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Older members please shout out

MaryCarol5's picture
MaryCarol5
Posts: 102
Joined: May 2013

Hello all!   I joined in May 2013 and went straight into the battle against colon cancer- restaged 3C.   I have not checked in here for quite some time but hold all fellow fighters and survivors in my thoughts, prayers, and heart.  

If you are just beginning this journey, stay strong, be brave, and know that at this very moment, you have life.  Keep fighting. 

If you were here when I joined, yay us!!!!   Though I wasn't vocal often (I had difficulty with expression during treatments), you all were so vital to my life force.  Thank you!

I am now 7 years NED.  I have been busy loving on my children (5), a new granddaughter, hiking and MTBing as often as possible, and just inhaling all that this wonderful world has to offer. Work also keeps me very busy as I am a nurse specialized in geriatrics with an emphasis on dementia.   I count my many blessings every morning when my eyes open once again.  

As I have said, you all are in my thoughts and as I have been reflecting on this journey of my life, I would love a shout out from each of you.  How you are doing, years NED, or just hello. 

Much affection,

Carol

Trubrit's picture
Trubrit
Posts: 5417
Joined: Jan 2013

I joined this forum January 1st 2013 after a Nov 2012 diagnosis. 

Stage IV and about to celebrate SIX years NED on April 24th. 

Tru

MaryCarol5's picture
MaryCarol5
Posts: 102
Joined: May 2013

Yes!  Trubrit!  I remember you- and I am so happy to hear from you!  That is great news (and the day after my birthday)  Cheers to us!

Trubrit's picture
Trubrit
Posts: 5417
Joined: Jan 2013

   It is never too late to celebrate a birthday.  I hope you had a wonderful day. 

Tru

beaumontdave's picture
beaumontdave
Posts: 1130
Joined: Aug 2013

Hi MC5!! I've been here since August '13, though I followed on and off without comment from early '08. Stage 3b w  two liver recurrances, 5 1/2 years NED. I'm happy to hear another long-time voice, an awful lot have been silenced from then to now. Keep on trucking!!!!!.......................................Dave

MaryCarol5's picture
MaryCarol5
Posts: 102
Joined: May 2013

Hi Dave!  Such great news and thank you for the shout out.  I am smiling big right now. 

Annabelle41415's picture
Annabelle41415
Posts: 6694
Joined: Feb 2009

It's so good to hear that you are NED 7 years later.  What a wonderful milestone.  I'm still NED 11 years after joining in February 2009.  This site was such an inspiration for me.  So glad that you are out there living life.  Wishing you continued health and thank you so much for the update as it's great to hear of long time survivors.

Kim

MaryCarol5's picture
MaryCarol5
Posts: 102
Joined: May 2013

Hi Kim!   Thank you for saying hello.  I remember you as well.

Yes, hearing from other long time survivors is so heart warming and also, I would think, uplifting to those still in the trenches.  I remember hearing here time and time again "just keep swimming" and to me, that was so simple but powerful.  

Congratulations on 11 years and best wishes for many many more.

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

I would like to say hello and say I am stage four and have survived four re occurrences... I joined in 2006 and I am still going...keep going...mags

 

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

We need a like button.  I'm so glad you're here.  You're amazing.

Lovekitties's picture
Lovekitties
Posts: 3362
Joined: Jan 2010

So good to see your familiar pic Mags.  I joined in 2010 and am still around...no robot making this post...lol

Everyone stay safe in this time of turmoil.  May blessings be granted to all.

Hugs, Love Kitties

Annabelle41415's picture
Annabelle41415
Posts: 6694
Joined: Feb 2009

Thank you Kitties for the update and it's good to see your post.  Hope you are well.

Kim

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Hey Kitties and Annabelle, so great to see you.  I hear Annabelle has a birthday,  HAPPY BIRTHDAY!

impactzone's picture
impactzone
Posts: 542
Joined: Aug 2006

Still here after 13 years Stage 4. I don't post as much but still read and comment if there is anything I can help with.

Stay safe all

Deena11
Posts: 199
Joined: Nov 2012

I rarely check in here anymore but did when I was going thru treatments 8 years ago. I decided to check in today because I'm worried about the warriors fearing the Corona Virus. Stay strong!

danker
Posts: 1280
Joined: Apr 2012

Did you mean survivors who were old like me(sonn to be 88) or those who have bn mmbers for quite a while?

I count on either meaning since I joined in April of 2013.  LOL

Don't like restrictions caused by Virus but have no choice living in a home for seniors.   Seems like being in jail, only with very nice accomodations and no gards. LOL some more!!

