The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.
More Insurance Mother May I
This is getting really old, really fast.
My insurance company decided to reject the Vitrakvi, claiming they need proof I have the NTRK fusion and that there are no conflicting mutations.
Errr .... isn't the Foundation One report proof of that? The ... blank?
I am pretty darn sure the doctor is going to appeal the crud out of this, and I know that Doxo/Bayer claims it will work with companies re the cost to insurance and to me, but I am getting sick and tired of insurance games.
In the meantime, I need to know how those gallstones are doing in there. I know I had them in March, and since then, I've been having rising CA-125 levels. Trending my CA-125s personally since October, it really seems to me that some nonsense in there is affecting the numbers ... some sort of infection or inflammation. I've had it go up within a week of four separate abdominal issues. Maybe my gallstones aren't an issue and the pain is my imagination, but I'm sick of my imagination affecting my sleep and a couple of times, waking me up out of a sound one. I want to see what the next scan says, then ask my med onco if she knows of a gastroenterologist who can give my stones a second look-see. Upper right side tender (the one side NOT mentioned on the last CT scan), pain in lower breastbone/upper stomach area, etc. I wouldn't be surprised if I had ulcers instead... or maybe even ulcers AND gallstones. Stress? Nah ... not at all!
A heatng pad/hot bath helps a lot, but I can't spend the day with a heating pad strapped to me!
Oh ... and the sinsuses from Hell are joining in. Lots of nosebleeds, congestion and/or drooling at night. The drooling just looks so, so sexy! This has been going on since March as well. From what I've read, and from talking to other women with endometrial cancer, that can also affect a CA-125.
I've had better days, that's for darn sure! The insurance company was just the cherry on top.
Comments
Discussion Boards
- All Discussion Boards
- 6 Cancer Survivors Network Information
- 6 Welcome to CSN
- 122.5K Cancer specific
- 2.8K Anal Cancer
- 455 Bladder Cancer
- 311 Bone Cancers
- 1.6K Brain Cancer
- 28.6K Breast Cancer
- 407 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 681 Leukemia
- 802 Liver Cancer
- 4.2K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 242 Multiple Myeloma
- 7.2K Ovarian Cancer
- 69 Pancreatic Cancer
- 493 Peritoneal Cancer
- 5.6K Prostate Cancer
- 1.2K Rare and Other Cancers
- 544 Sarcoma
- 743 Skin Cancer
- 659 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.4K Lifestyle Discussion Boards