CSN Login
Members Online: 11

You are here

Let's all check in,please

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

I am so worried about so many of you and not sure if you gave up on getting connected after the hacking or if you are not well or hopefully you are content with life as it is for now. But, just realized how much I miss not hearing from you and knowing that all is OK.

I am on day 9 of the Magace and so far so good. I have been at my son's now for 1 month and all has been so peaceful and fun. We have 3 dogs so we do long walks around the neighborhood which is good for me. The guys are wonderful cooks so I am certainly eating better and enjoying it moreLaughing I am zooming the grandsons so keeping connected and that is important. They both have BD's soon so trying to come up with some ideas to surprise.

Anyway, hope many of you do check-in and share with us how you are doing. SO much information about how to be safe going to treatment. Hope all of you are taking time to pamper yourself. Missing you, Donna Faye!

cmb's picture
cmb
Posts: 608
Joined: Jan 2018

I'm glad that I had my biennial endoscopy and colonoscopy in February so that I could get that out of the way before the burden fell on the health care professionals and facilities.

As I mentioned in an earlier post, I did have a respiratory infection early in March. The fever and fatigue went away after about a week, but the cough – which was very bad – is still lingering. I don't know if I had the seasonal flu (despite getting the flu shot last fall) or Covid-19.

My state has a "stay at home" order, so I'm only going out for groceries occasionally. I do wear gloves when I'm out and I try to keep the recommended distance from others.

Except for occasional visits to a client's site to gather the initial data needed for a new consulting project, I've worked at home for most of my career. So I already had a fully functioning office with the associated technology. Therefore, the stay at home order hasn't been a significant problem for me (so far!).

I, too, am worried for those currently in treatment who don't have the choice of avoiding medical professionals or facilities. I hope that everyone in treatment reads JillAndrea's post of March 25th (https://csn.cancer.org/node/321523) where she described the steps she is taking to stay safe during radiation treatment, as well as comments from others on their safety measures.

I will say, however, my two cats don't believe in social distancing!

zsazsa1
Posts: 549
Joined: Oct 2018

We are very strictly self-isolated at home.  We don't go to grocery stores - were very well-stocked, and if we really need something, friends who do go to grocery stores pick it up for us, and we clean it off or let it sit for 3 days before it enters the house.

I do go for once a week rituximab infusions, very, very carefully, with mask and gloves and sterilizing hands and showering/washing clothing.  I sent my teenager out to live with my young adult, and my college aged daughter is home with us, which has been very nice.

Everyone, stay home, and stay well!

Fridays Child
Posts: 199
Joined: Jul 2019

A couple of days ago I tried to post and got the blocked message.  Keeping all of you in my prayers!

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

But I fear many are having technical problems from that hack episode. Maybe cmb can help us find out??

MoeKay
Posts: 306
Joined: Feb 2004

I had problems posting on the 19th and contacted the technical staff.  Here is what they advise doing if you should encounter issues posting:

https://csn.cancer.org/forum/200

Fridays Child
Posts: 199
Joined: Jul 2019

Thanks, MoeKay.  I'll email them.  I tried to start a new topic about Megace and hair loss but maybe I'll look for a related thread and see if I can reply to that.

BluebirdOne
Posts: 369
Joined: Jul 2018

Glad to hear everyone is coping as best as can be, even the brave ones still in treatment. We have been home for almost two weeks since our crooss country move. Pretty scary, but we had to get to a place where we could safely shelter in place. Spring is sprung here with the first bulbs popping up, snow drops, early daffodils, and the blue scilla is about to explode into azure carpets. We got a big head start on the spring cleanup as we got here about a month earlier than normal. Migrating birds and winter hold overs are coming by to check out the feeders. Almost every year we have bluebirds nesting and we are so happy to see the pair, checking out the nesting box, eating the mealworms. The male we have named "Electric Blue" as he is so brilliant. My native gardens are starting to show little green shoots here and there, as we take the old leaves and debris away and cut down last year's growth. A few days ago it was warm enough to sit outside before dinner, have a cocktail, and enjoy the fresh air. Soon, the migrating Orioles, Indigo Buntings, and Gros Beaks arrive, and then the hummers will be back. Such is my life 6 months of the year. Looking forward to the newest grandchild coming in June. All the adult kids are unemployed, but will be ok once this thing blows over. A little help from unemployment, and from Mom and Dad, if needed, will tide them through. Luckily, my daughter in law is able to work in isolation while waiting for the baby to be born. I have been checking in with one friend a day, as we are all scared that one of us "elderly" will get sick. We are all sheltering in place, and even though we are all high risk and many of us either had cancer like me, or are actively in treatment, we are all well. It is nice to catch up, regardless. Dreaming of the time when we can go out to eat again as I am really getting tired of cooking! 