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Hey Danker!  Check the cake, it has a file in it=)

Kazenmax's picture
Kazenmax
Posts: 449
Joined: Feb 2016

So wonderful to see people winnng the battle! Much love to you all!

k

abrub's picture
abrub
Posts: 2158
Joined: Mar 2010

and still doing well (tho back on chemo since September.)

Alice

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Alice WOOOT!!!!!

maglets's picture
maglets
Posts: 2596
Joined: Jun 2006

Hello Alice....how lovely to see you.  Sorry to hear you are back on the chemo train.....how is it going? mags

marbleotis's picture
marbleotis
Posts: 714
Joined: Mar 2012

Hi Everyone,

I joined in 2012.  I was a stage 3 signet cell colon cancer patient.  I am now 8 years NED.  Some days I just cannot believe that.

For newcomers - sorry you are here but this forum will help you with just about everything.  We have all been through some much and there is always someone to share or just listen.  This site got me through some very scary and dark times.

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

HELLO!  Yes it did!!

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Oh goodness, thinking back to 2012, the year from hell.  And then 2013, which made 2012 seem like a walk in the park.  There aren't enough anti-anxieties in the world to get me to tihnk of those times often.  There are many of us still here.  I chose to go organic, I gave up wine, bbq, sugar.  All the things on the no list.  I did the treatments suggested and drastic surgeries.  I at broccoli sprouts on peanut butter sandwiches and drank almond milk.   I'm not sure if any of it was necessary or helpful or what to this day.  I'm still here.  Every day is a mental struggle as I was young and the doctors pretty much disfigured my body.  But I'm here.  And I dance.  And I have moment of joy and moments of depression.  I try to remind myself often of the days I was afraid of death and how I pulled through it.  I miss some of the OGs.  Buzzard, Dochawk, VickiLG, nanab, Johnnybegood, Leena, Barbebarb, even crazy, pushy Pete.  I have such a long list.  We were all just trying so desperately to survive.  My favorite will always remain how we were allowed to let go every Friday with one post.....What are you doing this weekend?  Everyone would drop their cancer for a day and talk about their weekend.  And then we'd pick back up on worrying on Monday and everyone would go back to arguing with Pete.  Every board should have that post and at least one crazy person=)  It really did pass the time and get us through some tough times.  

To everyone still fighting, keep fighting!  There are a lot of people who do survive from stage I to stage IV.  I don't have all the body parts I used to have, I've been to hell and back, but I'm here and now it doesn't hurt as much as it used to.  I have some health issues but they're becoming more and more routine and manageable.  it's exhausting, it's overwhelming and you just want it to stop but you are worth fighting for, you can do it! 

Trubrit's picture
Trubrit
Posts: 5417
Joined: Jan 2013

Just kidding!

Pete was one on his own, I think. 

All of those names of frends now passed that you mentioned. And Craig - The Lion. Ren, WinterMarie, LilPep (Pepe), Lisa, John, John Anderson, Lizzard (Grace), BigMan4Christ; and so many, too many more.  And we don't forget husbands of members like LindaK, LivininNH, Kathy's, Angelsbaby, GeoTina and Your husband, Wolfen. Our most recent losses, Barb, Karen & JanJan.  None of them forgotten by us old timers.  We mourn their loss and live our promise to honour them by living life to its fullest. 

Its good to see you here Helen and Wolfen. 

Tru

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

lol I miss Pete.  i loved Pete, he was a special kind of nuts.  I never knew why people didn't get that and just ignore him.  I read his blog about his life.  He led a fascinating life.  I miss them all and think of them often.  Pepe hit me very hard.  Quite a few people did.

Trubrit's picture
Trubrit
Posts: 5417
Joined: Jan 2013

he was a special kind of nuts

Except put she, as I am female.

It is good to see you posting, Helen.

Tru

Annabelle41415's picture
Annabelle41415
Posts: 6694
Joined: Feb 2009

Oh my goodness, it was so good to see your post.  Yes, we had "what are your plans for the weekend".  Pete used to push us to lengths we never knew, did every test possible to man, yet he was on here every chance to give us his treatment data, new studies that have been introduced to him and how he handled them.

I've been here a long time, so I've seen so MANY people that have passed.  I've cried many times on here when there was a passing.  It was so hard becoming "family" with so many that you have never met, but thought you knew right here on the board. 

Once again, it's so good to see your post.  I'm glad you are doing well and living life.  Please come back and update us again-we would love to have you share some of your journey.

