.

I realize you are diagnosed with cysts.  Im just giving you advice of reading your own reports.  Ive heard of way too many times when important information was not told to the patient.  Thats all I am saying regarding your reports.

Personally, I love seeing specialists if there is any problem.  A good doctor refers people to other specialties, as your doctor has done.

Liely
Posts: 15
Joined: Apr 2021

Hello everyone,

I have an appointment with urologist tomorrow.

What should I ask the doctor? I have a few questions. 
but I would like to ask you guys to help me out as what should ask. 
Thank you so much!

eug91's picture
eug91
Posts: 325
Joined: Jan 2019

One piece of advice-

Bring a notebook or piece of paper and pen to write with. You'll be able to have your questions written down so you don't forget to ask the doctor - and you'll be able to write down the answers as they come. The info will be coming fast and furious, so you don't forget anything, write down the answers you get. 

From what you've told us, it sounds like your next step is an MRI - to compare with your 2017 MRI and see if your cysts have grown or changed. But your doctor may have their own way forward, so write down what they tell you - you can check back with it later in case you have questions. 

Good luck! 

 

Liely
Posts: 15
Joined: Apr 2021

Thanks for your reply!

Liely
Posts: 15
Joined: Apr 2021

Good Morning,

I am sceduled for MRI next week. I am very concerned about the contrast. Can you please let me know about your experience and also if I ask the order without using the contrast.Also I am allergic to CT scan contrast. I am nervous and wondering if I am allergic to MRI contrast as well. I just don't feel comfortable about the contrast and the toxicity it may cause. 
Regards to all,

tgpath1's picture
tgpath1
Posts: 41
Joined: Apr 2021

I can't speak to toxicity but I had a CT with contrast and it was warm and I could feel it throughout my chest (and freaked me out a little).  The MRI contrast they used was cool and I only felt it in my arm on the initial flow...it was maybe 2 seconds that I felt it.  I am not allergic to either.  I know it's  not great for your kidneys so they check GRB and creatinine before they will allow it.  But I believe they use contrast because it gives them a much better view of what's going on.  I would suggest talking to your doc about why it's necessary and what your concerns are.

Liely
Posts: 15
Joined: Apr 2021

Tgpath1

Thank you so much for your reply!  Good idea to ask the doctor. 

icemantoo's picture
icemantoo
Posts: 3349
Joined: Jan 2010

Shpuld ne GFR;

 

 

 

icemantoo

Liely
Posts: 15
Joined: Apr 2021

Hello Iceman

what do you mean GRB? Do you mean GFR.  please let me know. 
Thanks!

icemantoo's picture
icemantoo
Posts: 3349
Joined: Jan 2010

The doctor usually checks GFR for Kicney function.

 

 

 

 

icemantoo

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