 

xxoo

Denise 

CheeseQueen57's picture
CheeseQueen57
Posts: 936
Joined: Feb 2016

I'm from Michigan but I fear that I'm from the opposite side of the state where we don't have those kind of descriptions. Left there 40 years ago but still have family there. 

Jairoldi's picture
Jairoldi
Posts: 221
Joined: May 2017

Like so many others we are under Stay Home and Stay Safe orders from our state. The organization I work for sent everyone home to work. So far so good. We haven't been out, other than to walk and hike on our back road and the trails at the end of our road. We were well stocked but our adult children have been dropping off fresh fruits, veggies, and dairy.  We are in our third week. 

Anonymous user (not verified)

Our county is restricted because of 2 or more community spread cases.  I'm glad I got my haircut right before the restrictions, because beauty salons were ordered to be closed.  Since I'm retired and live alone, I have more than enough of everything so I haven't talked to a live person for weeks.  Keeping all of you in mind, and thinking extra thoughts for any of you who are still actively fighting.  The sun was out today in my world, and as Little Orphan Annie said, the sun will come out tomorrow, bet your bottom dollar.  Hugs

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

This is the first site I visit every morning after I walk Harry. Spring comes and goes in NC, beautiful 4 days of high 70's and sunshine and pollen ) : but yesterday cold and rain last night but it washed away the pollen (  :  Don'swife, we lived in Omaha for 2 years some 20 years ago and I will have to say, it was not my favorite state. But the schools were fantastic and it only snowed lightly the 2 years we were there for which this southern girl was most grateful. I am so glad more are checking in. I did not realize how much I wanted to hear from all of you until I did not. Stay well.

barnyardgal
Posts: 270
Joined: Oct 2017

We were doing well in spite of the stay at home orders. I have lots of books to be read, dogs to walk, and a vegetable garden to get in. Then last Tues I started with a stomach ache which switched to the right side. Got a ct scan Wed. and have a ruptured appendix. I was in the hospital for a few days but now I'm home and doing 14 days of iv antibiotics. Once infection heals and covid19 calms down, I'll go back in for an operation to take the little rascal out. Duri g the ct scan they saw a couple abcesses on liver. They think its from the appendix rupturing, and will heal but I'm scheduled for an MRI to check in a couple weeks. I worry about mets of course but my ct was clear in Novemer and abscess in liver due to appendix rupturing is the most common reason for abscess there.  I thought this heal the rupture first before operating sounded strange but after looking into it, it's become more common and is much safer.Sometimes they don't even need to operate but I want the appendix gone.

My immune system is usually pretty strong but drs are concerned because of covid so we are self isolating as much as possible.

It's always something.

LisaPizza's picture
LisaPizza
Posts: 333
Joined: Feb 2018

Oh gosh, how awful! Glad you're doing ok.

TeddyandBears_Mom's picture
TeddyandBears_Mom
Posts: 1723
Joined: Jun 2015

Hello All,

I was happy to finally be able to access our beloved site here. I really missed everyone! So good to catch up with those that have found their way back in.

We have been self-isolating for about 3 weeks now. Our area in Florida hasn't been hit yet. Although, I suspect we have our share that hasn't been tested and is hanging out here.

Very strange times we are living in. I miss the grandkids but know it is better for all of us.

I'm fortunate to have beautiful weather and a nice yard to spend time in with my husband and two dogs.  We have a freezer full of food and only go for groceries when we run out of fresh fruit and veggies.  Mask, gloves and glasses and a ton of washing when we get back home. I have only been out one time in the last month. And, really, that is A-OK. I stay busy and feel lucky to wake up healthy and happy every day.

Take care and stay strong. We will get through this and come out stronger.

Love and Hugs,

Cindi

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2852
Joined: Mar 2013

First, I need to agree with Fridays Child, I have gotten "blocked' a few times too.  I said the heck with it and saw it posted ???  Anyways...