Hugs!  Kim

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Kim, there was a period of time that was really harsh.  Leena Boyd.  Vickie.  I think her sign on was VickieLG.  Just so many more people.  I miss them a lot and think of them all the time.  Such good people.  I post all the time.  Less profit, more cure.  They are the reason I say that.  We really do need some sort of progress in this disease.

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Kim, there was a period of time that was really harsh.  Leena Boyd.  Vickie.  I think her sign on was VickieLG.  Just so many more people.  I miss them a lot and think of them all the time.  Such good people.  I post all the time.  Less profit, more cure.  They are the reason I say that.  We really do need some sort of progress in this disease.

wolfen's picture
wolfen
Posts: 1328
Joined: Apr 2009

Helen, so good to hear from you and I absolutely love your post. Glad to hear you are doing well, still kicking butt and taking names. You brought a smile tinged with sadness remembering our wonderful old friends. I miss my Johnnybegood every day.

Take care,

Wolfen

Annabelle41415's picture
Annabelle41415
Posts: 6694
Joined: Feb 2009

Wow it's so great to see your post as well.  I'll never forget the picture of your daughter on her front porch and then again with her horse.  We were diagnosed about the same time and remember her posting such positive posts even though she was going through so much.  She loved her horses and it made her so happy to be able to go out there and ride.  Also remember your hubby and the struggles he had and how much you have gone through with his loss as well.  Wishing you the best, dear.  Thank you again for your post - hope you are doing well.

Hugs!  Kim

Helen321's picture
Helen321
Posts: 1424
Joined: May 2012

Of course Wolfen, and your JohnnyBeGood with her beautiful horse.  So many of our friends.   You helped me through some really hard times, even through your own suffering and loss and I love you for that.  

fedester
Posts: 758
Joined: Jul 2004

Good evening survivors,

dx stage 2 May 2004 , chemo 6 months . Reoccurrence 2009 no chemo . I am 

sadden by the loss of all . I am well other issues now but not cancer . I check in from time to time to read posts . I pray for all who are here . There is light at the end of the tunnel . 
Stay strong , believe in the man upstairs and never ever give up.

Regards 

Bruce 

grammadebbie's picture
grammadebbie
Posts: 464
Joined: Jun 2009

Greetings everyone!   Those were the days my friends.  I was diagnosed IIIC in 2007.  Wasnt real active in writting but lurked alot!  It is so good to see so many of you are still active on the site.  So I have been NED for all this time and so very thankful.  I am on my way to the Onc. for results.  PET scan showing to areas suspicious of active malignancy in colon.   Appreciate your prayers.  

 

 

Trubrit's picture
Trubrit
Posts: 5417
Joined: Jan 2013

I am sorry to hear this and hope that the PET is picking up shadows and not anything worse.  

Are they doing a colonoscopy as a followup? 

Keep us informed. 

Tru

grammadebbie's picture
grammadebbie
Posts: 464
Joined: Jun 2009

Thanks Tru, Yes my colonoscopy is tomorrow 3/18.  Also getting set up for a 2nd opinion at Mayo Clinic AZ if necessary.  I really appreciate your prayers.

grammadebbie's picture
grammadebbie
Posts: 464
Joined: Jun 2009

I was able to view my biopsy on my health network,  NO CANCER   Thank You Lord.

See Drs. Thurs and Fri.   I think it is so sad that if I had not searched on my own I still would not know the results.  I would be wondering and the results have been in for 3 days.

pamness
Posts: 529
Joined: Nov 2007

I was diagnosed in January 2007.  Stage 3a, colon cancer.  Surgery, folfox radiation.  Obviously, I am still here.  My battle was pretty standard, with a brief pit stop with breast cancer in 2013.  I check on every so often to see what is posted.  I can only repeat what others have said.  Be strong,be brave and keep fiighting.  Maglets, I remember your posts from back in the day.   

My thoughts and prayers are with everyone battling this horrible disease.

Pam

DanNH's picture
DanNH
Posts: 96
Joined: Feb 2021

My wife was just diagnosed with Adenocarcinoma, stage 4. She got her port Wednesday and starts chemo on Tuesday of next week. Your message and all of the responses from the long term members is more uplifting than I can describe!

tanstaafl's picture
tanstaafl
Posts: 1299
Joined: Oct 2010

My wife is chemo free for 2.5 years after 2 surgeries and 8 years of personalized immunochemo.  Still does some  extra supplements and IV vitamin C.

darcher's picture
darcher
Posts: 298
Joined: Jun 2017

I don't consider my self as a real old timer. Been here since mid 2017 so maybe that qualifies me as semi? But, I bet I'm the only one that can say getting colon cancer saved my life. The brain tumor which would have killed me in a couple months was discovered because of this. I guess that puts me in a unique position although sad because nearly everyone else who's had both didn't survive. In any event, I'm still standing! That's our theme song.

