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Relapse

Max Former Hodgkins Stage 3
Max Former Hodgkins Stage 3 CSN Member Posts: 3,831 Member
edited November 2022 in Prostate Cancer #1

Hi friends.   A very brief note:   I have relapsed on my Lymphoma.  Just thought I'd mention. 

I won't write more about it here, but if you have some interest, you can follow my thread " Round III " at the lymphoma Board.

max

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Comments

  • Clevelandguy
    Clevelandguy CSN Member Posts: 1,351 Member
    edited October 2020 #2
    Be positive

    Hi Max,

    Hope for the best, stay positive.

    Dave 3+4

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  • eonore
    eonore CSN Member Posts: 185 Member
    #3

    Dear Max,

    I just read the thread in the other forum to get a better idea of what you are facing.  You have great courage and spirit, and it is inspiring how you are facing this setback.  My prayers are with you along with hope for a speedy recovery.

    Eric

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  • hopeful and optimistic
    hopeful and optimistic CSN Member Posts: 2,347 Member
    #4
    .

    My thoughts and prayers are with you. I wish that you have a full and speedy recovery. 

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  • VascodaGama
    VascodaGama CSN Member Posts: 3,748 Member
    edited October 2020 #5
    Another chapter in your life

    Sorry to hear about the relapse. Never thought that a lymph node could get that big (5x2.5cm). I hope the removal has been successful and you recover the soonest.

    Best wishes for good news on Tuesday.

    VG

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  • Old Salt
    Old Salt CSN Member Posts: 1,689 Member
    edited October 2020 #6
    Best wishes

    You have been a wonderful (and longtime) contributor to this forum and I feel especially bad that you are facing new challenges. I am ignorant with respect to lymphomas, but I do hope that the issue can be solved.

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  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 CSN Member Posts: 3,831 Member
    #7
    Old Salt said:

    Best wishes

    You have been a wonderful (and longtime) contributor to this forum and I feel especially bad that you are facing new challenges. I am ignorant with respect to lymphomas, but I do hope that the issue can be solved.

    XOXO

    Love ya, Old Salt.   I am hoping fo the samet thing......

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  • lighterwood67
    lighterwood67 CSN Member Posts: 398 Member
    edited October 2020 #8
    Plain of existence

    Well, we face so many issues on this plain of existence.  I will say this, your approach and attitude is a beacon for me and I am sure for many others.  As we continue to face the "Emperor of of all Maladies", it always has surprises for us.  So keep up the fight.  Wish you a speedy recovery.

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  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 CSN Member Posts: 3,831 Member
    edited October 2020 #9
    lighterwood67 said:

    Plain of existence

    Well, we face so many issues on this plain of existence.  I will say this, your approach and attitude is a beacon for me and I am sure for many others.  As we continue to face the "Emperor of of all Maladies", it always has surprises for us.  So keep up the fight.  Wish you a speedy recovery.

    Bio

    Nine days after biopsy removal, still no word.   The pathology group claims "most results within 24 to 48 hours."  My onc did say that she called the pathology office and they thought it necessary to send off my samples to another facility for second opinion.   Silly me, always being the exception.

    I might use this as a teaching moment:  The W.H.O. recognizes five forms of Hodgkin's lymphoma, and over fifty types of non-HL.  They all vary in cell types, and drugs that work for one are often useless against other strains.   Many hematologst spend an entire career with out ever seeing many of these disease subtypes.  It is a challanging line of work.

     

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  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 CSN Member Posts: 3,831 Member
    edited October 2020 #10
    Max Former Hodgkins Stage 3 said:

    Bio

    Nine days after biopsy removal, still no word.   The pathology group claims "most results within 24 to 48 hours."  My onc did say that she called the pathology office and they thought it necessary to send off my samples to another facility for second opinion.   Silly me, always being the exception.

    I might use this as a teaching moment:  The W.H.O. recognizes five forms of Hodgkin's lymphoma, and over fifty types of non-HL.  They all vary in cell types, and drugs that work for one are often useless against other strains.   Many hematologst spend an entire career with out ever seeing many of these disease subtypes.  It is a challanging line of work.

     

    Finally got my biopsy results yesterday.  The diagnosis is PTGC.   This is usually benign, and is benign in my particular case.   Surgeon said the node he removed was tennis-ball sized.  

    I give thanks,

     

    https://rarediseases.info.nih.gov/diseases/10712/progressive-transformation-of-germinal-centers

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  • Clevelandguy
    Clevelandguy CSN Member Posts: 1,351 Member
    edited October 2020 #11
    Great news

    A very good report, something us cancer survivors dont get very often.  Take a deep breath of relief and have a brewski.

    Dave 3+4

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  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 CSN Member Posts: 3,831 Member
    edited October 2020 #12
    Clevelandguy said:

    Great news

    A very good report, something us cancer survivors dont get very often.  Take a deep breath of relief and have a brewski.

    Dave 3+4

    Cleve, at your recommendation, I broke out the good stuff:    Milwaukee's Best Lite,  $9.00 on sale for a 15 pack.    Wink

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  • VascodaGama
    VascodaGama CSN Member Posts: 3,748 Member
    edited October 2020 #13
    Smashing news

    In terms of cancer, I have been around it, beside it and under it, but never above it. However, I think that you are above it all. Congratulations.

    VG

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  • Old Salt
    Old Salt CSN Member Posts: 1,689 Member
    edited October 2020 #14
    Great news

    But I would have celebrated with a pumpkin ale.

    Or a chocolate stout perhaps?

    PS: The Oktoberfest brews are probably sold out by now...

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  • lighterwood67
    lighterwood67 CSN Member Posts: 398 Member
    edited November 2020 #15
    Max Former Hodgkins Stage 3 said:

    Finally got my biopsy results yesterday.  The diagnosis is PTGC.   This is usually benign, and is benign in my particular case.   Surgeon said the node he removed was tennis-ball sized.  

    I give thanks,

     

    https://rarediseases.info.nih.gov/diseases/10712/progressive-transformation-of-germinal-centers

    Great News

    Always gald to hear good news.  I know you must be happy.  Enjoy.

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  • Sandy Ray
    Sandy Ray CSN Member Posts: 156
    #16

    Max,

    what is the other forum you use?

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  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 CSN Member Posts: 3,831 Member
    #17
    https://csn.cancer.org/discussion/comment/1700993#Comment_1700993

    Only here at CSN -- Prostate and Lymphoma

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  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 CSN Member Posts: 3,831 Member
    #18

    https://www.foxnews.com/entertainment/duran-duran-guitarist-andy-taylor-reveals-stage-4-prostate-cancer-diagnosis?fbclid=IwAR3ipts2BVNfXx8sDjJ2j8BcY71ROChENctNUGvkn9XzKRU46bNY0IXHK5E

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