Working from home and praying for all those who are out there and continue to work:  my co-workers in aviation and operations, the store workers and especially the front line doctors, nurses, fire, police, EMS, garbage men, etc...there are a lot more than I have mentioned.  

May you and your loved ones be safe.

janaes
Posts: 800
Joined: May 2016

Hello,

Its weird here in Utah much like other places as well. We are supposed to stay home stay safe execpt were nesasarry. Ive been working still because i serve lunch at school so they still need us. We do a drive up service for those families that come.  It feels weird though around here. Its working out ok though and we are trying to ajust to another new normal.

MAbound
Posts: 1094
Joined: Jun 2016

I'm ok. My husband and I have each other and are well-stocked. The anxiety is all on behalf of my daughter who is riding this out by herself in Hoboken. We sent her 2 care packages so far so that she doesn't have to repeatedly go hunting on foot for that one roll of tp that most stores there are rationing people to, but I'd be sleeping better if she had been able to move in with us by now. I'm a worrier, so this is driving me a bit crazy. She's my fearless child, so not always as cautious as I would have her be.

I'm so glad to hear that Denise made it to Michigan ok! Let's all stay safe, ok?

Armywife's picture
Armywife
Posts: 452
Joined: Feb 2018

Finally checking in from South Carolina. We left Texas the first of March and took about a week to get here, stopping to visit some folks along the way.  Just in the nick of time, too, as the  military stopped all travel right after we got here!  Our household goods arrived a little over two weeks ago, and I have been up to my ears in boxes and piles of too much stuff ever since.  We did have to go out an awful lot the first week or so because we had literally nothing in the house, but are well stocked now and praying to stay that way.  It's been a huge adjustment:   moving back to a place where I have good friends but a lot of unhappy memories too; being together 24/7 after him serving in the army for over 40 years; trying to make all our possessions fit in a house that's painfully too small for us; worrying about my only daughter, who has lived in Guatemala for almost 7 years and is locked down over there, unable to work at the mission where she serves girls who are victims of horrific abuse, unable to come home because the borders were closed three weeks ago.  My passport is expiring and I can't go out to get a photo taken to renew it, even if I could travel now.  It's unnerving knowing that my daughter can't get to me and I can't get to her if there's an emergency.  I have missed all of you while we were in transit and setting things up here.  So glad to know y'all are ok.  Praying we all weather this storm and as ever, thankful for each and all of you.  I am hoping to find a new cancer care team before I am due for my next checkup in June.  Unnerving to leave my original care team in Texas. 

Fridays Child
Posts: 199
Joined: Jul 2019

Armywife, glad you made it to your new home and hope you'll be getting settled soon.  Best of luck finding a new care team!

I hope and pray everything goes well with everyone's kids who are in various locations.  Can't imagine how hard that is.

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

For the last 2 months, my children and I have been focused on getting everything done so I could pass in peace when the time comes. Now this virus has changed everything as I have 3 who work in hospitals and 2 in law enforcement. Then this morning got the news that son-in-law was exposed 10 days ago while on the gun range. Now my daughter and 2 grands,15 and 17 have been exposed. This is just not right. The virus has upended all our lives and there is no way we can do anything but hope and pray. 

I am glad to hear that we are all being strong and to hear from Armywife who has been moving into a new life. Believe me I understand the husband being home 24/7. 

Would love to hear from Little Annie who is on the L/K treatment. Hope you are doing well.

df 

NoTimeForCancer's picture
NoTimeForCancer
Posts: 2852
Joined: Mar 2013

Donna Faye, I can't imagine what you are going through.  

I emailed a friend in NYC and told her how the heroes are all those on the front lines.  She wrote back:

"All those on the front lines are our heroes!  Every night at 7pm everyone goes to their windows and claps or bangs pots and pans to applaud them."

I think it is for your family as well.  Please share with your children, my prayers are for them and those who step up to help.  

zsazsa1
Posts: 549
Joined: Oct 2018

Donna Faye, hang in there.  Don't worry too much.  I know it's very scary, but they are younger.  Many cases are very mild.  My girlfriend's  50 yr old sister in law in NJ had it, and wasn't that sick.  So far, none of her family have caught it from her, and they were all in the house together.  The death rate for people under 50 is 1 in 500.  For people in 50's, probably less than one in a hundred.  We read about the worst, but that's only because it's not news that so many, many people have mild symptoms, don't get tested at all.  So try not to worry, try to think the best - it is very likely that everything will be fine, and that the whole family will be okay.