Annabelle41415's picture
Annabelle41415
Posts: 6694
Joined: Feb 2009

You are old - and you count.  You have been here for quit some time and remember you.  It sounds like you have gone through a lot as well and so glad that a terrible diagnosis was a "blessing in disguise."  Glad that you are still coming around and sharing your story.  It's good to hear from you.

Kim

Phil64's picture
Phil64
Posts: 837
Joined: Apr 2012

Hello Carol and all. I first signed on this forum in 2012, after being diagnosed with Stage IV colon cancer. I'm now 6 years NED. 

i too keep all my fellow cancer warriors in my prayers and yes, I haven't posted in quite a while. Life sue keeps me busy too. Five adult children and ten grandchildre, along with a demanding job keeps me hopping. Add a few home projecte to the list and sometimes it feels like too much.

 

it's good to see a few names I know in this post, and mentions of a few I knew who have passed. 

 

((Hug))) to Wolfen. Johnybegood was a good friend to me when I was really battling. 

Blessings to you all!!!

 

Phil

wolfen's picture
wolfen
Posts: 1328
Joined: Apr 2009

Got your hug and it felt great. Not much hugging going around these days.

Good to see your smiling face and hear that all is going well. 6 years is a great milestone. Stay well and enjoy that family.

Luv,

Wolfen

marbleotis's picture
marbleotis
Posts: 714
Joined: Mar 2012

Hi Everyone,

 

I guess I would be considered "old" but I will take it.  I am 9 years NED and been a part of this forum for all that time.

I am NED, I just love to write that as I was not sure during the process.  You do go to some dark places with colon cancer.

All the best to everyone.

LindaK.
Posts: 502
Joined: Apr 2013

Hello everyone, I joined this group after my husband was diagnosed with stage 2 colon cancer in December, 2012.  It was so good for me to have this group for all my questions and concerns.  My husband passed away 11/2/14 so I am 6.5 years a widow.  It's crazy how our roles reversed after his diagnosis.  He was always an optimist and I was more of a "realist"  Well, I had to become the optimist, I didn't even realize it really until after he passed.  Looking back, I think what a fool I was, believing his first incompetent oncology group.  What did we know?  We beileved them and followed everything they said.  When people say "Do your homework" it irritates me a little.  How were we to know what to question at that time?  Our daughter is a nurse and she rcommended this oncologist because she had seen his bedside care when people were dying in the hospital. Can't look back with regret, but I still wonder "what if..."  A former supervisor of mine was diagnosed with pancreatic cancer around the same time my husband was diagnosed.  Almost 10 years later, this man is retired and living life to the fullest.  Life is not fair

3 months after he finished 12 rounds of Folfox he started having new issues.  Went to all his doctors (surgeon, GI, oncologist, PCP) and no one would order a scan or test.  Only a very caring NP at the GI doctor's office was helping him.  He ended up back in the ED in January, 2014 with another tumor, surgery and then became stage 4.  Lazy oncologist whose office was in the same building as the hospital FINALLY came to see him 4 days after his surgery and after I called the office the day of the surgery to tell them.  Yes, I am still bitter about this.  After 21 days in the hospital, we RAN to a local highly rated oncology hospital and never looked back.  a PET scan was ordered at the first visit (never had one before) and Folfiri was started the next week.

Things did not go so well for him, several hospitalizations, lots of pain, etc.  In September he was sent home on home hospice and passed away 6 weeks later.  

I have been doing fine.  I plan to retire in 15 months.  Both my parents have passed away also since.  My parents lived very frugally and both wer 91 when they died.  They were able to give my 4 siblings and I enough money to live comfortably.  When my financial advisor ran my retirement plan, he said there was a 99% chance I would live comfortably to age 91 myself.  I am not saying this to brag, but when he told me, I burst into tears - my reaction being sad my husband wouldn't be here to enjoy it with me.  

Life goes on

I'm glad to hear so many people here doing well.

Linda

Trubrit's picture
Trubrit
Posts: 5417
Joined: Jan 2013

Don't fret about being bitter. I know you are not wallowing in it, and cutting yourself off from life - I have seen that; and it is a terribly waste of a life. 

enjoy your retirement.  

Tru

Deena11
Posts: 199
Joined: Nov 2012

I went thru chemo in 2012 and joined this group. It's been almost 10 years that I've been cancer free.

Deena

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