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Waiting on biopsy results

wolfera
Posts: 46
Joined: Sep 2018

I am a 37 year old. I went to my gynecologist a couple of months ago bc I was experiencing random heavy bleeding and basically a continuous cycle. I’ve always had irregular periods, but the bleeding got so heavy that it prompted a visit to the doctor. I immediately had an ultrasound, which showed an endometrium thickness of 33mm, adenomyosis and a polyp.

 

My doctor was concerned and performed a hysteroscopy and d&c. She took a sample of tissue for biopsy and I am awaiting results. In her operative notes she indicated “abundant abnormal tissue” and “suspicious malignancy “.

 

Obviously, my thoughts go to the worst places and I’ve been a panicky mess for the last 5 days. Has anyone had similar symptoms that turned out to be benign? Any insight is greatly appreciated!

janaes
Posts: 741
Joined: May 2016

Wolfera, Im sorry you have to deal with this. Its hard not knowing. If fact many think that is the hardest part. Just taking one thing at a time is the best thing to do. You will find out what all this means but it just takes time.  I did have heavy bleeding that got me to the doctors.  You might not have cancer. There are other ladies on this board who might be able to help you with that termenology that your doctor wrote down. Lots of people have said a D&C will give you good results.  When are you to get your results back?  I had a biopsy that found my cancer.  I will be praying for you.  Its okay to think this is hard. I would say go easy on yourself.  Its scary to be faced with this and just know your not alone.  

Janae

wolfera
Posts: 46
Joined: Sep 2018

Janae,

thank you for reaching out - it means so much. I was hoping to get results today, but no luck. Hopefully my doctor will have them tomorrow. The waiting is pretty tough. I have been an emotional mess all day. I’m so scared and worried. Again - thank you!

janaes
Posts: 741
Joined: May 2016

I hope you get them by tomarrow too. Let us know how it turns out. 

Northwoodsgirl
Posts: 506
Joined: Oct 2009

 I am so very sorry you are going through all of these gynecological issues. The not knowing is hard.

The physician note is fairly vague. Remember that less than 10% probability that you actually have cancer.  That seems a small comfort but it is something to focus on until you actualy get a phone call from the doctors office telling you if actualky have cancer.  

I pray you get some other diagnosis other than cancer.

May you find some comfort in reaching out to the women on this discussion board who have experienced all that you are going through now. We understand and are here fir you no matter what.  Please let us know what you are diagnosed with. If you do have cancer we are here to support in many ways. 

So dear one I hope that you get your pathology report soon and pray you do not have cancer. 

Peace and light, ((Hug))

Lori

wolfera
Posts: 46
Joined: Sep 2018

Thank you for your encouraging words. I’m hoping the results are in tomorrow. I very much appreciate the kindness I have been shown on this message board.

 

thank you again!

Kathy G.'s picture
Kathy G.
Posts: 201
Joined: Dec 2012

Wolfera,

The ladies who posted above are right about the waiting to be the worst part! However, a D&C is pretty accurate...almost, but not as good as a hysterectomy. Hopefully if you have not heard anything yet you will in the next day or two...

If it is cancer you will have a great support base with the ladies on this board. They are very caring and very educated about all things related to uterine cancer.

Come back & let us know your results or just to vent or ask questions.

 

Kathy

wolfera
Posts: 46
Joined: Sep 2018

Thank you, Kathy. The support is very much appreciated. I’m terrified and praying that my docs suspicions are incorrect.

ConnieSW's picture
ConnieSW
Posts: 1415
Joined: Jun 2012

hoping you get good news today. We are here for you whatever happens. 

wolfera
Posts: 46
Joined: Sep 2018

I’m hoping I will hear somethin, too. I called again yesterday to inquire and the nurse indicated that the doctor has received the results, but was with patients all day. I explained to her how upset I was and she said that pathology had not marked the results “red” so they can’t be that bad. While that gave me some hope, I’m not fee trusting and don’t really know what that means. Thank you for the support!! While I love my doctor, I don’t think she understands how anxiety inducing this process is for patients...

BluebirdOne's picture
BluebirdOne
Posts: 191
Joined: Jul 2018

This is the hardest part of waiting for results. It was the worst part so far for me, and I came out after the dx with better coping strategies. We care! 

wolfera
Posts: 46
Joined: Sep 2018

I just heard from my doctor. It’s Grade 1 endometrioid carcinoma. I have an appointment on Tuesday with an oncologist. I’m terrified and devastated. I don’t really know what to do.

MugsBugs
Posts: 103
Joined: Jan 2018

I am sorry that you have been diagnosis.  I have to tell you waiting is the hardest part.  The good news is that it is Grade 1.  I got my diagnosis on January 1 and was also petrified.  I was also Grade 1.  I had a complete hysterectomy by robotics on January 29.  I don't require any chemo or radiation because of the grade and stage - grade 1/stage 1.  You won't know the stage until after the hysterectomy but it sounds like they caught it early.  I just had my 6 months checkup and all is good and I feel great!

I was really worried about the hysterectomy but it was much easier than anticipated - the mind can play a lot of what-if games - try not to go there in the meantime.  Make sure your oncologist is a gyno/oncologist to take notes because your mind will be whirling.  If you have question please come back and ask.  These ladies provided me with such practical suggestions that made this journey much easier.

 

Good luck!!!

wolfera
Posts: 46
Joined: Sep 2018

Glad to hear the hysterectomy wasn’t too awful for you and it sounds like you’re doing well - which is hopeful!

Armywife's picture
Armywife
Posts: 266
Joined: Feb 2018

Ok, so now you know and you can get to work on a plan!  Just breathe a minute.  The good news is that Grade 1 is the least aggressive.  The good news is that endometrioid endometrial adenocarcinoma is the least aggressive and most common of uterine cancers.  The good news is that you are seeing a gyn-oncologist, who specializes in the treatment of these cancers.  The good news is that you may be able to have a robotic hysterectomy, which is the least aggressive surgery, and is usually an easy recovery.  The good news is that if you are Stage IA along with that Grade 1, you may not even need further treatment.  The good news is that if you do need further treatment, there are good options and you have a whole sisterhood of women here who can support you through it - and you will get through it.  We all did!  You mentioned that you don't know what to do.  All you need to do at this point is to make a list of questions for your gyn-oncologist appointment.  Research him/her, and decide if you want a second opinion.  Choose that surgeon and then go to your appointment.  You're going to be ok!

wolfera
Posts: 46
Joined: Sep 2018

Thank you. It’s all fresh and terrifying. I reached out to close family and friends today. We will wait until the gyn oncologist appt next week to tell the kids. I very much appreciate the support and wisdom.

janaes
Posts: 741
Joined: May 2016

Im so sorry to hear your news. I was very angry about my diagnosis.  It was my second cancer and it was hard to gwtcover because i was so young.  I was 20 with my first and 43 with the uterine cancer. I came here with all my paun and the ladies here were so wonderful.  

The previous ladies are right.  Stage 1 is a good diagnosis to have and your final diagnosis will come after the hystetectomy.  We will be here for you.  Take a good cry if you need to just dont get stuck there.  Im hoping you will find you dont have to do further treatment but we will be here no matter what.   

Janae

wolfera
Posts: 46
Joined: Sep 2018

Yes, I have managed to cry a river today. I suspect the same will be true tomorrow. I’m hopeful for good results. Thank you for all of your support!

janaes
Posts: 741
Joined: May 2016

Sorry pain not poun

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