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

zsazsa, that is good to hear. My son-in-law is sick with flu symptoms so he is isolated and the daughter and boys are also isolating as well. I woke up with a tension headache this morning so am trying some relaxation. I was the nanny to these boys from 8 weeks old and it is so scary to think of them sick. One's BD is the 7th so am sending all sorts of surprises.

zsazsa1
Posts: 549
Joined: Oct 2018

For the young, virtually never severe.

dgrdalton's picture
dgrdalton
Posts: 149
Joined: Jun 2017

I've also been wondering about Little Annie. I had my #1 Keytruda infusion yesterday in St. Louis. The 400 mile round trip was not bad as traffic was much less than normal. Had my first Lenvima dose of 14 mg this morning. My blood pressure did go up but not quite enough to contact oncologist. 
My husband and I are blessed to be in the country on a gravel road, so we didn't get much company before the stay home orders. We still have venison and veggies in the freezer from last year. He's already started this year's garden as it is finally starting to dry out some.

Our oldest daughter & family have a home based business so they are safe. The youngest is an RN at a children's hospital and so far has not had to work with any COVID19 patients. My heart goes out to those that are working on the frontlines of this pandemic.

So thankful for this group! My prayers are with you all!

 

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

I knew you were due to start the L/K treatment and was wondering if it was postponed. Many here are not able to begin due to lack of PPE equipment for infusions. Hope all continues well - I think starting on the lower dose is good. Sounds like you have things in hand.

Tamlen's picture
Tamlen
Posts: 286
Joined: Jan 2018

Donna, I'm so sorry to hear about your son-in-law. How stressful this must be for all of you with so many in your family in frontline jobs. I'll hold you close in my thoughts.

We're fine here so far, both working from home, bickering only a little here and there, watching comedy movies at night for the laughter. We've been self-isolating for about 3 weeks now. My husband goes out every day to ride his bike and I leave our property to hike daily with our dog on a little-used mountain trail. Other than that, we don't go ANYWHERE. We're well stocked but able to get groceries delivered and can get everything else we need online, if need be. We have this ridiculously long protocol we follow after a grocery delivery -- gloves, sanitizer wipes, garage table for 3 days, hand wash, hand wash, hand wash, and on and on. Never has one shopping's groceries taken so long to put away!

My cousin tested positive just over two weeks ago and is recovering at home, mostly over it now. That gave us all quite a scare.

Please take good care, everyone.

oldbeauty
Posts: 288
Joined: May 2012

We are fine in our city where there are some cases but we are not a projected hot spot at this time.  Our governor placed our county on "lock down" early on; whole state now.  Gym closed weeks ago but we'd stopped going a week before that anyway.  I rescheduled any physical therapy appointments until mid-April and likely will re-schedule them again into May because they are not really essential.  Hated giving up private weekly yoga but my instructor was offering only Zoom lessons and now I'm glad I didn't sign on given their security issues.

Hubby and I are best friends and we find each other endlessly interesting so being together 24/7 is no hardship.  Every day that it is not raining we walk 3-5 miles.  It's warming up and we hope to get down to some yard work and Spring planting soon.  What's hardest is the stopping of socializing.  I like to cook and we have a small coterie of friends to dinner every so often but that's stopped.  I made a big batch of soup with homemade bone broth last week, as well as a large organic meat loaf and delivered some care packages to the single elderly folks on our block.  I'm making a weekly nice Sunday dinner for ourselves and delivery to an older single gentleman who lives a town away.  I feel bad not having him over but honoring the distancing protocol precisely is the best thing for now.  

I had my first TeleMed appointmoint today with one provider.  That was interesting.  I have my next batch of follow up appointments in early May, including CT to check on what's up with my slow-growing single pulmonary nodule.  I feel entirely well.  I'm certain the CT will happen because the cancer center remains open for all business.  Don't know whether the follow up appointments will be in-person or TeleMed.

