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A Farewell Tour - of sorts

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

Many of you may remember that the band The Who had a "Farewell Tour" in 1982. They had another one a few years later, and then later a "Final Farewell Tour." And they're still touring and playing today.

With that in mind, I decided to do something while I'm still healthy enough to pull it off. I'm calling it my "First Farewell Tour: Inspired by The Who; Brought to you by cancer." I live in Colorado, but most of my family and friends are on the west coast where I grew up, and the east coast where I lived for almost 10  years. I'm starting with the west coast leg in August. I'll fly into Norcal and spend a few days - and catch a "Jerry Day" celebration over the weekend. Then I'll head to Socal for a few days, and I'll finish up in Las Vegas so I can visit with my niece - and some friends as well.

Been having a rough go with side effects lately, including being hospitalized, and wasn't sure I'd be able to do it. But if I don't do it now, I may not have the opportunity later, so I'm going to make it work. Flying solo for this trip, as we are trying to do a vacation in Sept for both of us and she can't take that much time off - nor can we afford dog care for two trips. After reading Fox's post today, I became even more determined to make sure this trip happens and see as many people as I can during my two week adventure. For the first time in a while I feel excited, and am looking forward to something. 

CRashster's picture
CRashster
Posts: 230
Joined: Mar 2017

I'm imagining a similar thing for myself when my situation finally goes south. Have a good trip.

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

I think that's why I'm doing this now. I want to do it while I can still fully enjoy it and get around. My worry is that by the time things really start going south, it might be too late for a trip like this.

Brock1969
Posts: 80
Joined: Jan 2018

Make that trip the best! Enjoy. 

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

It sounds like a great time. You've been through a lot. You can't get enough of the company of old friends." Takes  time,you pick a place to go,you just keep truck in on!" If you can let us know how it goes. Sending more positive thoughts to you.

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

...and I'm hoping the cards are worth more than a dime! Especially for the Vegas leg of the trip!

paintergrl's picture
paintergrl
Posts: 47
Joined: May 2018

Sounds like an awesome trip!! I hope it's fantastic! Side note, I live in CO too. 

APny's picture
APny
Posts: 1949
Joined: Mar 2014

I'm thrilled for you to do this. Go for it!

Allochka's picture
Allochka
Posts: 874
Joined: Nov 2014

Have a great time! The title of the post sounds scary - but the contents is pretty postive :-)

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 204
Joined: Oct 2017

Sounds like alot of fun-how about we rename your adventure " Farewell to letting cancer rule" tour I like that much better.  You are young and have with g-ds help alot of living to do-June

stub1969's picture
stub1969
Posts: 800
Joined: Jul 2016

Enjoy every moment and savor the time with friends and family.

I'm looking forward to hearing about your adventure when you return.

Stub

BoondockSaint's picture
BoondockSaint
Posts: 241
Joined: Mar 2017

Have fun, safe travels. 

Deanie0916
Posts: 259
Joined: Nov 2016

Have fun at the Jerry day celebration! Can't wait to hear some stories. God bless.

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

I appreciate all the supportive comments. I know the title sounds a little ominous, but I also have a FB group where I post updates for friends who want to follow, called I'm not dead yet." Its cover photo is the "Bring out your dead" scene from Monty Python and the Holy Grail. I realize I have a darker than average sense of humor. However, that's one of the things that gets me through dealing with this. I have scans and an onc appt at end of July, right before I leave. I'm keeping positive thoughts that all will be well for the trip. My only real worry is side effects. I was off the Votrient for a week while I was being evaluated (including my night in the hospital). Tonight will be Day 4 of being back on. I think I have an especially sensitive GI; the side effects really nail me there. However, I also know that barring something curative soon, this is the healthiest I'll be, so I'd better make the most of it now.

AnnissaP's picture
AnnissaP
Posts: 631
Joined: Sep 2017

Live and enjoy! Wonderful idea!!!

Angiebby75's picture
Angiebby75
Posts: 192
Joined: Aug 2017

Enjoy and safe travels. 

Glidergal365's picture
Glidergal365
Posts: 93
Joined: Feb 2018

I hope all your travels go smooth and you make some great memories with folks! 

amandac2018's picture
amandac2018
Posts: 26
Joined: Feb 2018

I hope you have the time of your life. Enjoy friends, family, memories and have a great time !!!!

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

I'm so glad I did this while I am still able to get around pretty well. It was truly humbling to have so many friends and family come together in so many different places. I am moved beyond words by people's generosity and hospitality. This has helped me to become acutely aware of how lucky I am to have such wonderful people in my life. We sometimes don't realize how much people care, if we don't reach out and let them know how much we need them. I've been home for over a week and am still completely blown away. 

Jan4you's picture
Jan4you
Posts: 1322
Joined: Oct 2013

WOW, glad you had this time away "on tour,"

Hope you documented all these memories, with pictures and such.

Thanks for sharing~glad you're back here with us too!

How did you hold up with side effects and all?

Hugs my friend, Jan

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

In general, I did OK on the reduced dose of Votrient (400mg, down from 600). I did get worn out a few times; I had to leave a concert early at one point. I also had one rough night/morning and spent an unplanned extra day at a hotel so I could sleep and rest. I had a few GI issues, but nothing close to what I get at 600 mg. If I'd had three weeks, I could have built in more rest time  But overall, it worked out pretty well  

JoeyZ's picture
JoeyZ
Posts: 205
Joined: Mar 2018

What a great story! I'm so glad you got to do this. I bet you can't wait for Part II.

I just took a trip also, to the West Coast of Oregon, where I was born and raised. Have one sister there, another came from CA. so it was nice to see them. Also a brother further upstate. One more coming out here to see me this week. So I'll have seen them all. Saw my two kids and between them, the 6 grands. Oldest is 18 today, youngest is 6. So great to see all of them. It was even nice to see the Ex, Dad of the adult children. It really was.

One can't help but feel, or believe, that this is the last time you'll see them. But I could not say "Goodbye." Instead I made a point of saying, "See you next time."

Anyway, not to hijack your nice post here...I checked out your FB Group and hope you'll allow me in! Looks great.

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

Sorry, I didn't realize that was you asking to join. If you want to try again, I'll be happy to approve you. 

JoeyZ's picture
JoeyZ
Posts: 205
Joined: Mar 2018

Ok! Many thanks. 

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

So glad to hear the trip was a success. Good for the soul. On tour with the band summer of  "18", can't wait to hear for a tour in 19. Enjoy the rest of the summer.

ImNotDeadYet's picture
ImNotDeadYet
Posts: 241
Joined: Apr 2017

While there was no official band, we did get a cool little jam session going during a party a friend threw for me. He and his wife are in a band, so they have the full set-up in the living room. I got to do some not-so-great drumming and some mediocre bass playing. But it was close enough for rock and roll, and I had a good time. 

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