CSN Login
Members Online: 1

You are here

Guess what???

CRashster's picture
CRashster
Posts: 228
Joined: Mar 2017

Yes, it's scan week! You guys know how much I love scanning. Fun fact, you really only hear from me every 6 months during scan week! Hate it. It's Friday, so you know I'm already stressing. Did bloodwork on Friday, videoed the whole thing and didn't flinch. Freaked the girl out. My scan is early like 9am and I've taken the rest of the day, but haven't figured out what I what to do with the rest of the day. May go fishing. Probably go to the mall and play Pinbot. Not to be a downer, but I feel I only have so many NEDs left, so I'm going to celebrate every one.

Steph85's picture
Steph85
Posts: 157
Joined: Feb 2018

Try and enjoy the day of your scan! I was sick after drinking the contrast. I'm lucky I didn't vomit it all up before the scan! Ruined my day. Hopefully your day will be better. So glad its a chest x ray in 6 months. 

Take care, 

Stephanie

CRashster's picture
CRashster
Posts: 228
Joined: Mar 2017

i always get an IV, I’ve never had to drink it.

Steph85's picture
Steph85
Posts: 157
Joined: Feb 2018

Yes, IV in the arm for contrast but I drink the barium sulfate to. 2 bottles of it.. Yuck. 

 

Allochka's picture
Allochka
Posts: 853
Joined: Nov 2014

Good luck with the scans! scanxiety DOES get better with time, in several years :-)

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

The wait is going to be awful as you know. Make the plans so you have something post test. You need the mental break. I may have missed  if you posted about the Relay you were going to do. Did you end up doing it? I'll be thinking of you Friday and sending positive thoughts.

CRashster's picture
CRashster
Posts: 228
Joined: Mar 2017

Thank you for remembeing my Relay. It isn't until 9/29, so I'm still in the planning phase. I didn't realize as a team captain I'd be responible for providing a tent and everything that goes with it. But, it's going well, I've got good people. This is way out of my comfort zone, but I'm having fun with it.

foroughsh's picture
foroughsh
Posts: 775
Joined: Oct 2014

Wishing you a boring report and many more to come

stub1969's picture
stub1969
Posts: 776
Joined: Jul 2016

Many of us struggle with the pre-scan anxiety.  Since it does impact so many I put it in the "normal" category. 

To ward off the dark demons of negative thought, I try to remember what so many of our members have posted concerning this----think of it as preventative maintenence.  If something does pop up, we catch it early and small so getting rid of it is less difficult.  Fox has posted numerous time that we will be watched closer than we every had.  IMO this is good.  Yesterday the doctor told me for the first time that I'd have scans (one kind or another) the rest of my life.  If that's the case, I better get use to thinking of it with a positive spin.

Good luck, CR.  I look forward to your post with the results!

Stub 

CRashster's picture
CRashster
Posts: 228
Joined: Mar 2017

I see it more like the lottery that I get to play every 6 months. If I win, I get to live without worrying about it for another 6 months. If I lose, I have to do something else. So far, I've only lost once.

Bay Area Guy's picture
Bay Area Guy
Posts: 377
Joined: Jun 2016

I go through my two year scan process on July 11th (previous scans were January, 2016 and July, 2017), so I have a little bit of time before the scanxiety sets in.

I'm sure yours will be fine.

daisybud's picture
daisybud
Posts: 452
Joined: Jan 2016

I go too in July for 2 1/2 year Follow up.  

Never gets easier, I always get anxiety about it. 

Hate it!

Kim

Matt1979
Posts: 9
Joined: Dec 2017

I just had my first 6 month chest & abdomen CT scan (didn't have one at 3 months like some here) last Tuesday, and my appt with the doc was yesterday and got the all clear.  I was doing suprisingly good keeping my mind off of it up until the Monday morning when I got a message that I had "new test results" online.  I checked it out and saw the chest CT notes were all good, but they didn't post the abdomen which was done at the same time.  I'll I can think of the last 24 hours was "why are they holding back those results, they must need to sit me down".  Didn't sleep a wink that night....  They should either release it all, or nothing before the appointment.  Anyway, I know better 6 months from now to not read anything into how they release test results online.

CRashster's picture
CRashster
Posts: 228
Joined: Mar 2017

scan didn’t happen, the doc never called. No one called. They just cancelled. Got pissed off, re-scheduled, on for next week. Almost quit them. My GP urged me to go back. It’s been a bad day. To them it’s just appointments.