Most of my anxiety comes from fear of economic/financial health.  We have cash on hand to get us through the year.  We looked at everything yesterday and whittled down the budget to survival mode and crafted a plan to continue it on through 2021 and identify where money might come from.  If all else fails, hubby can begin his Social Security next year.  I have used a respected online calculator to reassure myself that we will be OK under various projected scenarios and that was calming.  But I am a personal finance and business/economic news junkie, and I fear for what is going to be the truth of the other side of the global halt in normal activity.  I find it hard to wrap my head around the projections of the worldwide and domestic death toll.  Mostly, I am heart sick about the effect on hourly wage earners and small businesses.  I fear there will be alot of pain to be endured.  Whether governments around the world are up to the task of caring for and protecting the masses inside their borders remains to be seen.  I know I should just go cold turkey and stop reading all this stuff.  It only scares me.  I do make sure to consume as many stories as possible that demonstrate people's caring and generosity towards their fellow humans.  This is indeed a moral challenge as much as anything.  All each of us can do is be kind and practice the Golden Rule, which is a sufficient tenet to get through this, I think.

So, all in all, life is good.  The improving weather will mean we get outdoors more and engaged in tasks that can elevate our moods.  We hope to be able to swing a domestic road trip in the Fall.  

To all those in treatment, please take care and be well.  To those not in retirement like me and working remotely, keep on keeping on.  To those who may have it tougher, best wishes for your health and welfare in these difficult times.  Apply for all the benefits you may be entitled to and hang in there.  This will end, and we will return to a more predictable and stable reality.

To any newly diagnosed ladies who may find their way here, please rely on us to help you navigate the health care system and to better understand your diagnosis and treatment options.  This message board is active and full of ladies who are very knowledgeable and we all want to help our sisters in need.  If nothing else, we are an endless supply of shoulders to lean on.  

Best wishes to all, Oldbeauty

Quilter_1's picture
Quilter_1
Posts: 103
Joined: Mar 2019

Hello evergone, I've been absent for a while.  Not just because the site was down, but, because I don't want to dwell on cancer anymore.  It's not that I don't think about it, I just don't want it to define me.  Like all of you, this pandemic is affecting my life.  I was supposed to see by gyno/onc March 24 and then have my port removed.  My appointment for both was canceled, they were just going to check my bloodwork, if it looked off they would have me come in.  Fortunately, my bloodwork looks good, so I will see my doctor in June if this mess is better by then.  I hope that you all continue to do well.

jan9wils's picture
jan9wils
Posts: 146
Joined: Mar 2017

Greetings from Dallas!  I'm holding up okay after spending a few days in the hospital for a bowel obstruction.  I couldn't wait to get out of there and everyone agreed I'd be better off home recovering.  I'm saddened that I now will restart my 21 days of self-isolation before I try to see my new granddaughter. I know when I was in the screening tent outside the ER the man across from me had the virus. He was coughing horribly and had a high fever.  I was wearing a mask and only two were allowed in the screening area at a time but it still makes me nervous. I live alone and admit that  I miss having physical contact with my children and grandchildren.  I had been taking daily walks and preparing my vegetable beds before getting sick and look forward to getting back to it.  I have a niece and a nephew who are ER doctors in Toronto.  I worry about them but they are doing well.  Like everywhere they are concerned about having enough PPE in the near future as they purchase a lot of it from the USA.  

Like Old Beauty, I too am concerned about my finances.  But my kids are all still employed and working from home so that's a blessing.

I am very grateful I found this group and for all of the encouraging support from everyone on this board. 

BluebirdOne
Posts: 369
Joined: Jul 2018

Sorry to hear about the hospitalization, that must have been scary for you. We are all missing our families right now. My daughter in law is 7 months pregnant and 600 miles away with my two year old granddaughter. we haven’t seen them since Christmas and have no idea when we will. Thanks for checking in. 

xxoo

Denise

Donna Faye's picture
Donna Faye
Posts: 430
Joined: Jan 2017

So good to hear from Jan9 and that she is OK. I know we all miss the children and grands but we love them enough to stay home and keep them well. So far my boys are not showing any symptoms, but this Wed. seems to be the date the doctor is concerned about so temps are being taken daily. I zoom with them every day and that comforts me.

I hope all we have not heard from are OK. I know many were starting new treatments and may not be able to continue with the virus so rampant.

Anyway, thinking of all of you and hoping for brighter times as summer looms.

Fridays Child
Posts: 199
Joined: Jul 2019

Donna Faye, I've been trying to answer your message but it keeps being blocked.  Didn't want you to think I was ignoring you!  Thanks for the reply and I'll respond when I can!

 

Subscribe to Comments for "Let's all check in,please"