Dealing with stage 4b Serous Uterine Cancer

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Comments

  • cmb
    cmb Member Posts: 1,001 Member
    unknown said:

    Don't be afraid of a clinical trial

    My son was diagnosed with non hodgkins lymphoma when he was 15.  He went through surgery to remove a mass above his eye, then radiation on the spot.  In about a year, he was again diagnosed with recurrent cancer, this time in his leg.  That's when his wonderful young doctor said we're going clinical trial, with a concoction of chem drugs that he thought would benefit.  AND IT DID!  I was scared for Jeff, but he didn't want to pass up any opportunity to be cancer free.  AND HE IS!  He is now 48 years old and has not had any recurrance or new cancers.  I know clinical trials sound like something that people can try if they don't respond to traditional therapy, but if my UPSC returns, I will never hesitate to seek a clinical trial.  Hopeing you respond to your current therapy, and hoping you gain strenght.  Hugs Nancy

    Trying Something New

    Nancy,

    Thank you for sharing such a wonderful story about your son's successful battle with cancer and the recovery that has lasted into mature adulthood. What a relief and good fortune for him and your entire family.

    My mother also struggled with cancer (originally cervical) that spread and required more surgeries and different treatments over 7 years. In 1987, she was given a newly approved chemo drug that proved to be a great success, finally putting her into remission. She died in her mid-70s, several years after this last treatment from some of the side effects from her earlier treatments. But she was still cancer free at the time of her death.

    So new drugs or new methods of treatment, either as part of a clinical trial or introduced as new treatment protocols, can have remarkable results.

  • Jacjac2
    Jacjac2 Member Posts: 44
    alisong said:

    Hello to you allserous

    I have just been diagnosed with 4B uterine serous , had a radical hysterectomy, and just started the first round of chemo. Thankyou for sharing. It makes me feel I am not completely alone. I have felt very isolated and depressed as i adjust to my new reality of a short life expectancy.

     

    Alison

    not alone on here

    I have carbo/taxol, 35 days of radiation (twice a day), oral Letrozole (stopped working), tried Doxil ( severely burned my body-huge blisters), and now on Avastin every 3 weeks.  He hopes it will work for a few more months but does tell me it will stop working.  I am quickly learning that this is the place to vent, to share, to cry, to shout, scream.....for only these ladies understand.  The reality after all of this has not set in for me, I guess I just live each day.  I recently lost a fellow teacher who had ovarian, she was my local support.  It scares me because she was always upbeat and I too didnt thinks much of her illness, but it took a quick turn for the worse.  Heaven gained a true angel.  Sorry for the downer....you are not alone.

  • SF73
    SF73 Member Posts: 317 Member
    unknown said:

    Don't be afraid of a clinical trial

    My son was diagnosed with non hodgkins lymphoma when he was 15.  He went through surgery to remove a mass above his eye, then radiation on the spot.  In about a year, he was again diagnosed with recurrent cancer, this time in his leg.  That's when his wonderful young doctor said we're going clinical trial, with a concoction of chem drugs that he thought would benefit.  AND IT DID!  I was scared for Jeff, but he didn't want to pass up any opportunity to be cancer free.  AND HE IS!  He is now 48 years old and has not had any recurrance or new cancers.  I know clinical trials sound like something that people can try if they don't respond to traditional therapy, but if my UPSC returns, I will never hesitate to seek a clinical trial.  Hopeing you respond to your current therapy, and hoping you gain strenght.  Hugs Nancy

    What a wonderful story to

    What a wonderful story to share. Thanks, Nancy. Wishing you and your son many healthy years!

  • rdifatta
    rdifatta Member Posts: 15
    A Positive PET Scan

    After two cycles of Taxol/Avastin weekly (Avastin Bi/Weekly) a PET scan was done and, by gosh, it showed that the treatment was working!  Tumors have receded and the news generally good.