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

It does seem that you become a number. Few people realize the stress involved or just ignore it.. Did you at least get to enjoy part of the day? Smoked trout can wipe away a bad morning. Try and enjoy the weekend.

CRashster's picture
CRashster
Posts: 228
Joined: Mar 2017

we try again. Called and confirmed my appt. once again, ready to go.

APny's picture
APny
Posts: 1915
Joined: Mar 2014

All the best!!

Gtngbtr58 @aol.com's picture
Gtngbtr58 @aol.com
Posts: 204
Joined: Oct 2017

Be relieved when it's over and all is good-sending best wishes for continued good health-June

JoeyZ's picture
JoeyZ
Posts: 193
Joined: Mar 2018

Well drats, darn and phooey on that. Well, hang tough. I for one would love to go fishing. Let's take the boat out and go crabbing, too. I loved living on the southern Oregon coast by the ocean. Fresh dungeoness crab. YUM YUM YUMMY. 

My husband told me to think of something I love to do while having the scans. So I am thinking of all those crab at the bottom of the water, just waiting to get into the crab pot. It is very soothing!!! Especially during a noisy MRI which is a little more disconcerting.

All the best, and we will send Uncle Ned your way.

CRashster's picture
CRashster
Posts: 228
Joined: Mar 2017

i get to the docs office, today. The girl said my co-pay is 40 bucks. So, I pay it. Then I start thinking, 40 bucks for a scan? It’s been 300 something, so I go up and ask. The girl said” no, you’re not scanning today.” I said “yes, I am.” She argues that I’m not. I said, “I’m either scanning today, or never coming back.” I told her I need to see the doc. He comes in and tells her I’m supposed to scan. She told him that there was no one there to do it. So, they send me down the street at a scan place, two hours later. 777 bucks! After another whole day fighting for my scan... I’m NED! But, still, I’m fighting over the billing. Me having to pay twice as much for their continual incompetence is not accetable. NED And annual scans!

Retcenturion's picture
Retcenturion
Posts: 240
Joined: Mar 2017

Is the Dr name Stooge? How can this happen twice in 2 weeks. I don't have anything to say that could ease a terrible day. Try and enjoy the 4th weekend withthat beautiful girl in the picture and the rest of your loved ones. Sending good Karma.

APny's picture
APny
Posts: 1915
Joined: Mar 2014

Happy to hear it's NED but how incompetent is that office? You shouldn't have to pay extra for their lack of communication.

Allochka's picture
Allochka
Posts: 853
Joined: Nov 2014

Congrats on NED! Of course doc's office was frustrating, but I guess NED-thing should overshadow anything :-)

rdoyd2
Posts: 75
Joined: Aug 2016

Congrats on ned. I also had issues with my doc office and have decided I'm not going back. The hospital after insurance for a scan still costs me 3200. I'm going to pay for it myself at small scan center and have them send results to my family doc. It costs me less and I don't have to sit in that room waiting for the news. I also have terrible anxiety on scan day. Thus way I go in so scan and leave my regular doc gets the report the next day and calls my wife, she then just calls me and says I'm good. No anxiety waiting for that door to open

donna_lee's picture
donna_lee
Posts: 885
Joined: Feb 2009

The facility that performs the scans does not consider it "on the books" UNTIL they have the insurance authorization form in hand.  If the Dr's office is responsible for requesting authorization, make sure they are aware of the lead time that is necessary for them to get their paperwork in.  Twice last fall, I received calls from the hospital/CT facility as late as 4:15 the day prior to the test telling me the authorization had not come thru.  In backtracking the process, my ins. co. is allowed up to 48 hours to approve or authorize the test once they have all the necessary paperwork.  And if they need to request additional paper docs, tack on another 24-48 hours.  Also the Ins. Co. may not do the approval; they may conrtact with a medical review organization to determine if the test is necessary.  It boiled down to my Onc. office needing to start nearly a week in advance instead of faxing their request the day prior to the test.

To say I raised Holy Heck is an understatement.  Out of all the greif, the hospital has formed an education program to inform all the Dr's, Clinics, etc. in the region  to ensure they know the time frame and steps to follow to make sure their patient receives the test that is ordered.

I don't advise skipping a test, as it can catch changes, like it did with me.  But finding a Dr. and office that will respond to your needs is up to you.

Great news on the NED.

donna_lee

Subscribe to Comments for "Guess what???"