    CA125 at time of recurrence was 340, but as of now has gone down to 11.5.  There are side effects, however.  I am having sinus inflammation and some diarrhea.  My oncologist is thinking

    about going to monthly Avastin infusions at some point in the future.  I believe I read somewhere on this blog that Avastin will stop working over time.  Not sure about this, perhaps someone

    out there is familiar with this.  For now I'm just busy keeping my energy up and getting rides from a lot of friends and helpers.  God Bless you all!  Rose

  • MAbound
    MAbound Member Posts: 1,168 Member
    So good to hear from you!

    It's been a while, so it's good to hear from you and good to hear that your treatments are having some positive effect, at least on your CA-125 levels and scan results. The CA-125 is very encouraging, but I'm a bit surprised it's down in spite of the sinus inflammation because something like that can cause the levels to climb without it being due to the cancer.

    Immodium helps with diarrhea if you haven't tried it yet and a bulking agent like Benefiber or Metamucil might help too. Such an annoying side effect, eh? Hopefully it will subside after a while.

    I'll be praying that you'll keep having enough energy and emotional stamina to keep at this till you reach NED again. It sure looks like you are heading in that direction, so feel the positive energy and wishes we are sending your way! 

  • ConnieSW
    ConnieSW Member Posts: 1,677 Member
    That's more like it.

    Delighted to learn things are moving in a much better direction. I know you were so discouraged the last time we heard from you. 

  • Jairoldi
    Jairoldi Member Posts: 221 Member
    rdifatta said:

    A Positive PET Scan

    After two cycles of Taxol/Avastin weekly (Avastin Bi/Weekly) a PET scan was done and, by gosh, it showed that the treatment was working!  Tumors have receded and the news generally good.

    CA125 at time of recurrence was 340, but as of now has gone down to 11.5.  There are side effects, however.  I am having sinus inflammation and some diarrhea.  My oncologist is thinking

    about going to monthly Avastin infusions at some point in the future.  I believe I read somewhere on this blog that Avastin will stop working over time.  Not sure about this, perhaps someone

    out there is familiar with this.  For now I'm just busy keeping my energy up and getting rides from a lot of friends and helpers.  God Bless you all!  Rose

    Good news

    Thanks for sharing your positive news. It's good to hear from you and that those tumors are receding along with your CA125 counts.

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,352 Member
    Rose, so good to hear from

    Rose, so good to hear from you and better to hear how the treatments have worked.  Put this in the win column.  Hugs dear one.

  • cmb
    cmb Member Posts: 1,001 Member
    Cheers!

    So glad to hear that things are looking up for you.

  • pato58
    pato58 Member Posts: 120 Member
    I have read your story Rose

    and I am honestly excited about the positive response of the new chemo.
    Hugs to youLaughing

  • txtrisha55
    txtrisha55 Member Posts: 693 Member
    rdifatta said:

    A Positive PET Scan

    After two cycles of Taxol/Avastin weekly (Avastin Bi/Weekly) a PET scan was done and, by gosh, it showed that the treatment was working!  Tumors have receded and the news generally good.

    CA125 at time of recurrence was 340, but as of now has gone down to 11.5.  There are side effects, however.  I am having sinus inflammation and some diarrhea.  My oncologist is thinking

    about going to monthly Avastin infusions at some point in the future.  I believe I read somewhere on this blog that Avastin will stop working over time.  Not sure about this, perhaps someone

    out there is familiar with this.  For now I'm just busy keeping my energy up and getting rides from a lot of friends and helpers.  God Bless you all!  Rose

    Good News.  Congratulations

    Good News.  Congratulations that the PET scan shows it is shrinking.  Continued good thoughts and prayers for you. trish

  • Northwoodsgirl
    Northwoodsgirl Member Posts: 571
    So happy for you Rose!

    I just read your great news Rose! I am very, very happy that the cancer is shrinking! Keeping you in my prayers for no evidence of cancer. 

    Lori